Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

York Allergy Testing

debmidge

Recommended Posts

debmidge Rising Star
debmidge
Posted

Anyone use this for food sensitivity testing? If yes, what was your opinion of it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted
  • Author

Sorry to be a pest, but I recall some board "members" mentioned that they are going to use York Allergy Test Lab for sensitivity testing. How was your experience? We'd like to use them, but wanted to "talk" to someone who has used them.

Thanks,

Debbie

debmidge Rising Star
debmidge
Posted
  • Author

Anyone use York? What's your experience been? Do you recommend it?

booksrfun Newbie
booksrfun
Posted

Yes, I had great results w/ York. Numerous doctors could not figure out what was making my children sick. A nutritionist told me to get them tested for food allergies through York. I found out they were allergic to about 6 very common foods that they had been eating almost everyday (eggs, wheat, dairy, corn, gluten) Results: no more sickness once we give up the offending foods. I highly recommend them because regular allergy doctors do not usually test your blood for IgG reactions like York. They just do scratch tests on your skin. The people who work at York are very helpful if you have questions. Test results take about 3- 4 weeks because the sample is sent to England.

Best wishes

debmidge Rising Star
debmidge
Posted
  • Author

Thanks Booksrfun, I ordered a kit and am anxious to get it going. I didn't want to waste my money on something that isn't worthwhile. Did your doctor accept the results as valid?

  • 3 weeks later...
debmidge Rising Star
debmidge
Posted
  • Author

Well my husband sent his blood sample to York on 8/16 so we now have to wait for the test results.

  • 3 weeks later...
debmidge Rising Star
debmidge
Posted
  • Author

RE: York Lab

Well, we are going into the 3rd week since we mailed in the blood test sample. They say it takes 3 weeks and that means that we should know the results any day now.

It wasn't hard to take the sample - about 10 minutes between start to finish.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenad Newbie
jenad
Posted

how do i find out about york labs

thanks

GEF Explorer
GEF
Posted

Here is their website: Open Original Shared Link

Some insurance companies will actually allow reimbursements (see their FAQ page for the diagnostic codes, etc). My insurance company won't reimburse since the tests are not performed in a medical setting... however, not having to go to a doctor's office to get blood drawn in my opinion is a good thing! I do believe that a doctor can order these tests for you... if you really want to pursue a medical reimbursement.

They seem great... I would really like to get it done.

Gretchen

debmidge Rising Star
debmidge
Posted
  • Author

We are waiting longer than normal for the test results due to the recent hurricanes in Florida. Their USA office is in Hollywood Florida, near Miami. The actual test is done in Yorkshire England. We should have the official report any day now. Yorkshire sends the report to Florida and then to the customer (us).

debmidge Rising Star
debmidge
Posted
  • Author

Received the test results. Now my husband is sensitive/allergic/intolerant to: cows milk, yeast, egg yolk, soy, cashews, lentils, almonds, chili peppers, wheat, corn, hazelnut, brazil nut and garlic. This is in addition to gluten-free diet and in addition to not being able to digest fruits and vegetables. What's left?

According to their information, the stuff he's allergic too should be avoided completely for 3-6 mos then reintroduced one at a time to find out if the allergy still exists.

Q: I heard from some source that canned milk can be tolerated as the high temperatures that they heat it at to can it destroys the part of the milk that people are sensitive/allergic/intlolerant to. Can anyone confirm this?

  • 1 month later...
Guest Nukapai
Guest Nukapai
Posted

I would definitely recommend this service - just had my results (IgG reaction/foods to be totally eliminated: gliadin, wheat, cow's milk, egg white and sunflower seeds).

I have had a REAL struggle with my health over the last few years and it is such a relief to have a starting point.

kabowman Explorer
kabowman
Posted

OK, so you have the results - did you learn anything new or was it more of a confirmation...

I ask this because I am also considering ordering the test. I have discovered a LOT of my own intolerances but I think I may still be missing some things. My allergist and PCP will NOT because they say they only point to broad spectrum and are not specific or reliable enough yet.

My current list is: lactose, casien, gluten, peanuts, almonds, MSG, vinegar (all kinds), soy beans, garbonzo beans, and corn .

Thanks...Kate

bmorrow Rookie
bmorrow
Posted

I had the York Allergy test, after going gluten free for six months. They indicated that I also had an allergy to yeast, milk and white fish. I have been very pleased with their response to my questions. The test was easy. They emailed my results to me, as well as sending all of the additional material. I asked them about testing for Celiac, and they told me that I would have to eat one slice of bread for at least two weeks, but advised me not to do this, if I have had a problem with gluten.

I have had a negative Iga test and negative biopsy by my Gastro. doctor, but a postive results from Enterolab. Any one else use Enterolab, if so what's your opinion?

Guest Nukapai
Guest Nukapai
Posted
OK, so you have the results - did you learn anything new or was it more of a confirmation...

I ask this because I am also considering ordering the test. I have discovered a LOT of my own intolerances but I think I may still be missing some things. My allergist and PCP will NOT because they say they only point to broad spectrum and are not specific or reliable enough yet.

My current list is: lactose, casien, gluten, peanuts, almonds, MSG, vinegar (all kinds), soy beans, garbonzo beans, and corn .

Thanks...Kate

A bit of both actually. I knew I was Lactose intolerant from birth (well, it took my mom and the doctors a little while to figure out why I was such a sick baby...) - but the reaction to gliadin and wheat have been new discoveries after someone I know suggested that maybe many of my health problems could be the result of Celiac disease.

My doctor ordered a blood test to check for Celiac and it came back clear. Initially, I left it at that, but after having gone through several more blood tests and progressively getting worse and worse, I decided to try York and see if they could at least provide some enlightenment about wheter I was barking up the wrong tree.

Now as it happens, my suspicions were RIGHT - which is definitely a double-edged sword, but a huge relief. I wasn't going mad!

My next challenge is seeing if my doctor will be up for exploring further tests to rule out Celiac (I could just have an intolerance to the aforementioned substances, not Celiac). I wouldn't have had the confidence to press this issue with my doctor without the York lab results. Definitely worth the money.

GEF Explorer
GEF
Posted

Nukapai,

It was really important for me to have a definitive answer to whether or not I would develop celiac and I must say that the HLA (gene typing for DQ2 & DQ8) gave me that answer. I was negative, by the way. With all of my inconclusive celiac tests, I didn't feel comfortable just not knowing.

My doctor has been very open to exploring the benefits of ELISA testing from York, especially after a recent study on the benefits for those with IBS (see the site index)... I haven't yet done the York ELISA testing, but I'm seriously looking into it.

Gretchen

Guest barbara3675
Guest barbara3675
Posted

You asked if anyone had used Enterolab.....I have and was really happy with them. They sent me the kit, I did exactly as they asked, sent it back to them and got the results in less than two weeks. Results were that I was intolerant to gluten and casein. My doctor had done a blood test for gluten or something and it came back negative and he had his nurse call and tell me!!!! The sent the results via email. Any other questions about them, I will be happy to answer.

Barbara

  • 2 weeks later...
snipe12 Rookie
snipe12
Posted

I used to know York Labs well, very good company so I imagine not much has changed in the last couple of years.

One thing a lot of people do not know is that you need to consume a wide range of foods including the ones you have been avoiding because you believe you are intolerant to them to get the most accurate results.

Often people find that they are not intolerant to things they believed they were but in fact something they always have at the same time.

  • 2 weeks later...
cdevane Rookie
cdevane
Posted

Does anyone know if you have to be consuming possible allergens in your diet at the time you take the York tests? I want the test to be accurate, but I have already eliminated several things that I know make me sick.

kvogt Rookie
kvogt
Posted

cdevane,

They told me it is unnecessary to consume foods for which they test.

snipe12 Rookie
snipe12
Posted

You need to have consumed them within the last 6 months though otherwise it will not show in the blood test.

Guest Nukapai
Guest Nukapai
Posted

I guess the food consumption depends on whether you know that something is making you sick and are thus avoiding it anyway - in which case what's the point of re-introducing it for the test? If you are unsure about a particular food and want to know for sure, I'd re-introduce it before the test. This is just an opinion, not a medical recommendation, by the way!

My story continues - although I am now due for an endoscopy, I've gone ahead and ordered a gene test from Enterolab anyway because I just want to know for SURE and having the food intolerance come back positive is one thing, but I would like to know whether my new gluten-free/wheat-free lifestyle is for good, or whether I will be able to re-introduce these foods in small amounts in the future.

debmidge Rising Star
debmidge
Posted
  • Author

My problem with it is that my husband tested positive for foods he has not consumed in 30 years. For example: chili pepper, lentils, brazil nuts, cashew, almond, hazelnut (all nuts for that matter).

York explained that perhaps he is getting these foods inadvertently. That's not possible. He doesn't go near nuts and eats plain, bland food.

With all due respect to our forum's host, there's a non profit organization I consulted after I purchased the test, that claims that this type of testing is bogus/fraud.

I want answers but not at the expense of my purse or my ignorance of the topic. I am not really certain if I believe York or not....

Guest Nukapai
Guest Nukapai
Posted

A *lot* of this type of testing IS bogus and fraudulent, yes. It is definitely worth shopping around.

I can confirm that York is the ONLY food intolerance testing service that (I know of) to be clinically proven and validated. :)

Doesn't mean they get every single case 100% right. Could have been some totally stupid mix-up with test results or samples (although I hope not!). Or maybe your husband has been sneaking off for secret takeaways behind your back. :P

debmidge Rising Star
debmidge
Posted
  • Author

The article was about the tests being bogus, not the lab. That the tests don't prove anything....that they are not scientific....

it is Quackwatch.org

I guess I am still confused....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.