Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do If They Dont Give You A Strait Answer?


lightningfoot speakin words

Recommended Posts

lightningfoot speakin words Contributor

I called post about their fruity pebbles bronto bites and the person said that they will put the dereritive if its from gluten and I said well can you just tell me because I dont really know. Then she got all snappy and had a cow and was like I CANT HELP YOU!! I AM NOT SPOSSED to because I AM A JERK!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

General Mills will clearly list wheat, barley, rye, and oats in the ingredients. They won't hide gluten under natural flavors or anything like that. Sorry you had a bad experience.

tarnalberry Community Regular

The companies that have a policy of clearly listing on labels won't generally tell you about particular items over the phone precisely because of their policy. They've shifted responsibilty to the label - they know their formula's change, so they take accountability at the labeling stage and use their labels to convey consistent information, not customer service representatives who can't know what the label you're looking at says. That means you become responsible for looking for the words "wheat" "barley" "rye" or "oats" on the label.

I kinda like that approach, myself.

kbtoyssni Contributor

I get annoyed when a company can't give me a straight answer (assuming they're not one of the companies who say that gluten will be on the label) and usually refuse to buy their food. I don't need that kind of hassle and I'd rather give my business to a company who knows what gluten is.

penguin Community Regular

Just so we're on the same page, Post makes the pebbles cereals and is a Kraft company, which means they'll clearly list wheat, barley, rye, and oats, even if they occur in trace amounts.

psawyer Proficient

This has been posted elsewhere, but here is the list I have of companies/brands that will always clearly disclose gluten sources. Many of them will tell you to read the label, and has been pointed out by others in this thread, that is a good thing!

My List:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hershey, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Smucker, Stokely's, Sunny Delight, T Marzetti, Tyson, Unilever, Wishbone, Yoplait, Zatarain's.

There may be others as well. Post is on the list.

tiredofdoctors Enthusiast

Will have to look in my pantry to give more brands . . . What I have come across, more often than not, is that the companies will take responsibility for their PRODUCT -- that they don't add anything that contains gluten. What they won't take responsibility for is checking from their suppliers if THEY have any gluten-containing ingredients in what they are purchasing from them. This is especially true in women's cosmetics, soaps (fragrance) things of that nature.

An example of that in food is, say, Company A makes soup. They list on the label "natural flavors". They purchase the natural flavors from Company B. Company B, for whatever reason, uses gluten-containing products, maybe to thicken the natural flavors into a paste that can be added to Company A's vats. Company A, that manufactures the soup doesn't put gluten into their product; however, they don't check with Company B, the supplier of the natural flavors to find out if their product contains gluten.

It seems to me that is the biggest "loophole" in the whole labelling system . . . and tends to decrease accountability.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lightningfoot speakin words Contributor

sorry, I kinda lost my temper with the whole situation. I understand but it would make it a whole lot easier if they could tell me.

  • 3 weeks later...
ms-sillyak-screwed Enthusiast

-

penguin Community Regular
I feel the same way - big companies really don't care about us.

Were we will make a differenece is writing and complaining to the FDA.

I have major issue with words like "NATURAL", "natural ingredients", "natural flavoring or natural additives".

For example - Prudue ground turkey, has natual ingredients. I called last year and they told me it's ROSEMARY. I don't have a problem with rosemary in general. But every time I eat their ground turkey, I get reactive. Yesterday I called again. The woman was nice but told me it was a trade secret. I pressed her and told her my daddyO was a friend of Frank (he really was) and that I have life threatening food allergies and I really need to know for medical reasons. She then told me its extracts from rosemary OIL. I didn't know rosemary oil EXTRACT was 'natura'l from the plant and was not processed in anyway.

Is rosemary oil extract a 'natural ingredients"?

Is SOY a natural ingredient? SOY is listed and one of the deadly 8 allergens. Why do they allow the manufacures to mislead us? We have to complain to the FDA.

I have been writing to the FDA and complain that the word NATURAL is used to loosely in the new labeling laws, these new lables need to be modified for people with special medical dietary needs. And WE must STOP them from using the word "NATURAL" in everything from body products to what we eat.

Rosemary oil is a natural product, because you just have to press rosemary leaves (in theory) to get it out. Rosemary is a plant that grows out of the ground, and is therefore natural.

As much as you like to demonize soy, it is also natural. Soy is a plant that grows out of the ground, just like wheat or grass or hemlock or an oak tree. Soy also happens to support much of the agriculture in Arkansas (and other places).

Are their labelling policies great? No. It's a good move to complain to the FDA, and also to your local senators/congressmen. :)

dkjones2 Newbie

I have found people react differnetly to ingredients, I have to avoid Rosemary and I never buy anything that says the words modified food starch unless it says corn otherwise it might be wheat. I also dont buy anything that is made "gummy" fruit snacks, swedish fish,gum drops, etc they may or may not go down a convor belt that had been sprinkled with flour some use sugars but most use flour.

lovegrov Collaborator

In this case the answer was just as straight as any company can give you. Read the lable and if it doesn't say wheat, rye or barley, it's gluten-free. It couldn't be any simpler. I wish that would be the response of EVERY company.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    3. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

    4. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    5. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,998
    • Most Online (within 30 mins)
      7,748

    SpoonedMango
    Newest Member
    SpoonedMango
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.