Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

School Gave My Child A Sack Lunch!


Jodele

Recommended Posts

Jodele Apprentice

To day was a bad day.(bad week in fact) This morning I was so tired that I did not get up in time to fix 2 lunches for my 2 older DDs , so I did it after I got back from taken them to school and took the lunches to school when I picked up my youngest from prek. The office staff said they would get it to them asap. so I went home. When I picked up Melinda and Emily from school Melinda's teacher asked if Melinda brought a lunch today and I said that I droped it off at the office I was running late today for school. I saw that melinda had her lunch bag with her so I thought she got it at lunch but she opened it and nothing had been touch and I ask her if she had lunch at all and she said they gave her a sack lunch and then the office gave her lunch bag. She ate the sack lunch not her lunch I made her. When I got home I called the school and was SO MAD!!! I said to them that I made sure everyone in the school know that my kids have this problem. This better not happen again. I am a stay at home mom and you can call me any time. Sorry for my ranting I know she will be ok but she might be sick tomorrow. Day befor yesterday she was throwing up all day and had the Ds. it was like water and she had 2 acidents with it. She had no fever. I think she got glutened the day before from playdought so no more playdough. I just got my test back from enterolab and it was positive iga 21. So I know that my younger kids have it to. We have been gluten free for 2 weeks now and I am feeling better everyday. It took my oldest dd to find out what was wrong with me. She is my angel.

Thanks for letting me rant.

Jodele


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

YIKES!!! I would be very upset! I hope that it doesn't happen again.

RiceGuy Collaborator

Glad you are doing better so quickly. That didn't happen for me at all. Anyway three weeks is hardly enough time for the gluten-free thing to sink in at the school or anyplace else. You'll need to really push them I'd guess. Plus your kids will learn never to eat what they aren't certain is safe. They will get it - especially when accidents like that lunch bring about illness, while the gluten-free diet gives them a sense of well-being that they can appreciate.

But do keep up the fight with the school, and don't trust them to deliver the lunch to your child. Demand to take it to them personally. It's not a concentration camp! That will also hit home with your child how important it is.

Tori's Dad Apprentice

Our daughters first day of kindergarten is tomorrow so we will be on pins and needles for sure. She was diagnosed in May so we have had all summer to train her to not accept any food that we didn't provide for her.

dad:"Now what do you say if someone offers you food, even if it looks yummy?"

Tori:"I can't eat that because it might make me sick"

dad:"Good girl"

Don't worry, your daughter will quickly get used to not accepting food from others. Hope she gets to feeling better soon!

2Boys4Me Enthusiast
Our daughters first day of kindergarten is tomorrow so we will be on pins and needles for sure. She was diagnosed in May so we have had all summer to train her to not accept any food that we didn't provide for her.

dad:"Now what do you say if someone offers you food, even if it looks yummy?"

Tori:"I can't eat that because it might make me sick"

dad:"Good girl"

Don't worry, your daughter will quickly get used to not accepting food from others. Hope she gets to feeling better soon!

Here's how it went with my son (entering grade two Sept. 5) all through grade one if someone offered him something.

Him: Is it gluten-free?

Them: :blink:

Him: No thanks.

Then he'd go to the teacher and get his treat bag from her desk and have one of his treats. She kept a bag in her desk with Envirokidz bars, Aero bars, Fruit to Go and Rockets.

Smunkeemom Enthusiast

From one of the ladies in my support group

Having lots of experience with schools and special needs, I would suggest typing up a letter for your school principal and director of special services requesting a 504 plan. This is a great plan for kids with special health needs, it is basically a written contract saying what issues your son has and how the school will meet those needs. If they break the contract, it's a civil rights infraction. But remember, you must request in writing, and they must respond in writing. If they say that they don't need it, ask for that in writing as well. Trust me.

she says it keeps them in line a LOT better because they know that if they screw up you have it in writing that they know what to do, it means they were negligent with your kid, and that's not something the school wants everyone and their dog to be talking about, so you might look into getting this done.

oh, and I would be very mad. I would be the mom at the school office "don't you know that your food damages my kid?! how hard is it NOT to posion my kid?"

zip2play Apprentice

If this happens again, my suggestion is you walk the lunches to your children's classes. Hand it to them yourself. Then there is no question. KWIM?

It stinks, but those kind of things can happpen!

How old are your girls? I ask b/c my 4 year old knows what foods I can and cannot have.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jodele Apprentice

I have 3 girls they are 4, 5, and 8 years old. Melinda is my middle girl and she is the one i worrie about food. She love food and wants to eat all the time. We just started gluten-free when school started. She was upset that she ate the sack lunch and I talked to her that she could not do that again. It so hard teaching your kid to leason to teachers and do what they say and now I have to tell melinda not to leason to them now. hope I dont confuse her any. Emily my oldest is very good at asking if it is gluten-free and the funny thing is my youngest is very good to. Katie she was over at a friends house last saturday and was hungry so my friend went though her stock of food to find her something she could eat and found popcorn. Katie ask if popcorn was gluten free and my friend said yes and so katie ran around the house yelling "YEA POPCORN IS GLUTEN FREE!!! WE CAN EAT IT!!!" I thought that was so good that she knows she can not have gluten and she is only 4.

It is very trying but I think everything will turn out great. I know I am feeling better now and will only get better from here. I think I gluten my self yesterday with medication. Not feel my best right now and staying close to the bathroom. so I better get off here. and talk at ya later.

Jodele

MaryKyburz Newbie

I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

gfp Enthusiast
I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

Sounds ideal perhaps from his perspective.

I spent most of my time at school at 5-10 trying to get made to stand by myself in the corridor....especially in classes hwere the teacher made me sit next to someone.

Perhaps he's hoping not to be forced to have to eat with other kids????

Nic Collaborator
I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

Hi, since he is high functioning autistic has he been assigned a classroom aid? I had an ADHD child this school year in my class and her lunch time behavior was very reckless and therefore dangerous so we asked the principal to assign her an aid at lunch time as well. I know ADHD is different than autism but is it possible to fight for him to have an aid at lunch time? I am assuming he is classified, if he is go to the child study team with your concerns. He should not be isolated from the class, the school needs to accomodate his needs.

Nicole

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.