Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid To Go To Sleep

samking72

Recommended Posts

samking72 Rookie
samking72
Posted

Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sarah8793 Enthusiast
Sarah8793
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

This has happened to me. And I was afraid to go back to sleep also. I was afraid I would stop breathing and never wake up. The only thing I have found connected to this is eating something with MSG in it or gluten. Since eliminating these it hasn't happened for awhile.

Sarah

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You should definitely go see your doctor.

Nancym Enthusiast
Nancym
Posted

It sounds like sleep apnea, which can be deadly. Go see your doctor and insist on getting evaluated.

taz sharratt Enthusiast
taz sharratt
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

thats really frightening, you cant go without sleep you should go see your doctor.

plantime Contributor
plantime
Posted

I have that happen to me now and then. A sleep study determined that I have mild sleep apnea. As long as I do not sleep on my back, I am fine.

GFBetsy Rookie
GFBetsy
Posted

This happened to my DH while taking anti-depressants . .. could that be a contributing factor?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

i went through this forever until i went gluten-free. they did test after test and found nothing. i was horrified. i went to sleep clinics, but because they 'wake' you when you're there, it didn't happen because it happened when i awoke on my on.

they disappeared after i went gluten-free. i understand your fear. honestly, it was the scariest thing in the world.

are you newly gluten-free?

Lister Rising Star
Lister
Posted

i had the same thing for a while, but it would happen right before i fell asleep preventing me from going to sleep, over and over until i would just fall alseep.

i do belive mine where axiety related you should look into it, it seems to be worse on glutened days

Carriefaith Enthusiast
Carriefaith
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

You should go to your doctor for sure. Maybe you have an allergy? Those symptoms are similar to my food allergy symptoms. I get heart palpitations, heart pain, fast heart rate, trouble breathing, a feeling like my throat will close over, and hives or a rash.
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

-

Guest SusieQ
Guest SusieQ
Posted

As we age, and/or when we gain weight, the tissues in the throat can collapse somehow and stop our breathing. That is called sleep apnea.

I was exhausted for years. Thought it was part of my dx. of fibromyalgia. I think that dx. actually was gluten intolerance and sleep apnea now.

A person can wake up hundreds of times a night apparently, just awake enough to take a breath and go back to sleep. However, it interferes with sleep enough so that one doesn't get in to deep sleep and so you never wake up feeling rested.

Get the doc. to order a sleep study for you. If it comes up positive, then you would need a machine for breathing. Air rushes in and it keeps the throat from closing up. I'm very comfortable with mine. Didn't take me long to start feeling better with the machine.

It is really important to get it diagnosed and treated because it can affect ones health in so many ways. It can contribute to heart disease and contribute to high blood pressure to start with. Along with causing automobile accidents from falling asleep at the wheel.

Also, it is, in and of itself dangerous. It can happen that a person just doesn't wake up enough to get that breath, but I don't think it is common, but it does happen.

I'm losing weight since going gluten free and hope to get to where I don't need the machine anymore. Of course, I just plain feel so much better with being able to get some sleep during the night. Not entirely rested now, but lots better.

I hope this helps.

samking72 Rookie
samking72
Posted
  • Author

Thanks everyone! I'll be going to a sleep clinic for tests very soon. Hopefully that will determine what's wrong. I'm pretty sure it's stress, but we'll see :)

  • 1 month later...
Guest ~jules~
Guest ~jules~
Posted

When we were kids my brother did that in his sleep all the time, I'd smack him or nudge him to wake up. His wife says he's still doing it, and it scares her to death. I have no clue what it is though sorry.....

GFBetsy Rookie
GFBetsy
Posted
When we were kids my brother did that in his sleep all the time, I'd smack him or nudge him to wake up. His wife says he's still doing it, and it scares her to death. I have no clue what it is though sorry.....

jules -

Talk to your sis-in-law about apnea. Childhood apnea is rarer than adults having it, but it does happen. I've also heard that lots of people who are later diagnosed with sleeping disorders were first diagnosed with ADD or ADHD. (Inability to sleep well leads to inability to concentrate.) So if he has trouble concentrating, that might be another sign that he's having sleep problems. Anyway, if I were you I'd try to talk my brother into going to a sleep clinic. My husband is going later this month because I'm tired of smacking and nudging him to wake up. Besides, I know that once I'm asleep no one wakes him up when he stops breathing. And that scares me.

  • 1 month later...
ECBorgUSA Newbie
ECBorgUSA
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

Samking.

I have experienced the "gasping for air" scenario before bedtime after eating candy with modified food starch on an empty stomach. Bad experience. If you are gluten intolerant eating any food with a large amount of any ingredient like modified food starch with gluten in it on an empty stomach could produce the same "gasping for air" experience.

EricB

  • 1 month later...
zachsmom Enthusiast
zachsmom
Posted

Okay moy mom did this for years and it ruinins your heart.. no kidding ... This damages your heart over time. So please get it checked if its gluten related... it possibly will stop ... I would have heart palputaions when I ate too much sugar. But my mom never had this checked and she is now dying from it.. SHe has to loose weight and just can not do it .. so its worsened and now she will most likely die of this. ( horrible horrible feelings about his ) but please get it checked to rule the things out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.