Diabetes

[robrebar]

My 11 year old daughter was diagnosed with Celiac 3 Days ago by blood work only. She has had diabetes since she was 3. The Dr. wants to eliminate all wheat products, and I was curious if she should have a Biopsy first to confirm the disease? Any help would be appreciated.

[lovegrov]

Biopsy is considered the gold standard. If she had diabetes and the blood work in positive, she certainly has it, but if you wan the full workup, do it now before she goes gluten-free.

You might know this, but she also needs to eliminate barley, rye, and oats (because oats are contaminated with wheat).

richard

[sydsmom]

My 11 year old daughter was diagnosed with Celiac 3 Days ago by blood work only. She has had diabetes since she was 3. The Dr. wants to eliminate all wheat products, and I was curious if she should have a Biopsy first to confirm the disease? Any help would be appreciated.

i just jioned this message board and was reading your post it was a long time ago but if you still check out the message board i'd like to know if your daughter had any symptoms of celiac. my daughter is 6 she was diagnosed with diabetes at age 4 and celiac over a year ago. she had no symptoms. i was wondering if you have a hard time with carb counting gluten free foods. sydsmom

[liveforlove]

i just jioned this message board and was reading your post it was a long time ago but if you still check out the message board i'd like to know if your daughter had any symptoms of celiac. my daughter is 6 she was diagnosed with diabetes at age 4 and celiac over a year ago. she had no symptoms. i was wondering if you have a hard time with carb counting gluten free foods. sydsmom

Im diabetic too. and i just recently found out that i mite have celiac disease. which im cutting out all wheat from now on. since shes little she mite not have any symptoms. im not sure though. i guess it just depends on the person, on how there body reacts to gluten. i know i didnt have ANY symptoms at all, untill very recently. one nite i just ate wheat thins and my stumach hurt really bad after that. if you search on like yahoo or google, and look up celiac disease. you should find a website to tell you more bout celiac and the symptoms and then maybe you can just look at for them. As far as carb counting goes. i find it much easier cause gluten free foods have less carbs, because theres no wheat in it. i just count the carbs as i normally do. does your daughter take shots or does she have the insulin pump??

[psawyer]

Personally, I would accept the blood work without subjecting her to the endoscopic biopsy. The blood tests are much better than they once were, and a positive is a positive. A positive biopsy will just confirm what you already know. Unless there is some outside force that demands a biopsy as "proof" of celiac, I would go gluten-free immediately.

For what it is worth, diabetes and celiac are both autoimmune diseases. They correlate. That is, a type 1 diabetic is much more likely to have celiac than someone without diabetes. The reverse is also true, that is, far more celiacs have diabetes than the rate among non-celiacs.

There is research now that suggests that if celiac is diagnosed early and the gluten-free diet rigidly adopted, the chances of developing type 1 diabetes can be substantially reduced. I was dx with type 1 diabetes over 20 years ago, but had been having gastric symptoms consistent with celiac for much longer. Those symptoms got much worse in 1995, but I still was not diagnosed until 2000 (and then only because my wife became aware of celiac and I asked the doctor to test for it).

[Guest arnelwendy]

My daughter was diagnosed with diabetes a year and four months ago.

She was diagnosed a celiac six months later no

signs.

I would get a biopsy.

Dr green just wrote a book it should help.

He is from columbia.

You can not test once you are glutten free

This is a life long decsion.

The biopsy should be done by a Dr who is a celiac specialist.

Diabetes was round 1 of my daughter fight round two celiac.

Get the bopsy soon

[Nic]

I have a question for parents of diabetic and celiac children. I am waiting for blood results for my son who was diagnosed with Celiac a year ago. Within the past 6 months or so we have noticed a change in his eating. For example, if he eats a meal such as dinner, it sends him into this frenzy where he is craving food for at least an hour. The other night he ate dinner, cheese burger (no bun) and fries. Then he wanted dessert so he had a gluten-free brownie. He started complaining that he was still hungry and wanted candy. I told him it had to be something healthy so he settled on a cup of mandarin oranges. Then he had another. About 10 minutes later he asked for more food. I told him he had enough and he began to cry and beg for food even if it is something healthy so I gave into yogurt. Well, one led to two. So after that I cut him off. After a while of being cut off he stops. This doesn't happen at every meal but usually at least with 1-2 meals per day. It is almost as if eating triggers an extreme hunger or craving for more food. It is usually something sweet or a carb that he wants. He also tires out quicker than I think he should. Anyway, the doctor is testing for thyroid, diabetes, and a complete Celiac work up to see if maybe he is still getting gluten somehow. Has anyone else heard of these symptoms correlating with high sugar or thyroid?

Nicole

[Guest Lucy]

My son was diagnosed with diabetes, 1.5 years ago, and celiac just over a year ago (6 months later). We did notice a difference when counting carbs, b/c more of his sugar is being used, before going gluten free, the food was passing thru without being absorbed, so he didn't need as much insulin.

He is on the pump now, I highly recommend it. At least they can eat whenever they want, instead of not only being restricted to what, but also when.

He was completely asympotomatic when diagnosed, but after going gluten free for a year, he has vomitting now if he gets it.

[ehrin]

I was dxed T1 when I was 3 - have had diabetes for 25 years now and was dxed with Celiac 6 months ago. I was dxed because I was having an upperendoscopy done to see if I had diabetic gastroparesis (I do) and while he was in there he did a biopsy. Apparently he had seen the bloodwork and wanted to verify. None of this was told to me so when I was informed I had celiac it was a complete blow, because I had no idea they were even testing me for it and I had no idea what celiac even was at that point. If you don't mind the out of pocket cost for the biopsy I'd get it. My biopsy did come back as one of the most abnormal ones that my GE has seen, so my intent is to have another in a year or so to see if the gluten-free diet is helping to improve the villi. I suppose my point is that if you feel you need the biopsy to confirm the blood tests than by all means do it. It is better to be safe than sorry. However these autoimmune disorders/diseases all seem to go together.

[Laura--G]

My son is 8 and was diagnosed with Diabetes when he was 3. He had his biopsy and was diagnosed with Celiac on March 8 of this year. The biopsy was very stressful for him. I don't know that I'd do it again if I had the choice. He couldn't eat all day and his biopsy wasn't until 3 pm. He went low, probably from the stress. It was just a huge pain. Anyway, since he was diagnosed we have had a very hard time keeping his blood sugars in range. He has a pump and before being diagnosed with Celiac he used 1 unit of insulin for every 33 carbs, we have changed it 3 times in the last month and right now we are at 1 for 22. Also, his correction was 1 for 150 over 120 but now it's 1 for 120 over 120. Where he was low before he is now high. I'm sure as his body adjusts to the gluten free diet and we get his insulin correctly figured out he will be much better.

Nicole - When my son was diagnosed with diabetes he wasn't hungry all the time. He was extremely thirsty though.