Here For A Moan - Forgive Me

[bev40]

hi

please forgive me, im just here for a moan.

I went to see the consultant for the results of my biopsy, not a very nice man, didn't have time for me, didnt want to listen to me, told me the biopsy was clear, i don't have coeliac but if i want to 'go away and look things up in books or do research myself on the internet then go away and do that and dont bother coming to see me'

Needless to say i was rather upset at his attitude, i had been feeling so well after coming off gluten and tried to tell him, after all i have been ill for 12 months now, he nade me feel like a complete idiot, like a hypochondriac who spends all days researching her aches and pains on the internet.

He did tell me that my parietal cell autoantibodies were very strong though, if anyone knows what that means, he says it indicates i have pernicous anaemia or B12 deficinecy, he ordered more blood tests but ive not had any results yet.

BUT..... the reason why i am here is because i have gone completey off the wagon re gluten, i am eating more or less anything and all my symptoms are back, the joint pain is horrendous, i have brain for and depression and i feel a total wreck!

I was doing so well and feeling absolutely fantastic, i had even lost 1 stone 9 lbs without trying. Now my stomach is bloated again like im five months pregnant and i have the worst stomach pains ever, ive also developed a terrible pain under my ribcage at the right hand side, just like a deep stitch. I feel a mess.

But i jus cant seem to get motivated again. The depression itself makes me want to eat then when i eat i feel depressed, the pain makes me want to eat, everything makes me want to eat!!!!!!!

Ive also developed a real craving for milk, i just cant get enough of it and am drinking it pint after pint although that too gives me a terrible pain like heartburn.

I dont know which way to turn, i refuse to go back to the doctors who just treat me like an idiot.

Ah well, i think thats enough moaning for now, im sorry guys, i know i should pull myself together and just go with my body and what feels right, just at the moment thats is easier said than done.

Thank you for taking the time to read

PS can anyone recomend any supplements i can take that may make me feel a little better or make things easier? Any advice gratefully received.

Thank you

BevX

[plantime]

Hi, Bev, welcome to the celiac board. I'm sorry your doc was such a pain. You felt better on a gluten-free diet, why do you need a doc's permission to stay on it? Many on the board remain gluten-free, regardless of what docs and tests said, and feel better for it. What you have done is a dietary challenge. Now, you know the gluten makes you sick, do you want to get better? Then stop eating the gluten, and show them all who was right!!

[Guest nini]

So sorry the Dr. was a jerk... unfortunately many of us have experienced the same thing... mine was my OB/GYN telling me that the gluten-free diet was bad for my unborn baby and to go off of it since it was obviously all in my head... stupid me I listened to him and developed serious complications with my pregnancy, delivered my daughter 6 weeks pre term after severe Toxemia and emergency C-section. I very nearly died and so did my daughter... we were lucky we didn't. It wasn't until my daughter was 3 before I was accurately dx'ed (because I continued to eat gluten and continued to get sicker and sicker and sicker) my "gut" told me it was the gluten, but I didn't listen to it.

Please trust your "gut" and listen to it. I had good friends that kept telling me "you know it's the gluten, just go off it" I wish I'd listened to them. Ignore that stupid Dr. and accept that your dietary challenge has proved to you that you are gluten intolerant and that is all you need to know. Hindsight is 20/20 right? We need to be able to trust our instincts instead of relying on the medical community to confirm what we already know.

[Ursa Major]

Hi Bev, I agree totally with what's been said already. You need to get off the gluten and the dairy. Buy yourself some nice things (gluten-free of course) that you like, that you can eat whenever you feel like having gluteny things or dairy.

My doctors were so clueless, too. Fortunately, my family doctor believes me, but the dermatologist treated me like an idiot, too, he made me so mad and upset by his terrible putdown attitude.

But you know what? I decided I didn't care what he said, because he is a jerk, and I know what I know. I feel much better off gluten. And I get awful rashes when I eat it, and I don't when I won't. So, I am staying on the diet forever. And so should you!

Do you have anybody who will support you and stop you when they see you eating gluten or dairy? You need somebody who is physically closer to you then us here in Canada or the US to hold you to eating gluten-free.

Once you're over the withdrawal you will be fine. I wish you all the best!