Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wdw & Universal gluten-free Trip Report

FreeTime

Recommended Posts

FreeTime Apprentice
FreeTime
Posted

We just returned from our first vacation since our daughter has had to start eating gluten free. We visited Universal Orlando and Walt Disney World. I had contacted both resorts in advance and Universal did nothing to help us! Disney was fabulous! Below is a list of where we ate and what they had.

Universal Themepark-I asked if they had gluten free pizza. I was told "we only have personal size!" :blink:

Confisco Grill Character Breakfast at Universal-They had the dietary restriction listed and had nothing for her to eat but bacon and eggs. And they wanted her to go to the buffet to get it. It took quite awhile for the chef to come out and listen to our needs. She made bacon and eggs and brought a cup of yogurt. Huge disappointment as we let each of our daughters pick a character breakfast and this was the breakfast that child that is gluten-free picked.

Hard Rock Cafe at CityWalk-The chef made a hot dog and fries.

WDW

Peppermill at Coronado-We dropped in and they did not have gluten free breads on hand but made her a cheeseburger and baked french fries. They also offered to get some gluten free items if we planned on being there all week.

O'hana's at the Polynesian. Mickey gluten-free waffles! They tasted great!!! Bacon, eggs, potatoes. This meal was family style and they brought hers out separate with no issues. Made more waffles when requested.

Liberty Inn at Epcot-Gluten free hot dog and bun, fried french fries, fruit, and gluten free cookies (3 kinds we got the chocolate chip). I had ordered gluten-free brownies from their menu but they said they no longer carry them. They also offered cake.

Cosmic Rays-I thought they carried gluten free items, but they did not. However, they called Pinocchio's Village House and got us a pizza. It took 3 times before they baked it without burning it though.

Rainforest Cafe-Made fresh chicken breast tenders that were breaded and french fries. They also have hamburger and hot dog buns.

Hollywood & Vine-Buffet meal. I spoke to the chef in advance and he said when we arrived he would prepare whatever she liked. (One of the members of our party was ill, so we didn't go).

I am writing a letter to Universal about how they should work at educating their staff. Also, there were many thanks to WDW chefs! If you have any questions, let me know.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted

Where did you stay in Disney? We are going in October and are just going to be in Disney for 2 nights, at the Pop Century. Plan on doing the character dinner at Chef Mickey's one night. I am the only celiac so don't need to worry about the kiddo (luckily - it's hard enough feeding an almost 2 year old!). Thanks so much for sharing!

FreeTime Apprentice
FreeTime
Posted
  • Author
Where did you stay in Disney? We are going in October and are just going to be in Disney for 2 nights, at the Pop Century. Plan on doing the character dinner at Chef Mickey's one night. I am the only celiac so don't need to worry about the kiddo (luckily - it's hard enough feeding an almost 2 year old!). Thanks so much for sharing!

We stayed 1 night at Coronado Springs and 5 nights at OKW (they have kitchens, so we could cook if necessary).

We have stayed at the All Star Movies before, which is similiar to Pop Century. I think that you will enjoy it. Have a great time!

I also forgot to mention the Boardwalk Bakery. They are located at The Boardwalk. They said that they can make many gluten free items. It is necessary to check during the day with a chef to place an order. Also, at the Boardwalk, Spoodles, has gluten free pasta and bread. we didn't eat here but I stopped in so we would know for next time.

Be sure to contact the foodcourt at Pop prior to going if you are planning on eating there a lot.

dionnek Enthusiast
dionnek
Posted

I will definitley contact the Pop and all restaurants we plan to eat at ahead of time. I did mention to the guy on the phone when I made the hotel reservations about my celiac, and he knew all about it and said he'd put a note on my reservations, but I will contact them again before we go. Since it is only 2 nights, we went with the "cheaper" hotel, but I think next time we will try out the Corronado or someplace similar. I've always loved Disney - now even more so!!!!!

FreeTime Apprentice
FreeTime
Posted
  • Author
I will definitley contact the Pop and all restaurants we plan to eat at ahead of time. I did mention to the guy on the phone when I made the hotel reservations about my celiac, and he knew all about it and said he'd put a note on my reservations, but I will contact them again before we go. Since it is only 2 nights, we went with the "cheaper" hotel, but I think next time we will try out the Corronado or someplace similar. I've always loved Disney - now even more so!!!!!

Enjoy your trip! We are long time Disney visitors so if you have any general questions about Disney, I am happy to answer as well.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 1...
    2. knitty kitty
      - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      @Trish G, I like dates, they have lots if fiber as well. But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small...
    3. knitty kitty
      - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines. Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748
    rolland mcclay
    Newest Member
    rolland mcclay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.