Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gerd Sufferers


covsooze

Recommended Posts

covsooze Enthusiast

The first couple of months of being gluten-free, my GERD was much improved, but revently it's got really bed again, to the point that anything I eat makes it worse. I guess my esophegus must have got damaged and needs time to mend. What I'm wondering is, is this a result of being glutened (I was a few weeks ago) or is it from the usual recognised triggers of GERD? (citrus, tomatoes, spice, fat etc). Just wondering what other peoples' experiences are.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

My GERD went away completely. I was however, unresponsive to GERD medication, so it was purely a symptom of Celiac, and I only had it for about a year before being diagnosed. It was really bad, but I didn't have that much damage.

Elonwy

chrissy Collaborator

my girls' reflux did not improve when they went gluten-free, in fact, tianna thought she could quit her prevacid, but got symptoms and had to go back on prevacid. she had not had symptoms of reflux before gluten free, we only knew she had esophagitis from her biopsy.

jknnej Collaborator

Sorry to say my GERD did not improve after going gluten-free. Stayed the same, basically. I guess it wasn't a symptom of gluten.

trents Grand Master

I went on Protonix around the same time that I was Dx with celiac disease. Much improved but I think its due to the proton pump inhibitor med. When I miss a dose, I get indigestion. GERD is an extremely common medical condition in the general population. Not sure we can blame it on celiac disease.

Steve

Guest cassidy

I was about to have surgery a second time for gerd when I was diagnosed with celiac. I was taking aciphex twice a day and feeling miserable. I never thought my gerd would go away because of this diet, but it did. It took a few months initially to go away. Now, if I get glutened I have severe reflux for about two weeks afterwards. It is the symptom that lasts the longest.

Aloe helped calm my stomach down. Also, vinegar really helps with the heartburn. It is counter-intuitive, but some people now think that too little acid causes reflux. If there isn't enough acid to trigger the muscle to shut, then it stays loose and reflux is easier. I tried drinking a few tablespoons of vinegar when I was at my worst and my heartburn was gone in 15 minutes. I have since gotten apple cider vinegar capsules because the taste of the vinegar was too much. I take a few tablets and my heartburn goes away.

kabowman Explorer

Mine did not improve - I still take additional OTC meds (on top of my nexium) when I eat tomatoes. The GI doc recommended this because he said my esophegus was very scarred and any more, no matter how small, heartburn would only increase my chances of cancer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



covsooze Enthusiast

Kate-

you're intolerant to various foods; is GERD your reaction to any of them? Do you avoid any foods because of your GERD? I'm thinking I might have to. Does the way you cook certain foods make any difference?

jayhawkmom Enthusiast

I've always known I had reflux, but I didn't know it was GERD until my endoscopy last week. My esophogus is scarred, and I've been told that I absoultely MUST take Prevacid - and stay away from tomatoes, citrus, chocolate - and anything else that could cause the LES to relax. =(

I'm also gluten-free - officially, as of Thursday. But, since I've never really dealt with the heartburn or other obvious GERD symptoms, I have no idea whether or not it's helping.

kabowman Explorer

I limit my caffine to about 2 cups of coffee each morning and the occasional glass of iced tea in public; we do decaf iced tea at home (unsweetened), have started to limit my alcohol more, and I limit my tomatoes. I haven't noticed a difference with the way they are prepared but don't have as many problems with fresh.

I have it down to less than 1 time each month now...

I can't have any normal OJ since they all have the calcium added which is something I have determined bothers me - I take calcium tablets daily but I don't know what they put in those drinks!!!

covsooze Enthusiast
I can't have any normal OJ since they all have the calcium added which is something I have determined bothers me - I take calcium tablets daily but I don't know what they put in those drinks!!!

I've been wondering if the calcium tablets I take every day (which are prescribed by my GP) could be causing problems? :huh:

I try to have tea as little as possible - like chocolate, one cup is never enough! I think it's the tannin in tea that bothers me, as well as the caffeine, as I still get symptoms with caffeine free tea. Citrus is bad news for me. Tomatoes used to be but I'm avoiding them now anyway as they give me mouth ulcers. Choclate is my one vice :ph34r: I've tried gfdf chocolate, but it still irritates my stomach, so I guess I'm going to have to cut it out completely (I really cannot just have one piece!!).

Do those of you who take nexium take it every day of your life? Or do you just take it as long as you're feeling bad? You may be able to tell that the medical guidance I'm getting on this one is pretty non-existent....

kalanfan Explorer

First of all..no....and it sux....im still waiting for my GERD to go away

Is nexium that purple pill thats suppose to repair your esophogaus?

I'm on losec right now and it used to work ok.....now mind you i still dont get heartburn but i get alot of acid reflux now....especially at night...it REALLY interferes with getting a good night sleep.....my bed is elevated by a big peice of wood...lol.....i was taking tums until i read they werent gluten free so i started taking rolaids....then my mom heard that malox was really good so i went on that....but then i read that that wasnt gluten free....so i went back on rolaids until i read that they can cause diarreha ( although most of my D went away after going gluten free i still have it in the mourning) so then i just started taking baking soda but now my D is coming back with a vegeance...im at a loss here.....i guess i will just have to add more pillows to my bed...lol

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.