Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can My Gi Dr. Be Wrong?


EddieJP125

Recommended Posts

EddieJP125 Explorer
:unsure: hey everybody...i've been cheatin with the gluten-free diet here and there...And i feel fine...except for bloating?...can my dr. be wrong about the bloodwork, and biopsy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Eddie,

You're probably just a celiac without a lot of symptoms -- bloating, plus bloodwork, plus a biopsy would mean you surely have it, I would think. Some celiacs have no symptoms; you have very mild ones.

joemoe003 Apprentice

im like that to...i cheat and i feel fine (i havent been dxed by the doc but im pretty sure i have celiac disease) but remember you may not have symptoms but you are still hurting your self on the inside. jus be strong and try not to cheat!

Boojca Apprentice

Sorry Eddie, but the other two here are right. Some people go their entire lives with no symptoms at all. My son has no "GI symptoms"...none of the diarrhea, bloating, etc..., he just suddenly lost a lot of weight and was very lethargic. He's been gluten-free just over a month now, and he's already gained 5 lbs back!

Anyway, if your blood work said you have celiac disease, you have celiac disease. You are just among the "lucky" ones that don't feel it when you cheat. I say lucky bc I wonder about that sometimes. It would be great for those who DO get those symptoms to be able to flub, or have someone else flub, and not have to pay for it for hours/days/weeks after. But, on the other hand, those who do not have any of those "consequences" tend to think it ain't no big deal and "cheat" and cheat often...and do some serious damage to their insides.

But, as I've said to others before, it's all up to you to decide how strict you are going to be. Just remember, though, you can develop "new" symptoms at any time. So that gluten-filled food you eat could be your immediate ticket to the "montazuma's revenge 5K" to the bathroom!!!

Welcome to the boards!

Bridget

dana-g Newbie

My 11-year-old daughter was biopsied only because I was dx'd with celiac disease. She had NO symptoms, elevated bloodwork. Her gut, however, was a mess. Think I should let her eat gluten? Didn't think so! Stick with the doctor's advice--how lucky you are to have a doctor who actually dx'd you in the first place!

Dana

flagbabyds Collaborator

You're probalby just A-Symoptommatic

lovegrov Collaborator

As others said, if your bloodwork and biopsy were positive, you absolutely have celiac. Mine were all highly positive and I was so ill I was near death, yet when I make mistakes now (I've never cheated on purpose) I don't react.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kvogt Rookie

I doubt your lab made an error, but it is remotely possible. If you are concerned, repeat the blood work. If your gut doesn't play up too much, you may be working on some other autoimmunde disease in your future, like lupus, rheumatoid arthritis, asthema, or something else equally difficult. Look at your parents, grandparents and their cousins and see what your heritage tends towards. Some of the possibilities of untreated celiac disease are fatal, so I would recommend anyone who is cheating to get serious.

EddieJP125 Explorer

my grandfather never drank..but died of Liver Cancer when my mother was a teen...but they were from a Korean Ethnic back ground...i know it is rare in the Asians to have celiac disease...but i'm an American born and raised...she doesn't like to talk about it...i'll ask my dr. again for a second bloodwork, and i have been goin through meds for my hernia, hemmroids, and stomach ulcers...which probably is from havin celiac disease, right?....

but i'm done cheating now, b/c i was in sooooo much pain, to the point i was goin to call 911, so i'm done with cheating... :)

itz funny that i would have to call 911 to request medical support when i'm an EMT myself :D

flagbabyds Collaborator

Well if you were in so much pain when you were cheating then you know you have it! Why would you get re-tested?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    2. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.