Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will It Finally Sink It?


prinsessa

Recommended Posts

prinsessa Contributor

I can't believe I keep glutening myself in stupid ways. Yesterday I was eating some herring that my husband bought. As I was eating it, I kept thinking to myself "you should check the ingredients first". So after eating 4 or 5 pieces, I check the ingredients. Of course it say "Contains Wheat" in bold print. I did the same thing last week. Why can't I get it in my head that I should ALWAYS check labels before eating? How long did take for everyone else to remember to always check labels? I'm so mad at myself right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

For me it took six months of not feeling better on the gluten-free diet. I then became very diligent about reading everything. It became a habit like washing hands before eating. It will become part of your life, just give it time.

Hez

2kids4me Contributor

Took me a while too. Kids have been gluten-free since 2004 and just this spring I bought them skittles littles (after all the regular skittles are gluten-free, right?).

It was my son that noticed the wheat in the ingredients - after they ate some.

They didnt get sick and now I may know why - just noticed the thread about wheat starch....hmm still wont take the chance though and will stick to regular skittles

katrinamaria Explorer

i know exactly what you mean! i'm so mad at myself (and sick) right now because i did the same thing...i grabbed a little sleeve of trail mix with nuts, rainsin, and generic m & m's --thinking what could be wrong with that? AFTER i finished the bag i lazily read the ingredients...wheat...my heart sunk cause i knew what was coming... now i'm trying to drag my sick, miserable self around campus mad for not being more diligent....grrr this is so frustrating sometimes....

.....sorry, needed to vent............

spunky Contributor

You really have to stay on your toes with this. I usually stand in the store reading labels for quite a while, but then read the labels again at home before eating anything. I keep a list of safe ingredients and forbidden ingredients on the fridge with magnets so I can easily double check anything doubtful in the kitchen. Even as careful as I feel I am, almost everytime I go shopping, it seems I end up with at least one thing that I am afraid to eat after I double check it at home before eating it.

The last time I messed up, about two or three weeks ago, my neighbor convinced me to taste her special, really expensive beer. Since I've never been a beer drinker, it was just a total DUH moment for me when I took that swig to taste the stuff. It wasn't until a couple of hours later that I realized what I'd done. Fortunately, I got only mildly ill from that one.

My husband is getting pretty good at reading labels with me too, now. So, I guess two heads are better than one.

CarlaB Enthusiast

I'm 9 months gluten-free and wouldn't dream of eating something without checking ... I guess you just have to get sick enough times before you figure out you need to read ... hopefully this is your last time!!

aikiducky Apprentice

You can teach yourself a new habit if you take your time to do it and make it into a bit of a game. Like decide that this is "Read The Label Week" and read the label on everything you eat this week, even though you are absolutely positively sure that it's gluten free. Read the labels on everything you use in cooking even if you already bought it ages ago and have been cooking with it for weeks. Just every time you take a package of food in your hand, read the label. The idea is to get ridiculously obsessive with it to make it into a habit. Read every label thoroughly before you put it in your shopping cart. Then again when you put it in the cupboard. Then again before cooking.

I bet you have yourself a new label-reading habit before you even know it. :D:D:D

Pauliina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2Boys4Me Enthusiast

Reading labels can certainly be a pain in the ... It has happened where I've read the label and seen nothing suspicious but called the company anyway and sure enough - it's usually the last or near the end of the ingredient list. First I check the bold allergy info line. Then I read the label from top to bottom. Then I put the item in my cart. Then a bit later, before I pay, or while I'm in line at the cashier, I read it from bottom to top. You'd be surprised how many times you catch a forbidden item by reading from last ingredient up to the first.

TinkerbellSwt Collaborator

My thing is.. I read the label. I havent gotten sick yet.. but there have been many times that I dont read it for some reason until I get home. I dont know why I do this... it makes me nuts. So, I end up either returning the items, which I dont like to do, or throwing them away. gggrrrr.. I should save the middle man and just throw my money in the trash! :P

2Boys4Me Enthusiast
My thing is.. I read the label. I havent gotten sick yet.. but there have been many times that I dont read it for some reason until I get home. I dont know why I do this... it makes me nuts. So, I end up either returning the items, which I dont like to do, or throwing them away. gggrrrr.. I should save the middle man and just throw my money in the trash! :P

Throw the $$ my way. I'll PM my address. :P

All-about-March Newbie
My husband is getting pretty good at reading labels with me too, now. So, I guess two heads are better than one.

This is what helps me - do groceries with hubby or friend. Read ingredients out loud to each other. Laugh at each other for what the other cannot pronounce. Wonder about consumption of what cannot be pronounced. :huh: Then have some fun with the grocery store clerks when you catch them 'eyeing' you for being there for 4 hours. :P

prinsessa Contributor

Thanks everyone. The thing is that I have been gluten free for about 6 or 7 months now so feel that I should know better. I ususally check everything and won't eat stuff if I'm not sure it is gluten free. I don't know if it is the brain fog from getting glutened the first time because I will usually forget to check labels a couple of times after that. I don't get horribly sick, but I do feel bad enough that getting glutened is not fun. I need to tell DH that to remind me to check every label at the store. I guess I am mad at myself because I am trying hard be be gluten free, but I end up glutening myself when I should know better. I'm glad I'm not the only one who does it though ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,812
    • Most Online (within 30 mins)
      7,748

    Papa Emeritus 79
    Newest Member
    Papa Emeritus 79
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.