Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Wrong With Me!


KayJay

Recommended Posts

KayJay Enthusiast

My stomach has been hurting for the last few weeks. I have been nauseated just about all day long. I have no idea what is going on. I am gluten-free and have been for 3 years now. I don't drink milk or soy. I just can't pin point what is causing all of these problems. My dh keeps telling me to go to the doctor but when I did a few months ago he didn't know what was wrong. He said it could be an ulcer and wanted to send me to a GI. I have seen so many doctors that all don't know what is wrong that I feel it is a waste of money to go. My dh thinks I am nuts but I figure you guys could understand where I am coming from.

Besides, I think it is something that I am eating. I have no idea what it could be. Unless I have become super sensitive to milk products. I do eat cheese and sour cream etc..

Any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Robert Brown Newbie

When you get the chance, please reply with a list of what your typical diet includes. It's a very real possibility that milk is hurting you. Try cutting out dairy for a week and see what happens.

Rob

jknnej Collaborator

It could be a whole host of things:

are you pregnant? I'm assuming not-that's usually the first thing you'd rule out!

How is your blood sugar? Thyroid?

You could be lactose intolerant, you could have other food allergies, and believe it or not, you could have anxiety. One major way my anxiety presents is with nausea, and a lot of it. Only when I started taking anxiety meds did I realize how sick it was making me because all of a sudden I was 100% better.

Are you taking any meds that have nausea as a side effect? There are MANY that have it as a side effect. I was taking heartburn meds once that made me really nauseated and didn't realize the meds were doing it until I stopped taking it.

If none of the above then I guess your doctor will have to tell you what tests you should have...that's all I can think of.

KayJay Enthusiast

Thanks no I am not pregnant something else is going on. I am going to cut out all dairy and see what happens. Last night for dinner I had grilled fish and a baked potato with just a tab bit of butter on it. About 10 mins. after eating my head felt dizzy and started spinning. Then I started to feel sick. This happens every time I eat no matter what I eat. Any ideas?

CarlaB Enthusiast

That's how the casein in the butter would have made me feel. I'd cut out all dairy and see how you do. Be careful about replacing it with soy ... I did that and found I didn't get better ... then I cut out the soy, too. Things are finally starting to look up! (Maybe, still feeling pretty sick, but nothing like I was).

miles2go Contributor
Thanks no I am not pregnant something else is going on. I am going to cut out all dairy and see what happens. Last night for dinner I had grilled fish and a baked potato with just a tab bit of butter on it. About 10 mins. after eating my head felt dizzy and started spinning. Then I started to feel sick. This happens every time I eat no matter what I eat. Any ideas?

This is the question that a lot of us have that never seems to get answered. When you can't eat anything, what are you supposed to eat? I've had success with eliminating some lectins in the past and appreciate Ursula's link to the website in her signature. On the other hand, there's the Paleo diet approach. Macrobiotics would have you eat brown rice and nothing else for a time. I'm willing to try another elimination diet, but at this point, I honestly wouldn't know what I could eat. I've got the wheat, corn, soy, shellfish, green beans, broccoli, beets, pears thing going and was vegetarian beforehand, so there's the other issue of whether or not you get that enzyme back after being veg for a length of time in order to properly digest meat, as well as the question of if certain food families should be avoided Marjorie Hurt Jones has a kind of radical approach, at least according to my dietician that involves a rotation diet of foods that you know don't hurt you (like we can tell that, eh? :)) and eating a lot of those foods at any particular meal over the course of a day to achieve a balanced diet while keeping a food diary, of course! I don't know if I think this is the best plan for me because of my level of atopy, but I've been doing a rotation diet for many years and think that if, geez, I could just get the right elements into the rotation, I might get some relief. So there's a rather non-answer to your question, sorry, but I think the dairy, the fish and the nightshade potato are kind of calling out to me in your dinner from last night. Hope you get to feeling better soon! If I think up a better strategy, I'll certainly post.

KayJay Enthusiast

Thank you so much! Okay so I just looked at some stuff and read that Casien intolerance is just like Gluten you can never have it. I had the Entrolab done and came back gluten and casien intolerant. I cut Casien out pretty much of my diet but it has slowly been creeping back in. I thought if I cut it out completely that I would be able to have it once my body healed. hmmm guess not. This stinks!!! :(

I just went back and looked at my Entrolab results and it said 20 units for Casien and normal is under 10. That isn't so bad is it? Although, it sounds like it doesn't really matter the levels if they are high you can't have it huh?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.