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Washington Dc


Beesonic

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Beesonic Newbie

Would love to find a few fellow celiacs to navigate the DC food scene with me. Maybe a monthly dinner group? Write me!


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M-3 Gal Rookie

Hey, we live in Fairfax, VA and I am trying to find some fellow dinners, if you will....let me tell you, I have not even been officially diagnosed yet, however I have learned so much so far about allergies. It is difficult because we use to eat out almost every day.....so it is a change to say the least. I would love to chat.

Lisa

  • 2 weeks later...
EricaDC Newbie

I would be interested in a monthly dinner! I live in the district in NW.

happygirl Collaborator

i am currently in vabeach, but may be moving to nova---so maybe i can join :)

  • 3 weeks later...
Tim-n-VA Contributor

I live in Burke, VA. New to all of this. I spent the weekend looking for gluten-free stuff at local stores. Wegmans seemed to have the most friendly labeling but I haven't tried any of it.

KaitiUSA Enthusiast

I live near Frederick MD

  • 2 months later...
mom2jpb Newbie
I live near Frederick MD

Did you guys get a dinner group going? I live in Laurel. I was diagnosed just a few weeks ago. The support group in Annapolis sometimes does lunch together, but I don't think I've heard about a local group getting together for dinner.


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  • 2 months later...
gbrad71 Newbie
Hey, we live in Fairfax, VA and I am trying to find some fellow dinners, if you will....let me tell you, I have not even been officially diagnosed yet, however I have learned so much so far about allergies. It is difficult because we use to eat out almost every day.....so it is a change to say the least. I would love to chat.

Lisa

I live in Falls Church, VA and was diagnosed two years ago after having three blood tests done with celiac disease. I stayed in denial for a very long time and keep eating what I wanted to eat, including pizza, hot dogs (the buns) etc. Eventually just got tired of the pain in my joints, gut, discomfort, sadness etc, so about a month ago I completley stopped eating anything with wheat rye or barley. I feel so much better now, and I am off the meds now the doctor was giving for the pain I was experencing and that is wonderful. Me and my fiance (she has IBS) are always looking for restrurants that we can go to in the area, places to buy gluten free stuff etc. so I wanted to send you a quick hello, because I would very much want to meet/talk to others in the area that have gluten intolerance as I do. With this diet we need all the group support we can get. I wish there was some kind of meeting every week/month that people in the area could attend. Hope to talk to you soon!

Greg

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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