Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intol Exaggerated After "quitting" Gluten?


jayhawkmom

Recommended Posts

jayhawkmom Enthusiast

I've always thought I was lactose intolerant. Sometimes I'd be fine, other times... I wouldn't.

(But like a dummy, I'd still consume dairy)

I've been gluten-free for a week now (ok, 5 days), and every time I consume anything with dairy, ohhhh the gas, the bloating, and the PAIN!

I'm wondering... could the lactose issue be exaggerated by the fact that I am removing the gluten from my system? I actually thought (wrongly) that this would get better, not worse.

Anyone have any experiences with this??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

This is very common. Gluten intolerance and lactose intolerance often go hand in hand. Many find after healing on a gluten free diet that they can again consume lactose.

Nancym Enthusiast

I'm not sure why the thought is that lactose intolerance goes away. You actually need an enzyme to break down lactose which generally speaking, lots of adults don't make after they're weaned.

dionnek Enthusiast

I have had the exact same problem - dairy never bothered me before going gluten-free, and the first month gluten-free I was in denial about it, but I am slowly realizing that I need to give up (or at least cut back significantly) on dairy. I've only been gluten-free for 2 months, so I am hoping that after my villi heal I can reintroduce ice cream again :)

Guest southgoingzax

Oh, keep hoping folks! For all of you, I hope you can go back to eating dairy. I have been gluten-free for three years, and dairy-free for 6 months. I found out that I am severly allergic to dairy. Without it I feel so much better, but I miss pizza and ice cream pretty bad sometimes.

nikki-uk Enthusiast
I've always thought I was lactose intolerant. Sometimes I'd be fine, other times... I wouldn't.

(But like a dummy, I'd still consume dairy)

I've been gluten-free for a week now (ok, 5 days), and every time I consume anything with dairy, ohhhh the gas, the bloating, and the PAIN!

I'm wondering... could the lactose issue be exaggerated by the fact that I am removing the gluten from my system? I actually thought (wrongly) that this would get better, not worse.

Anyone have any experiences with this??

It is odd isn't it?

I think the theory behind this is you were lactose intolerant before you went G.F but as you were eating gluten as well you poor body was reacting to so much stuff it was hard to single out what was what?

Lactase enzymes(which help you digest the sugar in milk) are released from the tips of your villi.

If you have celiac disease some if not all of your villi are blunted,so you cannot produce enough enzymes.

It took my husband around 6 months of being G.F before he noticed that milk was bothering him.

He suffered rotten crushing headaches and griping stomach pains.

So he avoided milk products for around 3 months and then starting trying stuff.

He now has found he can tolerate an amount of milk,but there is a limit! and the old symptoms return if he goes over that limit.

Best to cut it out for a while,then slowly try to re-introduce.

Good Luck! :)

Daxin Explorer

Some people seem to tolerate lactose a bit less after going gluten free, but in most instances, they are able to tolerate it again over time, after heling begins to take place.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samking72 Rookie

Hello! I am lactose intolerant as well. My sister recommended "Digestive Advantage" pills. They are not prescription and are common in many food stores. They run about $9 for 32 pills and you take one a day. Some people (like me) need to take 2 a day, but it's worth it if I can have half and half in my coffee again! I still get a little bit of gas and some, minimal bloating and slightly quesy, but I don't spend the morning in the bathroom anymore! You should give it a try.

tiredofdoctors Enthusiast

I don't have the normal "Celiac gut", but my neurologist recommended that I switch to goat's milk . . . much less casein than in cow's milk. I have to admit, I feel much better drinking goat's milk and eating goat's milk products only . . . . (Kind of grosed me out at first -- first had it at my BIL's farm -- had milked the goat myself . . . . EEEEEWWWWWW. Also, my neuro said that pasteurization is "highly over-rated" (?) if you are using the milk from a family farm like we were. Just so no one jumps down my throat for drinking non-pasteurized milk.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,369
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.