Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Where I Introduce Myself?

Adelle

By Adelle
in Introduce Yourself / Share Stuff

Recommended Posts

Adelle Enthusiast
Adelle
Posted

Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Turtle Enthusiast
Turtle
Posted

That's AWESOME!

Welcome to the boards!!

You'll love it here!!

mouse Enthusiast
mouse
Posted

Welcome to the forum. Just remember that we do not consider any question stupid. That is great that doctor #10 listened to you and ran the blood tests. That is totally awesome.

AndreaB Contributor
AndreaB
Posted

Welcome Adelle! :D

You've come to the right place. This is a very warm and loving community.

BTW....I'm about 2 hours North of you....SW Washington, north of Vancouver about 1/2 hour.

ÆON Newbie
ÆON
Posted

Howdy hi!

I'm happy to hear that you found the problem and are feeling better. I'm kinda new here too and have found this to be the greatest place for information and support. :)

Guest ~jules~
Guest ~jules~
Posted

Hi, I am from salem also! Wow there really is someone else in this town with celiac....If you don't mind me asking, are you seeing a gi? I see Dr. Em at salem gastroenterology, he's awesome. I actually only had to see him twice before diagnosed, imagine that! My family doctor is the stubborn moron, he's over at the salem clinic, I'm looking to change that soon. I saw him about 6 times over a period of a year and a half before he even gave me a refferal, that I had to ask for. :blink: Well, welcome to the group, if I find any good gluten-free stuff here in town I'll be sure to share, or don't hesitate to ask....Julie

Adelle Enthusiast
Adelle
Posted
  • Author

No I'm not seeing a GI yet, I did about 4.5 years ago. He said I was, "just fine". So I really don't want to see another doc, yet. Yay more people in salem!! I'm me or something sometime :). Anyway, I'm so happy to find a place like this. I just got a bread maker today. Mmmm gluten-free sandwiches. Well, I have nothing else to say. Thanks for bein here ya'll!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome Adelle:

I just wanted to add that the poster "Nini" has a gluten free startes list, that has lots of great information for those begining the diet. Just remember, being gluten free, is not all about food. Gluten can be found the shampoos, soap, cat food, dog food, face creams and and basically anything that can get into your mouth.

Do a members search for her name and personal message her and it will be there for you.

Again, welcome to the world of Celiacland.

Lisa

par18 Apprentice
par18
Posted
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Hi,

I am really impressed that you were able to find out on your own. Also that you feel confident that the diet is your answer. Just keep listening to your body. Having a spouse willing to support you makes all the difference. I feel 100% that you will continue to progress. My wife supported my diet and our home is gluten free. Good luck and welcome. Your success is our success!

Tom

Adelle Enthusiast
Adelle
Posted
  • Author

I know I'm uber lucky! Yay! So far things are going well (3.5 weeks!). Someone mentioned to look in unexpected stuff, all clear, I randomly got lucky with my bath products, I already cleared/washed the cupboards. But I forgot to check my guinea pig food! I have 2 piggies, boudika and maeve. Their food contains wheat. Oh no! I can't just not feed them. Luckily ryan (my husband) volunteered to feed them (and buy the food etc) so I don't have to touch it! I also work with horses (many of whom eat oats), so I'l have to wash my hands a ton and be extra careful. Anyway I feel so welcomed! Yay!

AndreaB Contributor
AndreaB
Posted

I love horses!!!!!

I had one in high school. Now I collect breyer custom painted horses. :)

cowrdlyon Rookie
cowrdlyon
Posted

Conragtulations on finding the site. I too was only diagnosed recently. August 16th to be exact. I was on vacation at the beach and got a call from the doctors office...Happy Birthday, I know your on vacation so enjoy the sun...By the way, stop eating all wheat and products containing gluten bacause that's what has been making you sick for the last 4 months!!! Not the perfect way or day to find out but what can ya do? I've been gluten free since 3 days after that and I feel so much better. So......Welcome, Welcome, Welcome and hang in there!

lovebug Newbie
lovebug
Posted
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

thats great you are lucky. i was diagnosed in april and have been on the gluten-free diet ever since but i am very sick. i myself am so week i cant work.

debmidge Rising Star
debmidge
Posted

Adelle

Welcome! You'll be glad that you came aboard. There's a great group of people here who are very eager to share tips, hints and commiserate with you if you need it.

Don't be bashful about joining in any of the threads.

Deb

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,987
    • Most Online (within 30 mins)
      7,748
    Paula Burlando
    Newest Member
    Paula Burlando
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.