Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Bad Joint Pain...

Elizabeth-Elindel

Recommended Posts

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted

Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

have you been evaluated for tendonitis, carpal tunnel, and rheumatoid arthritis?

Ursa Major Collaborator
Ursa Major
Posted

Elizabeth, I used to get debilitating pain in my hands and wrists, often so bad, that I couldn't touch things, was unable to hold a cup with one hand, and felt like screaming. I never get that pain any more now, unless I eat things I shouldn't.

Check out this thread, it might be helpful: Open Original Shared Link

sore joints Apprentice
sore joints
Posted
Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

Hi Elizabeth,

I'm still new to this. What is CF. I also suffer from bone and joint pain. This started following my pregnancies. It is usually in my hands, but also in my elbows and shoulders and occasionally jumps to other parts of my body. I feel like I'm going crazy b/c one minute it could be fine and the next quite painful. Are you thinking it is gluten related or milk related. It is so nice to find someone else who has the same syptoms.

Alison

ravenwoodglass Mentor
ravenwoodglass
Posted

For myself this pain and the resulting arthritic joint damage came from gluten. I was diagnosed with fibro and chronic fatigue at one point also. It took a few months for the joint and muscle pain to resolve and of course the joint damage itself is permanent but my rather ugly hands are now fully functioning and pain free. The only time I have joint or muscle pain now is when I injest gluten. I wish I could tell you something that would help, I was on many of the arthritis meds, including celebrex and bextra for years before my celiac diagnosis and none of them really did much for the pain or inflammation.

BRUMI1968 Collaborator
BRUMI1968
Posted

I was getting bad pains in my wrist, forearms, hands, etc., especially as they got cold or as I used the mouse on the computer. I finally realized that four momths earlier, I'd had my arm practically pulled out of the socket by a drunken friend of mine who insisted I swing dance with her. (Why do drunk people weigh ten times more than sober people.) I finally figured out I had pinched a nerve...but for me it was only on one side. You might consider something like that if there is something lurking in the recent past that might've started it for you. Any drunken friend swing dancing?

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted
  • Author

No, I haven't been swing dancing with drunk friends. :P Not that I'm aware of at least... ;)

I know that arthritis runs in my family. Perhaps that could be the issue.

Any other ideas tho....?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TCA Contributor
TCA
Posted

I've had bad joint pains all my life, including in my hands and wrists. I was told they were growing pains by my dr. as a child after the RA test was negative. I still had growing pains at 29. I went gluten-free for my celiac daughter whom I was nursing and after a couple months I noticed the pains had stopped. If I eat gluten accidently they come back with a vengence. I used to take typlenol all the time, do heating pads, etc. It was getting to where I was dropping things all the time. All this has improved gluten-free.

are you gluten-free? if so, how long? It took a long time for my pains to go, so be patient if you are new to the diet. If you're not new, you might want to go to a specialist.

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted
  • Author

I've been gluten-free for six months. How long did it take for your pain to go away?

TCA Contributor
TCA
Posted
I've been gluten-free for six months. How long did it take for your pain to go away?

I know it sounds crazy, but I'm not exactly sure. I never thought I had issues with gluten because I didn't have the typical symptoms. I just realized one day that I didn't need the tylenol anymore. It was probably 3-4 mos. I hope you feel better soon!

tarnalberry Community Regular
tarnalberry
Posted

If you haven't had this checked on by a doctor, please do. Some conditions - including the ones I listed - get worse without proper treatment. It *could* be exacerbated by gluten, but it might also be something else. Gluten isn't the cause of *everything* that goes wrong with us, though I know sometimes we fall into the trap of thinking that's the case. B)

plantime Contributor
plantime
Posted

Tiffany is right: you need to have your joints looked at and evaluated by a doctor. I had problems with my left hand that turned out to be a pinched off nerve in my elbow. It took surgery to correct it. For the pain and stiffness in my joints, I use warm water, heat packs, and lots of stretching. Keeping moving helps more than anything else.

lonewolf Collaborator
lonewolf
Posted

Getting checked out by a rheumatologist would be a good idea to rule some things out. You might also consider that you have other food intolerances. I had horrible arthritis in my hands and most other body parts and it got better after I eliminated wheat/gluten, dairy, eggs, soy, peanuts, all meat except fish and sugar. Just going gluten-free woldn't have done it for me. A little over 10 years out, I still avoid gluten, dairy, eggs and soy and my joints feel fine.

Nancym Enthusiast
Nancym
Posted

There are all kinds of autoimmune arthritises that flare up. Getting evaluated by a good rhumatoligist is a good idea. I found out I have Akylosing Spondylitis and I'm on a med to treat that. It has helped a lot.

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted
  • Author

thanks so much for all your help! :)

I shall go see a doctor soon about this stuff.

:)

Elizabeth

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,976
    • Most Online (within 30 mins)
      7,748
    Mel R
    Newest Member
    Mel R
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.