Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celebration!

schuyler

Recommended Posts

schuyler Apprentice
schuyler
Posted

The boys had a drs appt today, and we got good news.

Sean (2 years old) had gained 3 lbs, and now weighs 22 lbs and is 33 inches tall :D !!!! He now outweighs Matthew (who is 3). Matty still weigh's 19.5 lbs, but he has grown 1/5 of an inch. The doc said that's good news because it means he's getting more nutrients.

Nicolas hasn't grown or gained any weight, but he's much happier most of the time. He even made his first friend at school. I'm so proud of him (and the other boys).

The doctor was so impressed with their postitve results that he is going to write a letter to the judge stating that their father is endangering their well being by feeding the gluten during his visitations (although their dad hasn't been taking them for visitations lately because he says he's too busy to see them).

We go to court next week, so hopefully everything will go well.

Even more great news is that the boy's mom will be coming home from Iraq on October 7, which is 1 month sooner than expected. :D:D

We are celebrating everything by having gluten-free/df cake tonight for dessert! :P:P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jayhawkmom Enthusiast
jayhawkmom
Posted

Congratulations!! What wonderful wonderful news!!!!!!

Ursa Major Collaborator
Ursa Major
Posted

Wow, what great news! That certainly is reason for celebration.

Luvs to Scrap Apprentice
Luvs to Scrap
Posted

What wonderful news! I am so glad the boys are responding to the diet and that their mom is coming home next month. Keep up the great work! :D Kendra

Becky6 Enthusiast
Becky6
Posted

That is great!!!

  • 2 weeks later...
schuyler Apprentice
schuyler
Posted
  • Author

Court went great!

My parents were given custody (which is what we wanted, since I'm really busy). Since I still live at home, I see them all the time and the boys don't know that anything is different.

Their dad was ordered to fully reimburse me for all of the kids expenses, so I should get the $ soon.

The best part is that his visitations were reduced to supervised vitits one day a week for 3 hours. The 4 year old is so happy that he doesn't have to see his dad all the time. I wonder why ;)

The boys have not gained any weight recently, but some of their other symptoms have disappeared. No more bed wetting and night terrors!

My mom may be popping on here at times to ask questions. She's familliar with celiac, but she's having a hard time finding kid friendly gluten-free recipes.

On a sad note, the boys mom was injured in Iraq and has been sent to a hospital in Germany (I believe). She's unstable right now, so they will be keeping her there for at least a few weeks, after that she'll go to a hospital in the US until she's completely better. If all goes well, hopefully she'll be home in a few months.

Guest nini
Guest nini
Posted

sorry to hear about their mom, I hope she's ok soon and get's to come home soon.

good news about court...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Danielle,

That's great news about the boys growth, your parents getting custody, reduced visits from their father.

I'm sorry about their mother getting hurt. Please keep us posted, I'm sure she'll be glad to be back stateside in a couple weeks/months.

jerseyangel Proficient
jerseyangel
Posted

Danielle,

Thamks for the update! I'm so happy that the boys will remain with you and your parents :)

Sorry about their mom--she's your cousin, right? Hope her injuries aren't very serious, and that she'll be able to come home. Keep us posted!

schuyler Apprentice
schuyler
Posted
  • Author

Their mom (my cousin) is doing well. Her injuries are not nearly as severe as the doctors first thought (she just has a punctured lung, broken leg bones, and minor internal bleeding which stopped right away). They are weaning her off of the vent, and she is awake and responsive. Her parents are with her now, and they said it does not appear like she has any brain damage. They are hoping to move her stateside sometime next week :D .

Sean (2 years old) has had a HUGE breakthough recently. He started talking! Prior to going gluten-free, he had not spoken or attempted to speak at all (he just grunted or used simple signs before). Well, last week he walked into my room, pointed the light, said "light" and then smiled and ran away. He now points out every light he sees :D . He has also started to babble and yesterday he said "Hi Dani" as clear as day when I picked him up from pre-school. I am so proud of him! B)

Ursa Major Collaborator
Ursa Major
Posted

That's excellent news about the boy's mother. I am so glad she is going to be alright. And you must be thrilled with the little guy starting to talk, that's great progress!

lonewolf Collaborator
lonewolf
Posted

It's great that the boys are doing well. I will say a little prayer for your cousin, that she can come home to them soon.

You are an amazing young woman to take care of these kids, even with your parents' help, and to be so attentive to their needs. You deserve a medal!

jerseyangel Proficient
jerseyangel
Posted

Thanks for letting us know about the boys' mom! Hope she continues to improve :)

Great news about Sean :D Pretty soon, he'll be talking up a storm!

AndreaB Contributor
AndreaB
Posted

Great news Danielle, on all counts!

TCA Contributor
TCA
Posted

I'm praising God right now for ALL the good news. Please keep us posted. Is there anything we can do to help? The burden is heavy for all of you right now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.