Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'roid Rage


CeliaCruz

Recommended Posts

CeliaCruz Rookie

I just got diagnosed with Lung Fibrosis (long sad story!.....) and I was just informed by my doctor today that after they run some tests they are putting me on prednisone. A LOT of prednisone!

Um, here's the deal. I have heard a lot of stories about people just losing their sh!t while on Prednisone. It's a steriod and therefore you experience a "roid rage" not unlike being on anabolic steroids. I DO NOT WANT to be in a 'roid rage. I'm sick enough as it is and I don't care to lose all my friends, alienate my family etc. in addition to everything else.

And I have this horrible feeling that it's going to be bad. I'm pretty irritable as it is and am very sensitive to mood altering substances. I have already called some of my friends to tell them that things are going to be bad in the next few months.

Does anyone know of any method or drug treatment that will counteract the emotional effects of Prednisone?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

My daughter is a "mean" prednisone person . . . . when she was younger, if the doctor said that they wanted to put her on prednisone for "x" amount of time, I would tell them that she was also coming to live with them for the duration . . . .

Me, I'm a "euphoric" prednisone person. When I had a fire at my house, I ended up with thermal and chemical burns in my lungs. It was hard to get in to see a pulmonologist . . . by the time I did, he said that, because the blisters were popping in my lungs, that I was literally drowning from the inside out. So he put me on a LOT of prednisone. As we watched my face get larger and larger, I would go in for my every other day check, he would ask, "How are you today?" I would say, "GREAT!! I feel FANTASTIC!! I think I'm over this . . . I really do. I can breathe, my chest doesn't hurt . . . . . " He would listen to my lungs and shake his head. Then finally one day he said, "You know, you're what's known as a "euphoric" prednisone patient. What you need to know is that when I start weaning you off this, you are going to fall HARD. You will not feel very well at all. Just be warned of that." I said, "I just don't think that's going to be a problem . . . I feel fine . . . really -- I feel GREAT!" Sheesh . . . coming down off of that stuff was a little difficult . . . so he weaned me off VERY VERY slowly. Needless to say, I was a little less "euphoric" with each drop in dosage! Personally, though -- I thought it WAS great. NOTHING hurts. Your muscles, your joints, NOTHING. If it weren't for the fact that I don't need it, as well as the long-term repercussions (I'm aware of those as well)I'd want to be on it PERMANENTLY!

I hope that you do well with the steroid therapy. I'm very sorry that you've received the diagnosis that you have. That must have been difficult to hear. I hope that you can get some relief, and stave off any potential difficulties that will appear as a regard to this. Please take care of you. Hugs, Lynne

LKelly8 Rookie

Not everyone has mood problems with prednisone. If you have a family history of mood disorder you are at greater risk. My sister an I were both on prednisone at the same time, me for RA and my sis for ulcerative colitis, we had the typical side effects - crazy appetite, rounded face, hot flashes and mood swings. My sis worked with a woman, tiny thin person, maybe 5'2. She was taking 60mg a day and - nothing! :o No side effects. She said she had mild insomnia, that was it. (They need to study people like that, bottle whatever it is that makes them immune! :blink: )

Have you tried the Open Original Shared Link?

jerseyangel Proficient

Sorry about your diagnosis, CeliaCruz :(

I took steroids for a period of years--both the pills and injected Decadron. I never had any of the negative mood side effects. Actually, I felt very well while on them--the only side effect I ever had was the face rounding. That would happen pretty quickly--like after a few days.

Best of luck with everything :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.