Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'roid Rage


CeliaCruz

Recommended Posts

CeliaCruz Rookie

I just got diagnosed with Lung Fibrosis (long sad story!.....) and I was just informed by my doctor today that after they run some tests they are putting me on prednisone. A LOT of prednisone!

Um, here's the deal. I have heard a lot of stories about people just losing their sh!t while on Prednisone. It's a steriod and therefore you experience a "roid rage" not unlike being on anabolic steroids. I DO NOT WANT to be in a 'roid rage. I'm sick enough as it is and I don't care to lose all my friends, alienate my family etc. in addition to everything else.

And I have this horrible feeling that it's going to be bad. I'm pretty irritable as it is and am very sensitive to mood altering substances. I have already called some of my friends to tell them that things are going to be bad in the next few months.

Does anyone know of any method or drug treatment that will counteract the emotional effects of Prednisone?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

My daughter is a "mean" prednisone person . . . . when she was younger, if the doctor said that they wanted to put her on prednisone for "x" amount of time, I would tell them that she was also coming to live with them for the duration . . . .

Me, I'm a "euphoric" prednisone person. When I had a fire at my house, I ended up with thermal and chemical burns in my lungs. It was hard to get in to see a pulmonologist . . . by the time I did, he said that, because the blisters were popping in my lungs, that I was literally drowning from the inside out. So he put me on a LOT of prednisone. As we watched my face get larger and larger, I would go in for my every other day check, he would ask, "How are you today?" I would say, "GREAT!! I feel FANTASTIC!! I think I'm over this . . . I really do. I can breathe, my chest doesn't hurt . . . . . " He would listen to my lungs and shake his head. Then finally one day he said, "You know, you're what's known as a "euphoric" prednisone patient. What you need to know is that when I start weaning you off this, you are going to fall HARD. You will not feel very well at all. Just be warned of that." I said, "I just don't think that's going to be a problem . . . I feel fine . . . really -- I feel GREAT!" Sheesh . . . coming down off of that stuff was a little difficult . . . so he weaned me off VERY VERY slowly. Needless to say, I was a little less "euphoric" with each drop in dosage! Personally, though -- I thought it WAS great. NOTHING hurts. Your muscles, your joints, NOTHING. If it weren't for the fact that I don't need it, as well as the long-term repercussions (I'm aware of those as well)I'd want to be on it PERMANENTLY!

I hope that you do well with the steroid therapy. I'm very sorry that you've received the diagnosis that you have. That must have been difficult to hear. I hope that you can get some relief, and stave off any potential difficulties that will appear as a regard to this. Please take care of you. Hugs, Lynne

LKelly8 Rookie

Not everyone has mood problems with prednisone. If you have a family history of mood disorder you are at greater risk. My sister an I were both on prednisone at the same time, me for RA and my sis for ulcerative colitis, we had the typical side effects - crazy appetite, rounded face, hot flashes and mood swings. My sis worked with a woman, tiny thin person, maybe 5'2. She was taking 60mg a day and - nothing! :o No side effects. She said she had mild insomnia, that was it. (They need to study people like that, bottle whatever it is that makes them immune! :blink: )

Have you tried the Open Original Shared Link?

jerseyangel Proficient

Sorry about your diagnosis, CeliaCruz :(

I took steroids for a period of years--both the pills and injected Decadron. I never had any of the negative mood side effects. Actually, I felt very well while on them--the only side effect I ever had was the face rounding. That would happen pretty quickly--like after a few days.

Best of luck with everything :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.