Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats?

kevsmom

Recommended Posts

kevsmom Contributor
kevsmom
Posted

Does anyone know the latest information on eating oats?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

oats are fine---they do not contain gluten. the problem is that almost all oats are contaminated with gluten. some people react to oats, but then, some people react to corn and rice, too.

Mayflowers Contributor
Mayflowers
Posted

I just read an article by Scott Adams saying that all you have to do is rinse the oats in cold water if your worried about wheat dust contamination before cooking. duh. :blink: And here I am not eating oats all this time...Guess what I'm having for breakfast? :D

4getgluten Rookie
4getgluten
Posted

I'm too afraid to try oats. I just don't want to take a chance.

Mayflowers - let us know how you do adding oats back into your diet.

elonwy Enthusiast
elonwy
Posted

I have a small amount of Oats in my diet, though I only eat Mccanns. I don't trust quaker at all, everything I've ever eaten of theirs made me sick before I discovered that they themselves say there is cross-contamination in thier products. Not even oats, thier grits and rice cakes, all made me really sick.

I don't eat oats every day, oatmeal maybe once a week, and then some homemade oatmeal cheesy crackers every now and then. I get my numbers checked every six months. So after the first six months ( no oats ) numbers are down and good. After the second six months, with some oats, numbers are still down and good.

So seems to be good.

But again, Quaker is evil. I wouldn't eat thier stuff if I was starving on an island, no matter how much you rinse it.

Elonwy

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Clue me in, will you? Why is Quaker evil? (Really, I haven't heard about this yet!)

elonwy Enthusiast
elonwy
Posted

Quaker will state on one hand that some of thier products are gluten free by ingredient, but then will state that thier is gross cross-contamination in all of thier facilities and they can't garuntee gluten free for any of thier products. These kinds of mixed messages just tick me off. Especially since the first time I called them they said "oh yeah grits are gluten free" and then I get sick and call again and they say " due to the way we transport and process our grains, we can't garuntee any of our products are gluten free". So its one of those, it depends on who you talk to kind of policies, that seems to be solidifying towards the second answer finally, but is still just gross negligence if you ask me.

Thier official web statement is : Because oats are grown, stored, transported in bulk, they may contain trace amounts of wheat, rye and barley. USDA grain standards allow a certain percentage of other grains to be present in the oats. Therefore, gluten may be found in oats, even if very small amounts of these other grains are present.

Thier canadian policy is completely different.

I have recieved way too much wishy-washy BS from this company to trust them, and have gotten sick every single time I've eaten thier products.

That falls into "evil" for me.

Elonwy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mayflowers Contributor
Mayflowers
Posted

Thanks for the tip. I'll buy McCanns. I'm Irish and I love Irish Oatmeal. :D

Guest nini
Guest nini
Posted

I react even to McCanns which is unfair because I used to LOVE oatmeal... the latest that I read was that the protein Avenin in Oats is similar to Gluten and is why some Celiacs react to it as well, but there wasn't any proof that it caused further damage, however, since oats in even a small quantity make me sick, I'm staying away from them. I may try them a few years from now when I feel I'm sufficiently healed and my immune system is no longer so hyper reactive.

Mayflowers Contributor
Mayflowers
Posted

Hmmm, I've read that too. I'll try them and see if my arthritis gets worse. That's my inidication of a reaction usually. Pain in my knee gets worse.

VydorScope Proficient
VydorScope
Posted

You could always try..

Open Original Shared Link

I have not tried them myself.. but somehere have.

elonwy Enthusiast
elonwy
Posted

Thats why I keep getting my bloodwork done, to make sure I'm not reacting. ANd to make sure Gluten isn't sneaking in anywhere else.

Elonwy

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I was all set to go out and get some oats--until I read this:

https://www.celiac.com/st_prod.html?p_prodi...-10106497687.9c

elisabet Contributor
elisabet
Posted

My son is eating oats everyday,we did check his Igg and Ige.It was fine,we are going to check it again soon and I will post the results here.

mamaw Community Regular
mamaw
Posted

I have been eating the gluten-free oats daily for months now. No problem for me or the other three gluten-free in my family.The companies tell you to start out slowly and work your way up. I must admit I never thought I would miss oats but I was & I started with 1/2 cup uncooked oats a couple times a week for two weeks & now I eat them daily.

If you are one of the people who are super sensitive I probably would say don't eat them its not worth the sickness but if you are not super sensitive I would say try them...Each person's response is different to adding a new food.

main word from the gluten-free oats producers is::: GO SLOWLY......

I'm now able to make an oatmeal pie crust!!!!! I did miss that!!!!!

mamaw

Mayflowers Contributor
Mayflowers
Posted

That article on the study of 9 celiacs being reactive to oats is disappointing. They said that even one who seemed to be tolerating it was in fact not. I tried the glutenfree oats site and they are all sold out of oats until October.They aren't cheap. $10 for 2 lbs. With my luck, I'm probably the one in 250 that would react. <_<

Mayflowers Contributor
Mayflowers
Posted

Oats update: I tried McCanns Oatmeal last night. Delicious. I noticed my arthritis in my knee flared up today. I suspect that I'm sensitive to the protein in oats. :(

mamaw Community Regular
mamaw
Posted

That's to bad, sorry ..

Lillyth Explorer
Lillyth
Posted
Does anyone know the latest information on eating oats?

As a matter of fact - thanks to the Celiac Conferece yesterday, I do! :D

Oats do not, of themselves, contain gluten. But because of the ways in which they are grown, they are often contaminated with wheat.

There are two different mfrs. in the US that carry gluten-free oats. I don't know their names off the top of my head, but if you do a search for gluten-free oats on the web, I'm sure you can find them.

However - the docs from yesterday said that a small percentage of celiacs (I don't recall the exact percentage number) have a celiac-like reaction even to gluten free oats, and they don't know what causes it, or if it is related to the celiac disease.

Also, I don't know about the rinsing off of oats - at the conference yesterday, the preseters said more than once that getting the gluten wet is what activates it, so I would think that rinsing the oats would make it worse. But I don't know for sure.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.