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Second Round Of Testing All Normal


mythreesuns

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mythreesuns Contributor

The dr just called to tell me that all my bloodwork (sugar, RA, ANA, lyme titer, thyroid, sed rate, etc) was all normal.

I guess I should be glad, but I just want to cry! Why am I in so much pain if everything is "normal"?????

Because I AM still in pain (from what I thought was arthritis) I'm being referred to a rheumatologist. What could he do that my primary and gastro couldn't? I ask that sarcastically, not hoping for any real answers anymore from the medical community.

:(


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ravenwoodglass Mentor
The dr just called to tell me that all my bloodwork (sugar, RA, ANA, lyme titer, thyroid, sed rate, etc) was all normal.

I guess I should be glad, but I just want to cry! Why am I in so much pain if everything is "normal"?????

Because I AM still in pain (from what I thought was arthritis) I'm being referred to a rheumatologist. What could he do that my primary and gastro couldn't? I ask that sarcastically, not hoping for any real answers anymore from the medical community.

:(

Boy do I know how you feel and can greatly sympathize. Near the end of my loooong search for what was causing my problems I at time burst into tears at the doctors office when given good test results. More evidence to them that my problems were psychological and I was 'just depressed' here have a prozac. This is IMHO even more reason to continue with the diet full force. You may end up finding as I did that after a couple of months you are starting to feel a lot better and that the joint pain and stuff may resolve. I was very very surprised when my athritis went into remission, I never expected that. Did they check your levels of B12, folate and ferritin? An increase in those are a good indication that things are starting to heal.

Something that I found even more effective than the nasty meds (celebrex, vioxx, bextra etc.) the doctors gave me was a long hot soak in the shower or tub, (towards the end showers were all I could take we had even put in a new one with a door cause I couldn't lift my legs to get into the one in the tub anymore) I would follow this up with St. Josephs Baby (low dose) asprin, the full dose. The heat would help loosen up my joints and the asprin would act as an antiinflamatory and relieve the swelling and pain. Dont know if it will help you but thought I would mention it. I hope you feel better soon.

mythreesuns Contributor
Did they check your levels of B12, folate and ferritin?

I don't think they checked any of that stuff.

I'm picking up copies of all my labs, etc., next week when I get my referral so I'll be sure to look through them thoroughly.

CarlaB Enthusiast

I know how you feel! Everything for me is "subclinical"!!

I posted under related disorders my experience with a doc today. Maybe it will be of help to you.

hannahsue01 Enthusiast
The dr just called to tell me that all my bloodwork (sugar, RA, ANA, lyme titer, thyroid, sed rate, etc) was all normal.

I guess I should be glad, but I just want to cry! Why am I in so much pain if everything is "normal"?????

Because I AM still in pain (from what I thought was arthritis) I'm being referred to a rheumatologist. What could he do that my primary and gastro couldn't? I ask that sarcastically, not hoping for any real answers anymore from the medical community.

:(

Your not the only one. My understanding is that many of us on this site have had bad experiences with doctors and testing. I find myself not trusting them much anymore. I went to the doctor about 3 weeks ago now and she refused to test for celiac but did draw blood for blood sugar and cholesterol. Now she is suggesting thryroid testing and a MRI. I held it together till I got out of the office to our car and broke down crying. Even though I don't want celiac I want all of these symptoms to get better. My husband didn't seem to understand the gravity of it all. He doesn't seem to understand how much pain I am in on a daily basis and how hard is just to stand up and function. I myself am scared of breaking down when I go in there tomorrow for birth control and to talk about my testing. I think it will only reinforce that they think I'm psyco if I have a mental break down in her office. My guess is everything isn't normal for you and that you still need to find out what is wrong. I myself am probably going to find a new doctor.

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    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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