Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let's Play "diagnose Me"


Guest BERNESES

Recommended Posts

mouse Enthusiast

That would be so wonderful if you are now on the mend. I would think that when you cleaned out for the colonoscopy (and that sure cleans you out) that it did get the rest of the garbage that was still taking its sweat time to come out. So glad that today has been a wonderful one for you. BTW your Dad looks like a wonderful Irish sweetheart.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

Thanks everyone- feeling better! Let's keep it that way- just in time to escape to the great Northwest!

Judyin Philly Enthusiast

BEV, SO GLAD YOU FIGURED IT OUT.

HAVE A WONDERFUL TIME.

JUDY

ravenwoodglass Mentor
For some reason I've felt better since taking that *bogus* stuff to clean out for the colonoscopy. I'm wondering if maybe it wiped out some of the bad stuff. I had more energy today than I have in the last month. :blink::blink:

The only time I had relief from my D before going gluten-free was for 3 days after my prep for the useless coloscopy they did. The doctor thought I was a nut cause I asked him if I could use the prep once a week. It was another year and a half before they found the celiac, the GI never even looked for it until after I had done an elimination diet and the allergist sent me back to him. Talk about a red face, he still apologizes every time I see him. I hope this will finally be over for you.

lindalee Enthusiast
I'm sorry you are so miserable! Yikes!! I know I"ve posted this before, but perhaps you will find something that will "speak to you"!

Candida diet and elimination:

Open Original Shared Link

Open Original Shared Link

"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."

Five Steps to Candida Elimination:

1. You must starve it into submission by eliminating its food source.

2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]

3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]

4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]

5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]

I think there's a site online about the thyroid called " thyroid.about.com" Something like that...?

Bev, I also take some of those - and it helped especially the itch. I am also taking probiotics.

I think the National Institute of Health has about 1700 articles on probiotics -(ncbi.nlm.nih.gov).

My body temp is also low and am looking into "The Wilson's Syndrome" based on low body temp.

Sodium Laurel Sulfates caused me itching and rash- I think some got in my ears when Shampooing and am still fighting to get that out. I have eliminated all products with that and the only thing that I suspect is my hair get-"Sebastian Molding Mud" - which I love- Does anyone know of a good one?

Dry eyes- Get plenty of Omega 3's- I do flaxseed oil in my smoothie. LL

jenvan Collaborator

Praying you get better soon girl!!!

queenofhearts Explorer
Thanks everyone- the reproductive endocrinologist was useless. Seriously, it was like going to a baby factory. He actually said to me, "If all you want is a baby, we can get you a baby." Unprompted by anything I said. I'll use them to get some testing done because it's covered by my insurance but definitely didn't give me that warm fuzzy feeling. Geez!

I actually feel better today. I think I MAY have figured somethings out.

Bloating: percoset (took it last week for headache- prescribed in ER. I'm pretty sure it was this because I woke up all bloated again today after having narcotics for my colonoscopy.

This may have been what happened. First I took the Keflex which definitely weakened my system and gave me diarrhea. Then I think my system was further weakened about a week later when I got glutened by Sensodyne.Then I did the flagyl for C diff.

The flagyl stopped the D but made me very nauseous. At the end of my round of flagyl, looking back, my fridge had started malfunctioning and I think I ate some chicken that was bad so I think MAYBE the C-Diff was gone but I may have had food poisoning.

For some reason I've felt better since taking that *bogus* stuff to clean out for the colonoscopy. I'm wondering if maybe it wiped out some of the bad stuff. I had more energy today than I have in the last month. :blink::blink:

I'm so glad you are feeling better!

I had a bout of food poisoning recently too so I can relate to that part. (The culprit was chicken too-- I taste-tested some before it was fully done. STUPID, I know, but I swallowed one bite before I consciously realized it was undercooked.) I actually joked afterward that I should have scheduled a scope that day since I was so thoroughly "cleaned out"!

Hope your energy continues to bloom-- you've been through a LOT!

Leah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kalanfan Explorer

I know you are feeling better but i was just gonna put in my two cents with "pituitaty gland" alot of your symptoms seem hormonal......

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.