Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Please Please Help Me

wzcbj

Recommended Posts

wzcbj Newbie
wzcbj
Posted

Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted
Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

Welcome! Hmmmm....this is puzzling. All other signs could be many things, but are definitely indicative of Celiac. But the sighing.....could be allergy related.

Sorry I can't be of help, but there are so many knowledgeable people here, and I pray you get some relief soon.

blessings -

queenofhearts Explorer
queenofhearts
Posted

I'm not sure I quite understand what you mean-- are you having trouble catching your breath? Is the sighing more like gasping? That would hint at asthma, & could certainly be triggered by a food allergy, or even just the interruption of regular breathing that comes with swallowing your food.

I hope we can be of help to you somehow-- it sounds distressing.

Leah

Mango04 Enthusiast
Mango04
Posted

Do you feel like your throat is swelling or closing up when this happens?

wzcbj Newbie
wzcbj
Posted
  • Author

Maybe my throat changes, well that sounds stupid....here is what happens, I eat, a short time later it almost feels like a panic attack. I start breathing real fast and hard then the sighs start. I sigh and sigh and sigh for anywhere from 10 minutes to an hour, then it stops...........then its almost like when it hits the intestines it starts all over again. NEVER happens on an empty stomach

queenofhearts Explorer
queenofhearts
Posted

Have you talked with your doctor about this? It still sounds like it might be asthma to me (there's a lot of it in my family, & it manifests in some odd ways). You mention the panicky fast breathing, with asthma there is a sensation that you can't move the air in & out of your lungs properly. It can be very frightening, & lots of sufferers tend to pant during an attack. The way it works is that the bronchial tubes are constricted, which actually inhibits breathing OUT, this might lead to what you call sighing... it's a little hard to tell via e-mail. I would definitely ask your doctor about this-- there are inhalers that can give you immediate relief it it is asthma. And of course it would be good to figure out what is triggering it; an elimination diet might help that.

Leah

wzcbj Newbie
wzcbj
Posted
  • Author

This is the post I found that made me believe maybe my sighing is due to GA::::

num1habsfan

now, here are some Symptoms of a gluten allergy, and whatever has a star beside it is what I experience:Head:Feeling dizzy or faint*headachesmigrainesheavy feeling*--------Eyes:Watery*itchy*red*swollentired*sore*blurred vision*heavy feeling in eyelids--------Nose:Runny nose*sneezing*itching*burning*excessive mucus*blocked nose*sinusitis--------EARS:ringing in the ears*soreness*loss of hearing*earracheburning sensationsitching*--------THROAT AND MOUTH:soreness*sore gums*swollen tonguemouth ulcersloss of taste*hoarseness*cough*choking fitsitching of the roof of mouth*bad breath*--------HEART AND LUNGS:chest pains*palpitationsrapid heartbeatasthma*ches congestion*tightness across chest*shallow breathing*excessive sighing breathlessness*catarrh*---------

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

You could very well have a food allergy. A food allergy is a bit different than celiac disease/gluten intolerance, but many people on this board have food allergies as well. Maybe you could do something like a rotation diet? Have you already been tested for food allergies? That's not to say a negative test result would rule it out. You could start experimenting with your diet and maybe keeping a food diary would be helpful too. Some common allergens are soy, wheat, dairy, nuts, shellfish...there are many different possibilities....

judy05 Apprentice
judy05
Posted
Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

I think you also need to keep a food journal. Does this occur after eating any food or one or more foods in particular? Do you have any heartburn associated with this? Is it hard for you to swollow certain foods? I have trouble swallowing hard boiled eggs, it is very scary, I usually spit them out so that i can swallow. My Mother also had this problem especially when she was upset about something. I had a food test and found that i am intolerant of wheat, yeast, corn, dairy, and egg whites.

Ursa Major Collaborator
Ursa Major
Posted
Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

If you suspect that gluten may be a problem, get tested for celiac disease! And while you're at it, get tested for other allergies/intolerances as well, to get to the bottom of this. Since you only experience this problem right after eating, it's obviously food related.

I agree with the food diary idea. Start writing down exactly what you eat at every meal, and how you felt afterwards. Start eating very simply, so it will be easier to identify the culprit.

I hope you can figure this out, it sounds scary.

CarlaB Enthusiast
CarlaB
Posted

Okay, you finally found someone who can relate!!! I used to hyperventilate frequently. I also could not catch my breath, it was like I could breath, but never take in a big enough breath. This is completely gone gluten-free. I went through all the testing for asthma and it was just one more case where the docs rolled their eyes, patted me on the back, and sent me home.

I would suggest getting tested because once you are gluten-free you can't. All my testing was inconclusive from being gluten-free, so I got tested by enterolab, which you can do on your own without your doc.

penguin Community Regular
penguin
Posted

I have that problem, too. It's like I'm gulping for air and I can never get a breath quite deep enough. In college, I had a really poor score on the blow-out-raise-the-ball-thingy test. When I had allergy testing while gluten-free, it was totally normal. Now that I'm on a gluten challenge for a biopsy, the air-gulping came back. I think it's a hyper-active immune system thing.

I've been dx'ed with athsma, but it's only when I'm sick.

Sarah8793 Enthusiast
Sarah8793
Posted

I too can relate! I noticed while keeping a food journal that whenever I had wheat bread I would get short of breath and had more trouble talking. My husband said I sounded anxious because I was so breathy talking. I was having to stop mid sentence to inhale so I could keep talking. I have been gluten free now for almost 2 months and it doesn't happen now (unless I get gluten by accident). I also have trouble swallowing hard boiled eggs like the post above. I haven't confirmed an egg allergy but will be looking into it. Hope this helps!

Sarah

wzcbj Newbie
wzcbj
Posted
  • Author

Im crying knowing Im not alone!! I HATE the ole pat on the back, sorry, plese pay your co-pay come back in 3 month response from the doc's. I swear mine thinks Im crazy...YES, CARLA its like hyperventilating one neorologist even called it hyperventilating syndrome, I was like, thanks jerk, now how do we get it to stop.....Im waiting for my doctor to call and I will explain this to her, thank yoiu god for sending me all these angels

CarlaB Enthusiast
CarlaB
Posted

I found it helpful to be sure to breathe out all the way. I believe it's not a problem with breathing in, it's a problem that your lungs can't breathe in because you haven't breathed out. I believe that's somehow connected to the concept of breathing into a paper bag, which helps but makes you look like a freak out in public :blink: . That may help until it goes away.

I also found breathing in for a count of four, holding my breath for a count of four, then breathing out for a count of four, would help. Somehow concentrating on breathing out or holding my breath would make me stop gasping for air.

rinne Apprentice
rinne
Posted

I've also had the experience of sighing, although until you mentioned it I never even thought of it in connection to gluten. It wasn't as intense as you describe but I also had shortness of breath and the feeling I wasn't getting all the air in or out.

What an amazing site.

Has there been a thread of just symptoms? I was thinking about it the other day in regards to problems wearing earrings and what a strange symptom that is and how I would never have connected that to Celiac either.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    Lostcha
    Newest Member
    Lostcha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.