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rutland

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rutland Enthusiast
rutland
Posted

I went gluten free about a month ago. I noticed improvements in the way I feel but I swear there are days that I feel worse on the gluten-free diet. Im wondering if this is a detoxification effect. Heres what Im experiencing... I wake up in the morning from a good nights sleep and feel like a ton of bricks, it takes me forever to venture out from the sheets. As the day goes on my legs feel so weak and heavy and every movement is an effort, like Im walking in quicksand. My muscles feel like jelly at some points of the day and others they feel fine. I get tingling sensations in my extremities and last night my hand went numb. I fear it could be MS.

Does anyone else get muscle weakness and tingling sensations? It seems that these symptoms appeared when I went gluten-free. Although other symptoms are clearing up since gluten-free.

Has anyone experienced a worsening of symptoms after implementing a gluten-free diet? Is this a detoxification process?

Steph

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lorka150 Collaborator
lorka150
Posted

It could be MS, yes.

I am quite MS savvy, as I've grown up with it with three immediate family members of mine having it (I don't). However, my whole life I have had neurological symptoms (including what you've described), and had numerous MRIs, and so forth. I don't have MS (yet! ha), but my symptoms mimic a lot of them. It wouldn't hurt to get tested for it.

Guest ~jules~
Guest ~jules~
Posted

I have no clue what this is, but yes my hands tingle and itch like crazy sometimes when I am sleeping. My legs also cramp up to the point that its very painful, and the muscles lock. Sometimes I have the cramps so bad the next day my legs actually hurt. I'm thinking its all realted to this disease, alot of the symptoms I have had I just wrote off, but now I can see that they are related to what I have. Hope you start feeling better :) Julie

RiceGuy Collaborator
RiceGuy
Posted

I also have been experiencing such symptoms, but recently I discovered a definite link to nightshade foods, and eliminating those is helping tremendously. It has been a few weeks since then, and the recovery continues - generally a bit better day-by-day. Here's a link on the subject I highly recommend: Open Original Shared Link

TriticusToxicum Explorer
TriticusToxicum
Posted

I'm no expert, but I'll throw my 2 cents in anyway. Have you had any bloodwork done recently? It could be something as simple as an electrolyte imbalance. Your nervous system depends on a balance of electrolytes to function properly. If your intestines were severely damaged you may not be absorbing the vitamins and minerals that you need to maintain this balance.

I know when I was first diagnosed I would be exercising and about 1/2 hr into it my feet would feellike they were asleep and I would start to feel crampy in my calves and I'd feel sort of "heavy" all over for some time afterwards. I checked with my doc and he whe he got the results of my bloodwork he confirmed that my vitamins & minerals were low. If i remember right calcium and b vitamins are fat soluble, and with celiac the body doesn't process fat as it should leaving us deficient of some crucial vitamins and minerals.

MS is always a possibility, but I think you should check out your bloodwork before making the leap to MS.

KaitiUSA Enthusiast
KaitiUSA
Posted

I felt worse before I got better. It took me a long time to finally get back to normal. For some people it takes a while so hang in there. Make sure your products like makeup are also gluten free because even the smallest bit you ingest can cause you alot of misery. Also, maybe you should get a full celiac panel done because blood tests are used to monitor compliance with the diet and if it is still high then maybe that should tell you somehow you are still getting gluten and that may be prohibiting you from getting better quicker.

plantime Contributor
plantime
Posted

If you are taking any statin drugs, it could be side effects from it. It could also be vitamin/mineral deficiencies. Have you had your levels checked recently?

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rutland Enthusiast
rutland
Posted
  • Author
I'm no expert, but I'll throw my 2 cents in anyway. Have you had any bloodwork done recently? It could be something as simple as an electrolyte imbalance. Your nervous system depends on a balance of electrolytes to function properly. If your intestines were severely damaged you may not be absorbing the vitamins and minerals that you need to maintain this balance.

I know when I was first diagnosed I would be exercising and about 1/2 hr into it my feet would feellike they were asleep and I would start to feel crampy in my calves and I'd feel sort of "heavy" all over for some time afterwards. I checked with my doc and he whe he got the results of my bloodwork he confirmed that my vitamins & minerals were low. If i remember right calcium and b vitamins are fat soluble, and with celiac the body doesn't process fat as it should leaving us deficient of some crucial vitamins and minerals.

MS is always a possibility, but I think you should check out your bloodwork before making the leap to MS.

Im sure your right. I dont think Im absorbing enough nutrients to support nervous system function. I guess its just a matter of time that I do. I know that I get heart palpitations a clear sign of electrolyte imbalacne. Thanks for the insight. :)

Kaiti, do you know of any lipsticks that are gluten free. So far Ive heard that Avon, lancome, OPI, and bennefit, do you know of any others?

tarnalberry Community Regular
tarnalberry
Posted

The first thing that comes to mind is a nutritional problem - vitamins/minerals that you may be missing. Are you taking a good multivit, getting a well-balanced diet full of produce and b-vits? Have you been tested for nutritional deficiencies? It could be other things, but it's most useful to go after the most common first.

jerseyangel Proficient
jerseyangel
Posted

A lot of Neutrogena lip products are gluten-free. I use the Moisture Shine Lip Gloss.

KaitiUSA Enthusiast
KaitiUSA
Posted

I use alot of CoverGirl lipstick and Bare Escentuals too

hineini Enthusiast
hineini
Posted

I have many of those symptoms, too - Neurological exams have ruled out MS. I have been told I have Fibromyalgia (FMS), Allodynia and Migratory Parasthesias. I wouldn't be shocked to find out that some of the numbness and tingling were due to malabsorption problems (I've never been tested for B12 deficiency but plan on asking to be tested soon since it's common in both celiac disease and FMS) or due to Celiac Disease... But I haven't been diagnosed with celiac disease yet so I don't know.

The nervous system is whacky - That's the one thing that being sick for 6 years with all kinds of neurological dysfunction and pain has taught me. I would highly recommend seeing a GP and asking for a referral to a neurologist, to screen out MS and also investigate FMS and other neurological issues.

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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