Blood Tests Still Coming Back Positive--help!

[jmengert]

Thanks everyone for your continued replies. My doctor has scheduled a biopsy on Nov. 1, as I never had a biopsy when I was diagnosed because my blood levels were extremely high. When I saw him (my GI specialist) with my blood results, he said only one was positive, and it was weak, at that. He said this may be as good as my results ever get, but he wants to rule out other GI issues, such as microscopic colitis. So, I'm going in for the endoscopy Wednesday, and then we'll schedule an colonoscopy after that.

I eliminated paper products and my boyfriend went gluten-free in the house, and I feel marginally better. I also cut out dairy several months ago, to see if that would help, too, but it didn't make a huge difference.

Thanks again for all of your replies! It's just nice to know that I'm not alone

[CM Shirley]

tuna salad (with Whole Foods' tuna), Hellman's mayo, Annie's natural mustard, Annie's dressings,

Lets get back to that Hellman's Mayo. Sure it is gluten free but you said you were soy free. I don't have

a jar of it here, but isn't it mostly soybean oil. If you are at the begining of celiac disease maybe you can not tolerate soy as well as soybean oil, anything soy. When you are fully healed maybe then you can add the dairy.

[jmengert]

I actually use Hellman's canola oil mayo, which is really good stuff. That particular type is soy free, too, which is nice.

[dragonmom]

I'm looking for help from those of you who may have experienced similar things. I've been gluten-free for nearly two years. I am *very careful*. I never eat out, I only cook my own foods, and every food that I put in my mouth has been verified gluten-free, as are my toiletries, makeup, or anything else that could end up in my mouth.

So, I've been feeling awful for the past few months, so I had the celiac panel run again, and my blood tests came back positive--not nearly as high as when I was first diagnosed, but still positive. Any idea at all what could cause this? My GP ran these tests, and I have an appointment with my GI specialist on Oct. 18, but in the meantime I'm afraid to eat--how am I having a positive blood test?

[ravenwoodglass]

There were two items that jumped out at me when I read your list. The first one was your acne wash, not all Neutrogena products are safe so you may want to double check. Also the Tyson Chicken, I have had horrible reactions from this product, not every time but enough so I will never touch it again. I hope you can get this figured out soon. It can be so frustrating. Sometimes the best thing we can do is to use as little processed stuff as possible.

[key]

I am glad you posted this. I am going to go back and see if they will rerun my tests. I have been really sick lately and I can't figure it out! It is driving me crazy! I too never eat at restaurants anymore and I do share a kitchen and cook gluten for my family, but I try and be very careful and wash my hands frequently.

I feel like my GI tract is messed up from top to bottom! IT sucks. I am better and can't eat gluten outright or I am VERY sick, but I still feel like I can't eat anything without being sick.

OUt of the list you mentioned, I am wondering about Pamela's pancakes. I have been eating those for a year and a half too. At least four days a week. I have seen others post that they have felt sick from them, but thought they were probably safe. Yesterday I cut everything out of my diet, but fresh fruits and veges, but still felt aweful lastnight.

I hope you figure out what the culprit is. Also, I would cut out the Mission tortillas for awhile. It is SO hard to be gluten free it seems. I feel like for me it is a losing battle. I just wish I wasn't SO sensitive.

Monica