Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'roid Rage


CeliaCruz

Recommended Posts

CeliaCruz Rookie

I just got diagnosed with Lung Fibrosis (long sad story!.....) and I was just informed by my doctor today that after they run some tests they are putting me on prednisone. A LOT of prednisone!

Um, here's the deal. I have heard a lot of stories about people just losing their sh!t while on Prednisone. It's a steriod and therefore you experience a "roid rage" not unlike being on anabolic steroids. I DO NOT WANT to be in a 'roid rage. I'm sick enough as it is and I don't care to lose all my friends, alienate my family etc. in addition to everything else.

And I have this horrible feeling that it's going to be bad. I'm pretty irritable as it is and am very sensitive to mood altering substances. I have already called some of my friends to tell them that things are going to be bad in the next few months.

Does anyone know of any method or drug treatment that will counteract the emotional effects of Prednisone?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

My daughter is a "mean" prednisone person . . . . when she was younger, if the doctor said that they wanted to put her on prednisone for "x" amount of time, I would tell them that she was also coming to live with them for the duration . . . .

Me, I'm a "euphoric" prednisone person. When I had a fire at my house, I ended up with thermal and chemical burns in my lungs. It was hard to get in to see a pulmonologist . . . by the time I did, he said that, because the blisters were popping in my lungs, that I was literally drowning from the inside out. So he put me on a LOT of prednisone. As we watched my face get larger and larger, I would go in for my every other day check, he would ask, "How are you today?" I would say, "GREAT!! I feel FANTASTIC!! I think I'm over this . . . I really do. I can breathe, my chest doesn't hurt . . . . . " He would listen to my lungs and shake his head. Then finally one day he said, "You know, you're what's known as a "euphoric" prednisone patient. What you need to know is that when I start weaning you off this, you are going to fall HARD. You will not feel very well at all. Just be warned of that." I said, "I just don't think that's going to be a problem . . . I feel fine . . . really -- I feel GREAT!" Sheesh . . . coming down off of that stuff was a little difficult . . . so he weaned me off VERY VERY slowly. Needless to say, I was a little less "euphoric" with each drop in dosage! Personally, though -- I thought it WAS great. NOTHING hurts. Your muscles, your joints, NOTHING. If it weren't for the fact that I don't need it, as well as the long-term repercussions (I'm aware of those as well)I'd want to be on it PERMANENTLY!

I hope that you do well with the steroid therapy. I'm very sorry that you've received the diagnosis that you have. That must have been difficult to hear. I hope that you can get some relief, and stave off any potential difficulties that will appear as a regard to this. Please take care of you. Hugs, Lynne

LKelly8 Rookie

Not everyone has mood problems with prednisone. If you have a family history of mood disorder you are at greater risk. My sister an I were both on prednisone at the same time, me for RA and my sis for ulcerative colitis, we had the typical side effects - crazy appetite, rounded face, hot flashes and mood swings. My sis worked with a woman, tiny thin person, maybe 5'2. She was taking 60mg a day and - nothing! :o No side effects. She said she had mild insomnia, that was it. (They need to study people like that, bottle whatever it is that makes them immune! :blink: )

Have you tried the Open Original Shared Link?

jerseyangel Proficient

Sorry about your diagnosis, CeliaCruz :(

I took steroids for a period of years--both the pills and injected Decadron. I never had any of the negative mood side effects. Actually, I felt very well while on them--the only side effect I ever had was the face rounding. That would happen pretty quickly--like after a few days.

Best of luck with everything :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    4. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,006
    • Most Online (within 30 mins)
      7,748

    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.