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Really Bad Joint Pain...

Elizabeth-Elindel

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Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted

Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

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tarnalberry Community Regular
tarnalberry
Posted

have you been evaluated for tendonitis, carpal tunnel, and rheumatoid arthritis?

Ursa Major Collaborator
Ursa Major
Posted

Elizabeth, I used to get debilitating pain in my hands and wrists, often so bad, that I couldn't touch things, was unable to hold a cup with one hand, and felt like screaming. I never get that pain any more now, unless I eat things I shouldn't.

Check out this thread, it might be helpful: Open Original Shared Link

sore joints Apprentice
sore joints
Posted
Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

Hi Elizabeth,

I'm still new to this. What is CF. I also suffer from bone and joint pain. This started following my pregnancies. It is usually in my hands, but also in my elbows and shoulders and occasionally jumps to other parts of my body. I feel like I'm going crazy b/c one minute it could be fine and the next quite painful. Are you thinking it is gluten related or milk related. It is so nice to find someone else who has the same syptoms.

Alison

ravenwoodglass Mentor
ravenwoodglass
Posted

For myself this pain and the resulting arthritic joint damage came from gluten. I was diagnosed with fibro and chronic fatigue at one point also. It took a few months for the joint and muscle pain to resolve and of course the joint damage itself is permanent but my rather ugly hands are now fully functioning and pain free. The only time I have joint or muscle pain now is when I injest gluten. I wish I could tell you something that would help, I was on many of the arthritis meds, including celebrex and bextra for years before my celiac diagnosis and none of them really did much for the pain or inflammation.

BRUMI1968 Collaborator
BRUMI1968
Posted

I was getting bad pains in my wrist, forearms, hands, etc., especially as they got cold or as I used the mouse on the computer. I finally realized that four momths earlier, I'd had my arm practically pulled out of the socket by a drunken friend of mine who insisted I swing dance with her. (Why do drunk people weigh ten times more than sober people.) I finally figured out I had pinched a nerve...but for me it was only on one side. You might consider something like that if there is something lurking in the recent past that might've started it for you. Any drunken friend swing dancing?

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted
  • Author

No, I haven't been swing dancing with drunk friends. :P Not that I'm aware of at least... ;)

I know that arthritis runs in my family. Perhaps that could be the issue.

Any other ideas tho....?

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TCA Contributor
TCA
Posted

I've had bad joint pains all my life, including in my hands and wrists. I was told they were growing pains by my dr. as a child after the RA test was negative. I still had growing pains at 29. I went gluten-free for my celiac daughter whom I was nursing and after a couple months I noticed the pains had stopped. If I eat gluten accidently they come back with a vengence. I used to take typlenol all the time, do heating pads, etc. It was getting to where I was dropping things all the time. All this has improved gluten-free.

are you gluten-free? if so, how long? It took a long time for my pains to go, so be patient if you are new to the diet. If you're not new, you might want to go to a specialist.

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted
  • Author

I've been gluten-free for six months. How long did it take for your pain to go away?

TCA Contributor
TCA
Posted
I've been gluten-free for six months. How long did it take for your pain to go away?

I know it sounds crazy, but I'm not exactly sure. I never thought I had issues with gluten because I didn't have the typical symptoms. I just realized one day that I didn't need the tylenol anymore. It was probably 3-4 mos. I hope you feel better soon!

tarnalberry Community Regular
tarnalberry
Posted

If you haven't had this checked on by a doctor, please do. Some conditions - including the ones I listed - get worse without proper treatment. It *could* be exacerbated by gluten, but it might also be something else. Gluten isn't the cause of *everything* that goes wrong with us, though I know sometimes we fall into the trap of thinking that's the case. B)

plantime Contributor
plantime
Posted

Tiffany is right: you need to have your joints looked at and evaluated by a doctor. I had problems with my left hand that turned out to be a pinched off nerve in my elbow. It took surgery to correct it. For the pain and stiffness in my joints, I use warm water, heat packs, and lots of stretching. Keeping moving helps more than anything else.

lonewolf Collaborator
lonewolf
Posted

Getting checked out by a rheumatologist would be a good idea to rule some things out. You might also consider that you have other food intolerances. I had horrible arthritis in my hands and most other body parts and it got better after I eliminated wheat/gluten, dairy, eggs, soy, peanuts, all meat except fish and sugar. Just going gluten-free woldn't have done it for me. A little over 10 years out, I still avoid gluten, dairy, eggs and soy and my joints feel fine.

Nancym Enthusiast
Nancym
Posted

There are all kinds of autoimmune arthritises that flare up. Getting evaluated by a good rhumatoligist is a good idea. I found out I have Akylosing Spondylitis and I'm on a med to treat that. It has helped a lot.

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted
  • Author

thanks so much for all your help! :)

I shall go see a doctor soon about this stuff.

:)

Elizabeth

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      how much gluten do I need to eat before blood tests?

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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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