Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Before Going gluten-free Was Anyone Else Always Hungry?


Guest buzzinboston

Recommended Posts

anerissara Enthusiast

I didn't read all the replies, but I wanted to let you know that I had a similar pain in the upper right side, right under my lowest ribs. It almost felt like a muscle catch, or something...the golfball analogy really fits. As if there were something there. Thats the place where the small and large intestine connect, and it's an area that can really get inflamed when you're eating gluten. Also, gas (which is worse with gluten) can get trapped there...my dr. told me that area can blow up as big as a soft ball!!!!! No wonder something doesn't feel right.

When I went gluten-free after several months the discomfort gradually dissapeared. It's been nearly 2 years now and i never get that feeling any more. Sometimes I will get pain in the lower right side if I get glutened, but I don't have the upper pain anymore.

I have to echo what eveyrone is saying...go back on the gluten-free diet!!! It will probably take care of that discomfort, plus it will save your life long-term, plus you will probably lose a lot of weight. I had about 15 or so extra pounds packing around on me, that wouldn't go away no matter what I did and after going gluten-free the weight just came off like nothing. Plus my skin cleared up, i had 100% more energy, i felt better, I could think clearly again, I slept better, my anxiety dissapeared....the list goes on and on. It is SOOOOOOOO worth it! Do it and do it right, and you will be a new person, no kidding. There are so many great gluten-free products out there and every day they come out with new ones, although it's more expensive you can almost eat like anyone else with gluten-free breads, cookies (the KToos OREO knock-offs are as good as the real thing, no joke!) and even bagles and muffins. And those are just the things you can buy, if you bake you can do jsut about anything gluten-free with a little practice. Please, please do yourself a favor and make the decision to go gluten-free for life! Your quality (and quantity) of life will be so much better.

Oh, I forgot (sorry about the double post!)....I get *starving* when I have been glutened. No kidding, I just want to eat and eat and eat. It's like my body craves *everything*, and I'm eating for a "cure" for the gluten in my system. This will last several days after the glutening incident, then fade away. Without gluten in my system, my body works much better at telling me what it needs. Also, I will gain 3 pounds overnight (seriously) without eating *anything* if I've been gluetned...I retain a ton of water. It's miserable, but I didn't know the difference before going strictly gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



casnco Enthusiast

I am glad you brought up this topic. I too had a problem with being full. My stomach would hurt, and rather than obstain from eating, I would eat something and the pain would go away. Then the food would begin to "digest" and the pain would come back. Again I would eat more and the pain would subside. This has gone on for most of my life. I have developed the worst eating habits known to man. Now that I am gluten free (for 3 yrs) I do not have the stomach upset. Now I am working on changing my eating habits. Now that is a chore. I have always been about 50 lbs overweight and hoped when diagnosed with Celiac I would lose some weight. I haven't, darn it. And now I realize it is because I have bad eating habits due to the constant cycle of stomach pain and using food to comfort it. What a vicious cycle. When there was no pain in my stomach I was hungry because of all the food I was eating most of it was gluten containing carbs so there was no nutrition for my body. Therefore I was hungry for nutrition. Wish they taught more about nutrition in high school.

  • 2 months later...
e&j0304 Enthusiast

I just stumbled upon this and I see that it's a really old thread, but I just wanted to add a little of our story for you. My then 2-year-old dd was ALWAYS hungry. Hungry to the point of eating 2 sandwiches, a bowl of grapes, apples, bananas, bowls of cereal, 3 glasses of milk, animal crackers, etc. IN ONE SITTING.

She was so ravenous that we took her to dr. after dr. to see what on Earth was wrong with her. She was also not really growing and VERY short for her age. She had totally fallen off the growth chart. She then started to lose her hair (as you can see in the pic in my avatar) due to not really getting any nutrients even though she was eating so much.

She was blood tested and it was negative. She was never biopsied. We just started the diet the day of the blood test. She responded very quickly, but still eats quite a bit for her age. However, we just had her at the dr. today and she is now in the 20% for height and 40th for weight, which is HUGE for her.

I just wanted to share a little. It always helps to know that others are going through the same thing.

Shannon

Electra Enthusiast

Yup definitely have starvation here. I just don't eat dispite the pain and constant growling because hunger pains are so much more tolerable for me then Celiac symptoms :-(!! It gets worse too UG!!! I swear I can eat and 5-10 min later I'm famished!! Like I haven't eaten in days. I just want to sleep my life away at this point so I don't have to live with this any longer!!

ARK Apprentice
Yup definitely have starvation here. I just don't eat dispite the pain and constant growling because hunger pains are so much more tolerable for me then Celiac symptoms :-(!! It gets worse too UG!!! I swear I can eat and 5-10 min later I'm famished!! Like I haven't eaten in days. I just want to sleep my life away at this point so I don't have to live with this any longer!!

My 14 year old son was constantly hungry and usually ate every one to two hours throughout the day and was complaining again about being hungry in a few minutes.

Within a week of going gluten free, that all disappeared and we were really shocked. I STILL cant get over him eating small meals three times a day, with maybe only one afternoon snack. It is unreal. I had NO idea how big of a problem it was because I was so used to it!

He is so much happier in so many ways. :D

Looking for answers Contributor

I agree with others, as I was constantly hungry before going gluten free. I would eat and then go through my kitchen cabinets to try to find something to satisfy me. Sometimes I would eat two or three small meals after dinner, trying desperately to make the urge to eat go away . . . but it never would. Trust me when I say that going gluten free is a lot easier than dealing with this.

Ann1231 Enthusiast
I agree with others, as I was constantly hungry before going gluten free. I would eat and then go through my kitchen cabinets to try to find something to satisfy me. Sometimes I would eat two or three small meals after dinner, trying desperately to make the urge to eat go away . . . but it never would. Trust me when I say that going gluten free is a lot easier than dealing with this.

This sounds just like me. I could not find "full" for anything! It was nothing to eat 3 or 4 bowls of cereal, then make several slices of toast. I was eating low fat and everything was wheat products. I felt horrible too and gained so much weight, because of the celiac and also the massive amounts of food I was eating. My appetite changed dramatically when I went gluten free. I was like a different person.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amber-rose Contributor

Same here, nothing could ever actually fill me up.

lonewolf Collaborator

The whole time I was growing up and well into adulthood I was always hungry. It's a lot better now, but I still have a few extra pounds.

Mary Contrary Rookie

Boy this is so me, I am always starving to death it seems..I can eat like a logger...I eat a meal and can still eat more. It has been worse recently, I thought it was because I have had constant D for 3 months and everything is just running right through me..been gluten free for about 2 months now and the D is starting to just barely get better, but I am ravanous all the time....After work I can, or would like to eat non-stop and then still have dinner...I am a bit overweight, but not obese, but I have noticed I can eat alot lately and not gain weight, now that I am no longer eating any wheat/gluten. I am trying to control my eating because large meals just seems to make things worse at the mo, the D, I hope as I continue to heal that this goes away, the feeling I am starving alll of the time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.