Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hyperemesis

Fiddle-Faddle

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Is there a documented connection with hyperemesis and undiagnosed celiac? I'm starting to get the idea that there must be a link from some of the recent posts. I had terrible hyperemesis for the entire pregnancy with all three of my pregnancies (gee, now I understand why I couldn't keep the crackers down!), but nobocy even mentioned the possibility of celiac to me. Anybody?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Satori Newbie
Satori
Posted
Is there a documented connection with hyperemesis and undiagnosed celiac? I'm starting to get the idea that there must be a link from some of the recent posts. I had terrible hyperemesis for the entire pregnancy with all three of my pregnancies (gee, now I understand why I couldn't keep the crackers down!), but nobocy even mentioned the possibility of celiac to me. Anybody?

I was not gluten-free pregs #1 &2, got severe hyperemesis, lost baby #1 at 5 months gestation due to severe dehydration. Was gluten-free for next 2 pregs, still got it, baby went into distress and died due to my dehydration stressing the fetus, this last preg I raised hell and was given a PICC line at 8 weeks along when it started and it was a life saver, she's asleep in my lap right now and I will NEVER get prego again, 4 pregs with hyperemis and 2 babies lost is enough for me.

  • 2 weeks later...
qtgrl Newbie
qtgrl
Posted
Is there a documented connection with hyperemesis and undiagnosed celiac? I'm starting to get the idea that there must be a link from some of the recent posts. I had terrible hyperemesis for the entire pregnancy with all three of my pregnancies (gee, now I understand why I couldn't keep the crackers down!), but nobocy even mentioned the possibility of celiac to me. Anybody?

I just found out about 10 years ago that I had hypermesis when I was pregnant. My son is now 29 years old. At that time I was very ill and almost died a couple of times. I was 40 when I read an article about hypermesis and started to investigate. About 14 years ago I was diagnosed with Celiac Sprue. They hypermesis foundation is doing studies to find out if there is a connection. I had so much nausea and still do today. When I was pregnant I lost 15 pounds in 3 days. I couldn't even drink water without throwing up.

I think there is a definite connection.

azmom3 Contributor
azmom3
Posted

Hello everyone,

I just stumbled upon this tonight, so I'm a first-timer here. I had hyperemeis with all five of my pregnancies, resulting in 2 miscarriages and 3 beautiful children. This last one was by far the worst one for me. He is now 22 months old and suspected of celiac due to failure to thrive..blood test showed one panel as positive, so we will be redoing blood work and then having a biopsy done if still positive. I'm reading these posts though about possible link with celiac and hyperemesis....has it ever been the baby with celiac that's growing inside the mom and causing her to be so sick as opposed to the mom having celiac? The second my son was born, I felt great, (in comparison) but the nine months I carried him felt like I had something toxic in my body as I was never so sick and in so much pain before. It literally felt like I had something foreign or toxic that was not supposed to be in there. I'd love to hear your thoughts or stories...

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author
Hello everyone,

I just stumbled upon this tonight, so I'm a first-timer here. I had hyperemeis with all five of my pregnancies, resulting in 2 miscarriages and 3 beautiful children. This last one was by far the worst one for me. He is now 22 months old and suspected of celiac due to failure to thrive..blood test showed one panel as positive, so we will be redoing blood work and then having a biopsy done if still positive. I'm reading these posts though about possible link with celiac and hyperemesis....has it ever been the baby with celiac that's growing inside the mom and causing her to be so sick as opposed to the mom having celiac? The second my son was born, I felt great, (in comparison) but the nine months I carried him felt like I had something toxic in my body as I was never so sick and in so much pain before. It literally felt like I had something foreign or toxic that was not supposed to be in there. I'd love to hear your thoughts or stories...

That's how I felt with all three of my pregnancies--evey time I vomited (many times per day), it felt like my body was deperately trying to rid itself of a poison. With the first one (where I refused anti-nausea meds as I was so worried about the side effects), the only thing keeping me from suicide was the fact that I so wanted the baby...REALLY made me rethink the whole abortion issue (I could never get one myself, but I can't see telling someone that they would have to go through 9 months like that when they don't even want the baby, especially if the mom was a rape victim...) Honestly, I had 2 colleagues who, in comparison, just SAILED through chemo for breast cancer, whereas I came home with my first baby 10 pounds UNDER my starting weight.

azmom3 Contributor
azmom3
Posted
That's how I felt with all three of my pregnancies--evey time I vomited (many times per day), it felt like my body was deperately trying to rid itself of a poison. With the first one (where I refused anti-nausea meds as I was so worried about the side effects), the only thing keeping me from suicide was the fact that I so wanted the baby...REALLY made me rethink the whole abortion issue (I could never get one myself, but I can't see telling someone that they would have to go through 9 months like that when they don't even want the baby, especially if the mom was a rape victim...) Honestly, I had 2 colleagues who, in comparison, just SAILED through chemo for breast cancer, whereas I came home with my first baby 10 pounds UNDER my starting weight.
jerseyangel Proficient
jerseyangel
Posted
That's how I felt with all three of my pregnancies--evey time I vomited (many times per day), it felt like my body was deperately trying to rid itself of a poison. With the first one (where I refused anti-nausea meds as I was so worried about the side effects), the only thing keeping me from suicide was the fact that I so wanted the baby...REALLY made me rethink the whole abortion issue (I could never get one myself, but I can't see telling someone that they would have to go through 9 months like that when they don't even want the baby, especially if the mom was a rape victim...) Honestly, I had 2 colleagues who, in comparison, just SAILED through chemo for breast cancer, whereas I came home with my first baby 10 pounds UNDER my starting weight.

I had a terrible time with nausea and vomiting both times. I would lose weight during the first few months--moreso with the first pregnancy. I'm not one to throw up--even though I get very nauseous. But when I was pregnant, I threw up several times a day. I missed my grandfather's funeral :( due to the fact that I was so nauseated and never could predict when I would start to vomit. I did try the anti-nausea med from the doctor with the first--it made no difference, and I was nervous about taking anything, so I stopped it. Of course, I ate lots of saltines--not knowing that they were just making matters worse. I'm incredibly lucky to have my 2 sons, and just couldn't go thru another pregnancy again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KayJay Enthusiast
KayJay
Posted

Wow I was really sick too. I couldn't move or eat or drink anything. Thankfully my baby survived. I feel for all of you who lost your little ones. That just breaks my heart.

  • 3 weeks later...
ptjamie Newbie
ptjamie
Posted

I am now 28 weeks pregnant and have been diagnosed with Celliacs for over a year...despite the gluten-free diet I have still had hyperemesis from 5 weeks to currently and need anti-nauseau meds to get through the day. I have been admitted probably 7-10 times to the ER for IV fluids and admitted for hospital stays 3 times for re-hydration, nutritional needs. Im really interested in this connection since it seems to be with or without the gluten-free diet for some people.

Jamie

queenofhearts Explorer
queenofhearts
Posted

I had terrible nausea & couldn't keep anything down for several months. When I found out I was expecting twins my first thought was "thank God, I'll never have to do this again!" (I really wanted two kids). The docs thought the extreme sickness was because of the high hormone levels with twins. I was a long way from being diagnosed then. I remember being really scared that the babies would starve. But the nausea did abate finally towards the end & I ate a ton & the boys were fine. They're 19 now!

My heart goes out to those of you who lost your babies.

Leah

nyangel4 Newbie
nyangel4
Posted

Hi,

I have had severe hyperemesis. On home IV for four months with both pregnancies and Zofran and prevacid. My third pregancy so severe I terminated my pregancy. They had put a pick line in to far which was hitting my heart. Cardio doctor kept doing X-Rays they told me I had a heart problem. At the time I had a 1 year old daughter and a 3 1\2 old son. The cardio doctor thought terminatiion would be best because they really didn't know what was wrong with my heart. Well as it turns out there was nothing wrong with my heart!! I was a mess.

Now it is four years later, I was diagnosed with Celiac Disease almost going on two years now. I have now found out I am 6 weeks pregnant. I have started getting nauseous. My doctor has put me on prevacid and Zofran. I have taken the Zofran and it seems to help. I have read the stories and see Zofran is not gluten-free. I have a temperature 99 and I consisently feel like I have a virus. I am on the gluten-free diet.

Azmon3 you have said you felt like you had something toxic in your body did you take tylenol, vitamin, etc?

I would love any advice you can give me..

quote name='azmom3' date='Jul 24 2006, 12:41 AM' post='172725']

Hello everyone,

I just stumbled upon this tonight, so I'm a first-timer here. I had hyperemeis with all five of my pregnancies, resulting in 2 miscarriages and 3 beautiful children. This last one was by far the worst one for me. He is now 22 months old and suspected of celiac due to failure to thrive..blood test showed one panel as positive, so we will be redoing blood work and then having a biopsy done if still positive. I'm reading these posts though about possible link with celiac and hyperemesis....has it ever been the baby with celiac that's growing inside the mom and causing her to be so sick as opposed to the mom having celiac? The second my son was born, I felt great, (in comparison) but the nine months I carried him felt like I had something toxic in my body as I was never so sick and in so much pain before. It literally felt like I had something foreign or toxic that was not supposed to be in there. I'd love to hear your thoughts or stories...

jknnej Collaborator
jknnej
Posted

I'm almost positive Zofran IS gluten free. I take it when nauseated and it works wonders. I just think that Glaxo-Smith Kline won't say for sure it's gluten free cus' they want to cover their butts, but a lot of us take it and are fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748
    GFBB95
    Newest Member
    GFBB95
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.