Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms Possibly From Gluten?


Lymetoo

Recommended Posts

Lymetoo Contributor

I've had bad pain in the area of my kidneys for about a year. I had a CT scan several months ago and it showed that the kidneys were fine. My bloodwork is slightly abnormal on the BUN/creatinine.

I've been getting foot and hand cramps for several months. It seems to happen if I forget to take my calcium. So I was wondering if maybe I'm not absorbing the calcium?

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BeckyW Contributor

I get hand and feet numbness and tingling when my calcium levels are low. I had my thyroid removed in February and I am not producing calcium and have to take mega doses of calcium daily. Not sure about the kidney pain though. Have you had a blood calcium level checked? Hope this helps!

Lymetoo Contributor
I get hand and feet numbness and tingling when my calcium levels are low. I had my thyroid removed in February and I am not producing calcium and have to take mega doses of calcium daily. Not sure about the kidney pain though. Have you had a blood calcium level checked? Hope this helps!

Well, I just started on armour thyroid about 2 months ago. I wondered if the "kidney" pain might actually be from my colon??

Need to see about blood calcium levels. Thanks!

Ursa Major Collaborator

I had excrutiating back pain most of my life (from the age of about 7), and nobody could figure out why. It went almost totally away the day after eliminating gluten! And my back is still the best it's been since I've been a little kid. The back pain comes right back when glutened (or if I eat rice, eggs or soy, but most with gluten).

So, it is entirely possible that your backpain is caused by gluten intolerance. I also used to get pain/cramping/tingling/numbness in my hands and feet, and don't any more.

jerseyangel Proficient

I had tingling and numbness in my face, left arm and both legs before going gluten-free. It has gone away, except for the facial numbness, which gets worse when glutened. My left arm would feel strange--I still don't know how to explain it--heavy, numb, like it didn't belong to the rest of my body. It was scary at the time--I had no idea about Celiac or what it could cause.

I still get cramping in my calves, especially at night. I am awaiting results of blood tests which included TSH, T3 and T4 to check my thyroid.

Lymetoo Contributor
I had tingling and numbness in my face, left arm and both legs before going gluten-free. It has gone away, except for the facial numbness, which gets worse when glutened. My left arm would feel strange--I still don't know how to explain it--heavy, numb, like it didn't belong to the rest of my body. It was scary at the time--I had no idea about Celiac or what it could cause.

I still get cramping in my calves, especially at night. I am awaiting results of blood tests which included TSH, T3 and T4 to check my thyroid.

Thanks! I was just thinking about the gluten being the cause of the back pain today. It would be a relief to get rid of that!!

olalisa Contributor

Before my dx I had intermittent back pain. A few months before my dx I began to have foot cramps multiple times daily. It was one of the symptoms that got me BACK to the doctor AGAIN and made me demand that they figure out what the heck was wrong with me! The foot cramps (and the back pain) resolved about 2 weeks after going gluten free. Now I only get them when I've been glutened--esp the foot cramps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lymetoo Contributor
Before my dx I had intermittent back pain. A few months before my dx I began to have foot cramps multiple times daily. It was one of the symptoms that got me BACK to the doctor AGAIN and made me demand that they figure out what the heck was wrong with me! The foot cramps (and the back pain) resolved about 2 weeks after going gluten free. Now I only get them when I've been glutened--esp the foot cramps.

Thank you! That gives me hope!! :)

jams Explorer

Very interesting... I just had a ct scan 2 days ago for kidney pain. They took my gallbladder out and thought it was maybe the pylop on that that was causing the pain. It is a dull nagging pain on the right side. I have had it for 2 years and I am gluten free. I won't get the results until Monday.

wozzy Apprentice

It's hard to tell. Symptoms can be caused by so much. I start to drive myself crazy if I think about what's causing every one of my ailments.

Guest Robbin
It's hard to tell. Symptoms can be caused by so much. I start to drive myself crazy if I think about what's causing every one of my ailments.

I hear you on that score--I hurt at some point on my body continuously and I wonder sometimes how would I know I don't have cancer or something life-threatening? I try not to think about it too much unless I am unable to walk, talk or breathe :blink: . My back has hurt for as long as I can remember. I've had malabsorbtion probably since childhood for which I blame the scoliosis, then had a herniated disk and broken tailbone from a forceps delivery of my second child. I've been gluten-free since January and have had improvements everywhere except the back. You give me hope, Ursula.

I suggest that anyone with a back problem make sure that their dr. checks their gallbladder too. It can cause back pain-weird, but true. Also, have your feet and legs checked out. Sometimes foot abnormalities and one leg shorter than the other -even1/4 -1/2 of an inch--can cause problems too (I have those lovely conditions too :blink: ) Take care.

andrew1234 Newbie

Dear Lymetoo,

your sympotoms could be caused by hypocalcemia (low blood levels of calcium) which is common in celiac sprue. For your body to absorb calcium you need to first absorb vitamin D. The main function of vit. d is intestinal absorption of Calcium. Hence if you're not absorbing vit. d then you're not absorbing Ca. Some people also mention that they have tingling, or bone pain. These are all signs of hypocalcemia because if Calcium is not absorbed from the intestines then the body tries to take it from the bone (the major source of Ca. in the body). Tingling is due to the fact that Ca. is needed for the function of nerves. Your kidney pain is probably due to "secondary hyperparathyroidism" which occurs after long term hypocalcemia. I hope I am not too technical in my explanation. I would talk to your doctor and have your parathyroid hormone levels checked.... I hope this helps....Andrew

eKatherine Apprentice

I used to get foot and leg cramps that calcium didn't help. It turned out that they were cured by taking vitamin E caplets (d-alpha tocopherol only). If the calcium supplementation doesn't do it, you might want to try that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.