Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dizziness


jesscarmel

Recommended Posts

jesscarmel Enthusiast

Hi

I was wondering if anyone has experienced dizzines after going gluten free. its been a couple months now of it and the room sort of shifts, not vertigo spinning but more of a shift and an imbalance feeling. my dr said it was ann inner ear inbalance but i think hes wrong. im seeing a neuro next week but was wondering if anyone else experienced this. when im walking i never have it, only when im sitting, standing and worse when im lying down i feel like my body is moving when its not, sort of like being in a hammock. its driving me nuts but more than that is scares me. :(

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

It could be inner ear, or it could be neurological. I have bad respiratory allergies, so my ears do weird things to me all the time. Especially when the barometer decides to jump up and down!

Guest adamssa

Hi Jess,

I've had a lot of dizzy problems both before and after going gluten free, and for me it's definitely worse sitting as you've said. I also saw a neurologist, (before realizing my gluten problems) and he couldn't find anything--makes me think it's all gluten related. Does it get worse after you eat? Does it make you feel really really tired? I do think it's a good thing to see a neuro in case, but it could also just be your body adjusting. I've heard some alt. practitiones tell me that what happens to the gut happens to the brain, so I think there's a correlation that most traditional doctors just refuse to recognize. I've think digestive enzymes and some other supplements I've been taking have really helped. I Good luck,

Sara

Vladimir Gluten Newbie

Yes. It goes away. I'm in my second month of a Gluten-free diet. The first week was a little unnerving, but it got better. I coupled the gluten-free diet with more exercise and made sure I got enough sleep. I can really feel a difference.

I hope things get better for you.

faegan Contributor

I definitely have the same problem and it has gotten worse since going gluten free, though it did not start until I had been on the diet for a few months.

jenvan Collaborator
Hi

I was wondering if anyone has experienced dizzines after going gluten free. its been a couple months now of it and the room sort of shifts, not vertigo spinning but more of a shift and an imbalance feeling. my dr said it was ann inner ear inbalance but i think hes wrong. im seeing a neuro next week but was wondering if anyone else experienced this. when im walking i never have it, only when im sitting, standing and worse when im lying down i feel like my body is moving when its not, sort of like being in a hammock. its driving me nuts but more than that is scares me. :(

Jess

I had more dizziness, disorientation after going gluten-free. For me, it was my dairy intolerance finally showing itself now that gluten was out of the picture. Dairy gives me major brain fog, like clockwork. I don't consume any now and never have the brain fog. For me it felt like an out-of-body experience. I also had balance/vertigo issues for a while following a middle ear infection, so that can be a cause. Any blood pressure issues? Let us know what the neuro says...

jesscarmel Enthusiast

Hi Everyone,

so i went to the neuro yesterday and obviously he said it was probably an inner ear inbalance or a migrain with no headache. how could i have a migraine every day though throughout the day???? he referred me to an ear clinic where i have to see another neuro and then from there get some ear tests where they spin you around or something. i never thought that maybe it could be a nother food intolerance causing it??? should i try and cut something out of my diet??? i would die if it was dairy- i love cheese!!

Jess

I definitely have the same problem and it has gotten worse since going gluten free, though it did not start until I had been on the diet for a few months.

hi faegan,

thats so weird that you have the same thing. wouldnt you think something like that would go away not start after being gluten free? what do you think it is? is it all the time for you? i hate it!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator
Hi Everyone,

so i went to the neuro yesterday and obviously he said it was probably an inner ear inbalance or a migrain with no headache. how could i have a migraine every day though throughout the day???? he referred me to an ear clinic where i have to see another neuro and then from there get some ear tests where they spin you around or something. i never thought that maybe it could be a nother food intolerance causing it??? should i try and cut something out of my diet??? i would die if it was dairy- i love cheese!!

Jess

hi faegan,

thats so weird that you have the same thing. wouldnt you think something like that would go away not start after being gluten free? what do you think it is? is it all the time for you? i hate it!!!!!!!!!!

Hmmm, its hard to say. Do the symptoms come and go? If they do...try keeping a food and symptom journal to see if you notice any patterns. Before I figured out dairy caused my brain fog (still amazing to me at time that milk could do that!) I thought it was a blood sugar thing. Good luck to you ! Let us know if the ear thing gets confirm or if you make headway somewhere else!

queenofhearts Explorer

Have you considered blood sugar issues? Are you getting enough to eat? If you have suddenly cut out starches from your diet, that could wreak havoc on your blood sugar levels, & for me, that's a sure trigger for dizziness.

Leah

jesscarmel Enthusiast
Have you considered blood sugar issues? Are you getting enough to eat? If you have suddenly cut out starches from your diet, that could wreak havoc on your blood sugar levels, & for me, that's a sure trigger for dizziness.

Leah

Hi

well im often hungary so i eat every couple of hours if not more, i still eat lots of starches which is not good for weight but i love brown rice pasta and eat it to much!

evie Rookie
Hi

well im often hungary so i eat every couple of hours if not more, i still eat lots of starches which is not good for weight but i love brown rice pasta and eat it to much!

In your picture you don't look like eating more often would be a problem for you. I found I needed to eat 5 or 6 times a day to keep down the diarrhea (had 'dumping syndrome' and to keep my tummy from hurting (it wanted food). i also went through a period of a few months where I was unsteady (almost dizzy) and a cane helped, especially if I wanted to walk around the yard. Those problems went away after just a few months (that was plenty long) but of course we all have our own timeline!! :( Let us know if you find out an answer or figure one yourself, we are good at learnig from each other and helping too. Take care of yourself. :) evie

Sarah8793 Enthusiast

I have had dizziness that began a few months before going gluten free. I found out it was hypoglycemia. It improved upon going gluten free but didn't go away. Then I discovered that as long as I didn't have a large breakfast or any large meal for that matter, but instead snacked on high protein snacks, it went away. I still sometimes get it in the evening while standing doing dishes after dinner or if I have something with sugar in it for breakfast. Hope this helps,

Sarah

marciab Enthusiast

Wow, this thread has really cleared up some things for me. <_< I can relate to most of it.

I have hypo G too and have to eat every couple of hours. And I feel so much better if I only eat small meals.

I am getting a weird brain fog feeling (dizzy) from the Kefir I have been drinking, but all this time

I thought it had to be the sugars in it.

I had switched to only drinking it at nite right before bed because by then I wouldn't care if I had brain fog. :blink:

Thanks for posting this. :D

jesscarmel Enthusiast

okay so i went to the dr today for my cough and the nurse said my ears were impacted with wax........does anyone know if this could be the cause of my four months of dizziness.........if it is i will be pissed because i no one has bothered to check my ears this whole time and i even told one of hte drs i tend to have a lot of wax in my ear and he said oh that wouldnt cause dizziness??!! has anyone experienced dizziness due to ear impaction?

Jess

Guest adamssa

hey there,

not sure about the wax thing, definitely could make things worse.

i am finding out the same thing about dairy and brain fog though! i didn't know i had a problem w/ it till going gluten-free. now, if even add it to my coffee i just get so tired i can hardly sit up.

sara

jknnej Collaborator

I had that terrible dizziness after going gluten free, too. I personally think it is gluten withdrawl. It lasted a couple of months for me, then it got better.

eleep Enthusiast

Ear stuff, sinus stuff, hypoglycemia or withdrawal could all cause this. I had the same thing -- I have noticed that my sinus stuff is totally gone now and it was with me for years before going gluten-free.

eleep

jknnej Collaborator

I went crazy having everything checked; ears, brain, blood sugar, thyroid....all came up fine.

I just think it was gluten withdrawl.

jesscarmel Enthusiast

hmmmmm, maybe it is gluten withdrawl i just assumed it wasnt becaue at first when i went gluten-free, the dizzines wasnt that bad but has only gotten worse. i thought it would be the opposite???

jknnej Collaborator

When I went gluten free my tummy finally felt awesome; better than it ever had. But I got all of these other odd symptoms. I was posting on this website ALL the time; if you look back far enough you'd find them! My threads all had titles like this:

Dizziness after going gluten-free?

Reflux after going gluten-free?

Visual disturbances after going gluten-free?

Thyroid or neuro problems after going gluten-free?

Anxiety and depression after going gluten-free??

LOL the list goes ON and ON.

I saw so many drs so often it was worse than before I was diagnosed!!!

Basically, I developed Reflux, depression/anxiety, and visual disturbances after going gluten-free. I still have them. My theory is that carbs, specifically wheat carbs, play a role in the amount of serotonin your brain makes and when you take that away it causes some issues. The good news is that my stomach is much better and I am healthier in that way. The bad news is that I now take an anti-depressant (which works WONDERS) completely takes away the anxiety/depression that i had NEVER suffered before going gluten-free. And Nexium helps to control my reflux. So most days I feel OK. Many of the symptoms also went away after I was gluten-free long enough (it's been 19 months now).

So hang in there and don't go crazy with drs unless you are really, really sick....I truly believe most of it will pass for you as it did for me...if not, then talk to your dr about it. But hang in there!!!

  • 4 years later...
karagog Newbie

I can relate to the dizzyness. Before going gluten-free it would happen to me quite often, and I don't know if it was coincidence but it almost always happened after eating peanut butter on bread. After eliminating peanuts from my diet it happened much much less frequently but it still happened occasionally and I didn't know how to explain it. After eliminating gluten (since 2 weeks now) I have not had a dizzy spell but I'm still cautious. Until now I had always connected my dizzy spells with eating peanuts, but now that I see lots of gluten-intolerants are also dizzy I'm starting to think it was gluten all along.

  • 8 months later...
squirmingitch Veteran

okay so i went to the dr today for my cough and the nurse said my ears were impacted with wax........does anyone know if this could be the cause of my four months of dizziness.........if it is i will be pissed because i no one has bothered to check my ears this whole time and i even told one of hte drs i tend to have a lot of wax in my ear and he said oh that wouldnt cause dizziness??!! has anyone experienced dizziness due to ear impaction?

Jess

Gee, I really hope you're still around! I would love to know what finally turned out for you. Ear wax wise & otherwise.

I have been having small dizzyish, "out there" spells for about a year but then I only found out I was celiac (self diagnosed by textbook DH outbreaks) in Sept. of this year (2011). Been trying to go gluten-free since then but the learning process reveals one is not gluten-free when they "think" they're gluten-free. So many landmines! I've been searching all the threads about dizzy for a hint. So I've been truly gluten-free since 12/1/11 & since then I've been getting major spinning dizziness often within taking 3 bites of a meal. Example meal: roast chicken, peas, skillet browned potatoes. I'll be sitting there eating & WHAM! I'm spinning & foggy headed. Mostly it happens while I'm eating but sometimes it starts when I'm cleaning up the dishes. I'm soy free, dairy free, eating only egg whites. Example breakfast: hash browns with egg white & sausage - all gluten-free with a little fruit nectar.

Fall of 2010 I had all bloodwork incl. TSH, liver, fasting etc.... all okay.

Feedback anyone??????

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.