Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance Or Just Ibs/ Gerd?

carolinagirl

Recommended Posts

carolinagirl Rookie
carolinagirl
Posted

Hello! I am new to this site & I have been going to and from different dr.s trying to figure this whole thing out. I had my Gallbladder removed in Jan 1999. Since then, I had the usual D after a high fat meal and then my "gasiness" for lack of a better term- began. I would not be that way all the time, though. Feb 2005, I got a horendous flu like stomach virus that almost killed me, literally. I am pretty sure there was nothing left in me at all after that, I had 3 seizures due to the absolute dehydration. After that, that year, I had so much D! I though this was weird as I have always been the opposite! The gas got worse and then the stomach burn started & a pain from my belly button to between my ribs. one GI Dr. said it was celiac disease, I tested neg. on blood test. I am currently wating on results on my genetic test from last week. My new GI dr. is certain I have GERD and I am going to get Enterolab since myinsurance won't pay much on the endoscopy. I have been gluten-free since Jan. I have had some gluten in my diet by accident with no complications sometimes & then other times, full of gas! What is weird is that I haven't had the horrible lower ab pain as others have described, jsut hte bruning ulce-like pain in my stomach. I am scared to test myself by eating gluten, because I know htat there are life-threatening complications. Has anyone had an experience similar to mine? should i be scared to do a gluten challenge? Thanks for the advice! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiffjake Enthusiast
tiffjake
Posted

Hi Carolinagirl! Welcome! My IBS seemed like a life sentince. Then I developed GERD so bad I thought I was going to die (often "throwing up" food after a meal, had to go on Nexium AND Reglan). I got an Lame Advertisement test for food intolerances that showed gluten. Through research, found out about celiac disease. You symptoms sound just like mine (though I never had a surgery that brought things on......).

The blood test may have been thrown off my a number of things. And there are people here that nad neg blood work, but positive EnteroLab or dietary response. My bloodwork was "borderline", but the EnteroLab was not, and neither was my Lame Advertisement or the genetic test! Any lab can mess up something.....

Anyway, if the gluten-free diet makes you feel healthier, then many people here would tell you to stick with it. If you NEED the testing from the DR (for further proof to yourself, or your family, or other docs) then you need to eat gluten to get the bloodwork to be positive. But I will say that when I tried to do a gluten challenge, it was so hard because my body had felt so good gluten-free, that when I did get sick, it was sooooo bad!!!! I made it 3 days, and gave up! I was laying on the floor in the bathroom crying......

But! There are other people here (and I will let them speak for themselves) that are almost 3 months into a challenge so they can have the endo. So that is really up to you. But I do hope you are feeling better, and welcome to the group!!! Night night, Tiffany

carolinagirl Rookie
carolinagirl
Posted
  • Author

Thank you for sharing your experience & knowledge. It is difficult to discern which problem you might have bc the symptoms are so similar. I got on Nexium last week & my reflux is a lot better, although still difficult to swallow. I think the main issue is finding a dr. who will work with you. Still waiting on my Prometheus blood test results for the gene. Am not sure if need to order Enterolab if they are negative???

Nancym Enthusiast
Nancym
Posted

Have you been checked for H. Pylori? It is the bacteria that causes ulcers.

carolinagirl Rookie
carolinagirl
Posted
  • Author

hi- No, I haven't done that yet. Do you know what is involved in testing for that? Thanks :)

Nancym Enthusiast
Nancym
Posted

I think H. Pylori is checked with saliva or breath, although I have heard of some people using endoscopy to check for it too. So, really... I don't know what is currently being used.

penguin Community Regular
penguin
Posted
I think H. Pylori is checked with saliva or breath, although I have heard of some people using endoscopy to check for it too. So, really... I don't know what is currently being used.

h. pylori is checked through blood (they've done this test on me about 8000 times :rolleyes: ), although they can look for it in an endoscopy as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      3

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    2. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    3. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    4. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    5. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,488
    • Most Online (within 30 mins)
      7,748
    Debruary
    Newest Member
    Debruary
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.