Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not So Hairy Situation...


L.A.

Recommended Posts

L.A. Contributor

Does anyone have some advice for me? I have been gluten-free for 4 years. I've had my hormone levels checked and they're fine. My calcium, iron (I'm on iron supplements for anemia), thyroid have been checked and are also fine...so why is my hair failing out?

I use gluten-free shampoo and do not seem to have any other food issues.

Also, having a hard time putting on wieght--is this normal? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Check your B12 levels ... that's frequently a major reason for hair loss :(

Hope it gets better soon.

L.A. Contributor
Check your B12 levels ... that's frequently a major reason for hair loss :(

Hope it gets better soon.

Ooops, forgot to mention...B12's are good too. :rolleyes:

CarlaB Enthusiast

Are you a man or woman :)

L.A. Contributor
Are you a man or woman :)

LOL, a female :)

CarlaB Enthusiast

I think that having a hard time putting on weight is normal. I certainly have trouble with it.

As for the hair, I really don't know. I'm having a hair analysis done to see what my mineral levels are. I'm doing it through my doctor who also practices alternative medicine. I've read about a lab in a book I'm reading (Tired of Being Tired -- great book), www.gsdl.com. I have not been to the website, but this is the place the author of the book, who is an MD, recommends. I don't know if a mineral analysis woult tell you more or not.

L.A. Contributor
I think that having a hard time putting on weight is normal. I certainly have trouble with it.

As for the hair, I really don't know. I'm having a hair analysis done to see what my mineral levels are. I'm doing it through my doctor who also practices alternative medicine. I've read about a lab in a book I'm reading (Tired of Being Tired -- great book), www.gsdl.com. I have not been to the website, but this is the place the author of the book, who is an MD, recommends. I don't know if a mineral analysis woult tell you more or not.

I did some research and found that Saw Palmetto oil extract is supposedly good for the scalp and hair loss so am trying that--started yesterday. About the weight thing, why is it so hard to put in on--I'm 5'2" and weight 99 lbs. Prior to my celiac diagnosis I was 110 lbs...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daffadilly Apprentice

Even if your B12 levels are okay, you need to take a B12 everyday.

CarlaB Enthusiast
Even if your B12 levels are okay, you need to take a B12 everyday.
Why?
lorka150 Collaborator

Are you [sure that you are] eating a balanced diet of proteins/carbohydrates/good fats?

L.A. Contributor
Are you [sure that you are] eating a balanced diet of proteins/carbohydrates/good fats?

I try to eat well balance meals--I am also a diabetic, so my meals are geared to that as well.

emcmaster Collaborator

Do you have the lab results for your thyroid tests? Doctors notoriously fail to treat patients that have very high, yet still in the normal range, TSH levels. If yours are high, you are probably experiencing the same symptoms that someone actually out of the normal range might be experiencing. Hair loss is a big symptom.

lorka150 Collaborator
I try to eat well balance meals--I am also a diabetic, so my meals are geared to that as well.

Okay! :)

Just making sure, as malnourishment of any sort can be a catalyst in that. As a diabetic (you, not me) I am sure you are extremely aware of your intake! I hope you figure it out.

L.A. Contributor
Do you have the lab results for your thyroid tests? Doctors notoriously fail to treat patients that have very high, yet still in the normal range, TSH levels. If yours are high, you are probably experiencing the same symptoms that someone actually out of the normal range might be experiencing. Hair loss is a big symptom.

I just called and made an appointment to go see the Doc and go over all my results--thanks! :)

All-about-March Newbie

What about any medications you may be on? Some medications list alopecia as a side effect (usu. reversible). I know that one medication I'm on is the culprit for my hair loss!

L.A. Contributor
What about any medications you may be on? Some medications list alopecia as a side effect (usu. reversible). I know that one medication I'm on is the culprit for my hair loss!

I'm not on any new meds and this is a fairly new problem. Real frustrating--but thanks for the ideas :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,348
    • Most Online (within 30 mins)
      7,748

    claire1520
    Newest Member
    claire1520
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Ginger38, Diabetes and Celiac often go hand in hand.  Having more than one autoimmune disease is common with Celiac.  I'd err on the side of caution and go gluten free.   I did not want to go on insulin, either.  I got my diabetes under control by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  My diet now does include carbs.   We're supporting you through this difficult time.  
    • knitty kitty
      @Ginger38,  I've been there with horrible symptoms and diarrhea accidents and diabetes and the insulin conundrum!  My doctors were just as frustrating!   I had nutritional deficiencies.  I know your doctors refuse to test for this.  So did mine, saying "I can't make money prescribing vitamins."  Some members say a naturopathic doctor is more open to testing for deficiencies.  Remember not to start supplementing until after testing is done.  Otherwise the supplements will raise your blood levels falsely.   I had studied Nutrition at university, so I decided to supplement essential vitamins and minerals.  A B Complex, extra Thiamine (Benfotiamine) for the diabetes, magnesium and Vitamin D are the supplements I started with.   The B vitamins are water soluble so any excess is excreted easily.  Thiamine even in high doses is safe and nontoxic.  Diabetics lose more thiamine in urine because of weird kidney stuff.   I wanted to get my blood glucose levels under control because gluten free foods made my level spike for long periods, too.  I absolutely did not want to go on insulin.  Once you do, the pancreas stops making it.  Very scary.  Best to help the pancreas function with thiamine in the form Benfotiamine. I began the low histamine version of the Autoimmune Protocol Diet (developed by Dr. Sarah Ballantyne, A Celiac herself).  It's a low carb, very strict diet at first, then expanded.  I considered it similar to feeding a sick baby.  You don't give hard to digest foods to a baby.  You give easily digestible foods.  This allows time for the gastrointestinal tract to calm down and heal.  Symptoms started to calm down quickly.  With the vitamins, I started feeling much better.  My blood glucose levels stabilized.  I did not go on insulin.  I do not take anti-glycemic pharmaceutical drugs like Metformin.  Just diet.  You're making the right decision to live as a Celiac.  Your body is telling you clearly.  You can get through this.  You're strong and you're fighting for yourself and your baby.  Good job!  You have the Tribe behind you!
    • maryannlove
      Though trying to diligently eat gluten free, recent bloodwork was bad so searching for culprits.  Eat lot of (preferably mixed) nuts.  Most allergen labels say may be processed on equpment that also processes wheat, etc.  Finally found ONE kind (unsalted mixed) at BJ's.  Wessley (their store brand) that did not contain that warning.  Says in large letters "A GLUTEN FREE FOOD."  Well, all nuts are a gluten free FOOD!  Have been eating and now wonder if this is intentionally decieving.  So stopped eating until find culprit.  Nuts are so good for protein and fiber (especially if trying to not eat meat).  'Tis so frustrating.  Thanks to above, I'll look into Tierra Farms.   
    • somethinglikeolivia
      Fascinating! This was very helpful, thanks for sharing
    • maryannlove
      Despite being very diligent about eating gluten free, my recent bloodwork was bad.  So been on a mission to find the culprit(s).  During Covid my daughter found "certified gluten free" Yasso mint chocolate chip yogurt bars at Costco.  I was elated and have been eating them since.  When delving into possible culprits I discovered that the boxes with 12 bars at both Costco and BJ's no longer say "certified gluten free."  But the boxes with 4 bars at groceries and Target still say "certified gluten free."  Contacted the manufacturer and was told to go by what the box says.  So guess different machinery is used.  Was also told they were in the process of changing boxes.  Will be interesting to see what that brings.  
×
×
  • Create New...