Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor's Note For Travel With Food


jesscarmel

Recommended Posts

jesscarmel Enthusiast

Hi

Does anyone have a sample of what a doctors note should say to allow you travel with gluten-free food on the plane? i was going to ask my dr but not sure what to ask him to write and how much detail to go into. does anyone already have one.

thanks

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
Hi

Does anyone have a sample of what a doctors note should say to allow you travel with gluten-free food on the plane? i was going to ask my dr but not sure what to ask him to write and how much detail to go into. does anyone already have one.

thanks

Jess

Given they are not even letting pilots take contact lens solution (and hence willing to endanger everyone on the plane) This strikes me as a weird thing, the pilots are behind a bullet proof door and flying the plane but they would smuggle on a bomb when they could just crash the plane???? I'm afraid at the moment 'medical need' is going to mean real need, not discomfort or whatever. Its going to be a pain .... I just can't see them accepting that over the pilot's contact lens solution or eyedrops.

I can't see them accepting a Dr.s note. The longest lights are only 30-40 hours and medically the human body can go without food for 3-4 times that.

I understand your arguament, I just don't think they will. Just as an example most smokers are going to go through far more discomfort than you are and that has never bothered them... I'm sure there are plenty of people on methadone who could claim they need to jab-up on a long flight... etc. etc. I realise its not just the flight, you are going to be stuck in the airport as well ...

Give me the choice of a 30 hour long haul without food and one without children on the flight and I'd go hungry everytime... give most smokers the same option and they would go hungry too.

2kids4me Contributor

I have a diabetic celiac child - he is allowed the insulin, syringes, his glucose meter. No food. If he needs food - they always have juice on board or in real pinch - pop (for carbs).

The letter from the doctor related to his diabetes - simply states : This child _________ has insulin dependent diabetes and it is medically necessary for him to carry insulin, syringes and a monitoring device with him.

Similar letter for daughter's epi -pen

We havent travelled lately (with all the new restrictions) so dont know if they take these items and stow them somewhere during flight

Rikki Tikki Explorer

Hi Jess:

I am afraid that I agree, they just are not going to let anyone bring on food/drink items. If they checking baby formula on the airplanes then I doubt you will have much luck with food. At least we know the water they provide is safe for us! :D

sspitzer5 Apprentice

I think the ban applies to liquids and gels only. I flew a few days ago and brought a sandwich. They didn't seem to have a problem with that.

Here's a link to the TSA website. Open Original Shared Link. It doesn't say that you can't bring food, just stuff like Jello, pudding, whipped cream.

Damn, how am I going to make due without my customary can of whipped cream for cross-country flights? :-)

S

Rikki Tikki Explorer
Damn, how am I going to make due without my customary can of whipped cream for cross-country flights? :-)

S

:lol::lol::lol::lol:

2kids4me Contributor

Amusing reading - I went to the link out of curiosity - maybe I am just warped (and I knw they mean breast milk that has been expressed)...BUT :

All items including formula or breast milk will be inspected.

You or your baby or toddler will not be asked to test or taste breast milk or formula. Our Security Officers will not test or taste formula or breast milk.

:blink::lol: Good thing , hope it would not be a requirement to prove you really were lactating... and the breast milk inspections....hmmm ? ...... :rolleyes:

Ok. ok I am silly today


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

I am flying Southwest from Phoenix to Las Vegas on Thursday. I asked yesterday and I could bring food as long as it was cooked. I am bringing muffins, brownies and choc. chip cookies for Lynne and I to snack on and the muffins are to go with our coffee in the AM. There better not be a problem as we went over the items real well. I also can bring my meds and one is a liquid as long as they are in a RX bottle with my name on it.

queenofhearts Explorer
Amusing reading - I went to the link out of curiosity - maybe I am just warped (and I knw they mean breast milk that has been expressed)...BUT :

:blink::lol: Good thing , hope it would not be a requirement to prove you really were lactating... and the breast milk inspections....hmmm ? ...... :rolleyes:

Ok. ok I am silly today

Look out or you will be deported to Rachelville!

CantEvenEatRice Enthusiast

We just got back from a trip yesterday and had no problem taking food on the plane. I had some beef jerky, Lara bars, raisins and potato chips. I saw lots of people with food, just no drinks or other liquids. One woman tried to take salsa on and she was not allowed because the checker said it was liquid based. They are pretty nice about giving out lots of drinks during the flight as well since they know no one has any drinks in their carry-on bags.

gfp Enthusiast
I think the ban applies to liquids and gels only. I flew a few days ago and brought a sandwich. They didn't seem to have a problem with that.

Good to know... :D any potential terrorists can reduce the risk of premature explosions by stabilising the liquid explosive first :D

They should give out a Nobel prize for the most inventive use of stabilising a liquid high explosive.... <_<

nah.. wait someone already did this.... if only I could remember who?

Guest Norah022

I flew on Saturday and the only foods you can't bring on our gelatins and puddings and yogurts. I even talked to security about it. My gluten free food didnt even get questioned.

  • 2 weeks later...
michelleL Apprentice

I've just returned from travelling to London. I brought food with me going, and returning: I took a bag of cashew nuts with raisins, a disposable plastic container (from Whole Foods...) of a salad with chicken, a sandwich (with gluten-free bread, of course) and a peach (I think) going there; returning I brought a pre-packaged container of salad from Marks and Spencer, a bag of cashew nuts, and a little bag of mini rice crackers. I was ready to protest about having allergies and being diabetic on top of that, but they never questioned the food. They were more concerned about liquids, especially the little bottle of saline solution I brought for my contact lenses, and the little box of apple juice, all under the 4 oz. limit I thought we were allowed to bring on board...

So I am guessing that foods are allowed. Well, what do you expect, when there is very little food to be had on planes anyways.

Maybe, next time, I'll consider going by boat instead. At least the ride will be more enjoyable, and you most definitely will be fed.

tiffjake Enthusiast

I have a note that says "(my full name) has Celiac Diease and must adhere to a strick gluten-free diet. Your cooperation would be greatly appreciated. Please feel free to contact me with any questions." Signed by the doc. On letterhead. I thought I needed it for a convention center (to take my own food in) but they didn't ask to see it in the end. But I am prepared now!

  • 1 month later...
linds Apprentice

YAY!!! you can even bring liquid on planes now as long as you buy it after you have passed through security. We are making a bit of headway.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.