Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sluggishness After Glutening?


LonelyWolf307

Recommended Posts

LonelyWolf307 Rookie

Does anyone else get sluggish after an accidental glutening? I had something yesterday that must have gotten some of the wheat flour dust that I have for baking stuff for everyone else in the family/when I feel like making cookies to bring to the nursing home residents I work with on it. I feel like a slug today, and while I know I'm not physically tired, and I'm not hungry or anything, I just can't get moving at all. Does anyone else get like this, and how long will it take until it's worn off and I have the energy to go for a run or something again?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast

I get really bad that way. I can relate very much. I haven't been off Gluten more than like 4-5 months so I still feel sluggish pretty much always, but I do get worse the times I have gotten glutened.

CarlaB Enthusiast

I feel fatigued, too. Mine lasts 8 days.

I would suggest not cooking with wheat flour. It would be nearly impossible not to get glutened. If you feel that the cookies must have gluten, then buy the premade dough. I, personally, would just make gluten-free cookies. Usually when I do, no one notices the difference.

LonelyWolf307 Rookie

That's probably a good idea - but I can't afford to make cookies out of rice flours, so my dad and everyone else will just have to go without. I only bake breads for myself because that's what's most economical, being a college student who has more than enough on her plate without making the part-time job a full-time by doing night shifts at the nursing home as well. I'm always good about washing my hands VERY thoroughly (damn medical training taught me to wash my hands relatively obsessively), but I use the same pans and dishes as my dad does, who still eats gluten and won't go gluten-free. Am I damned to keep getting glutened because of possibly contaminated dishes until I move out or if I wash them thoroughly enough can I avoid it? I really can't afford to keep getting glutened - I ride my bike to and from work and school, half an hour ride up and down hills each way, and am on my feet lifting and rolling old people all day, and because I tend to cause problems and on rare occasion accidents when I'm this sluggish I really can't afford get this tired.

gfp Enthusiast

Yes..... more when I have the energy!!!!!!!!!!!!!!

CarlaB Enthusiast
Yes..... more when I have the energy!!!!!!!!!!!!!!

Oh yea, forgot you got glutened! Wondered where you had been ... hope you're feeling better soon!

It's difficult to have a "mixed" household. Just be sure you're not sharing toasters, wooden spoons, cutting boards, peanut butter, mayo or anything else that might get contaminated by a knife getting put back in the jar with crumbs, etc. I'm sure it was the flour .... when it's airborn, you can't help but breathe it in, then some gets in your throat, and you're glutened.

LonelyWolf307 Rookie

Yeah, it could very easily have been the flour dust, if nothing else getting on my food and contaminating it. I eat little other than fresh fruits, soy by-products and beans, fresh veggies, and small amounts of brown rice, grits, and mashed potato flakes. On rare occasion I'll have some gluten-free bread that is oil-free save some flax seed I use as oil replacement, but I don't like to do that because it has egg whites in it as egg replacer doesn't work well for me in bread recipes. Perhaps I should wear a surgical mask while making anything with flour in it? Or just stop making anything with flour in it and see if that clears things up after a month or two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yep, I get ... slow. No other real way to describe it.

Mandy F. Apprentice

I get major fatigue and feel "slow" as it was so well put... It happens really quick and can last for a couple of days. The only thing I have found that helps is Naked Juice-Mango Motion. I don't know what it is about that drink that really helps, but it definetly gives me a boost for a little while... Long enough to make it through some tasks anyway.

Good luck with everything!

gfp Enthusiast
I get major fatigue and feel "slow" as it was so well put... It happens really quick and can last for a couple of days. The only thing I have found that helps is Naked Juice-Mango Motion. I don't know what it is about that drink that really helps, but it definetly gives me a boost for a little while... Long enough to make it through some tasks anyway.

Good luck with everything!

Somehow I can't help thinking of a Seinfeld episode!

eKatherine Apprentice
That's probably a good idea - but I can't afford to make cookies out of rice flours, so my dad and everyone else will just have to go without. I only bake breads for myself because that's what's most economical, being a college student who has more than enough on her plate without making the part-time job a full-time by doing night shifts at the nursing home as well. I'm always good about washing my hands VERY thoroughly (damn medical training taught me to wash my hands relatively obsessively), but I use the same pans and dishes as my dad does, who still eats gluten and won't go gluten-free. Am I damned to keep getting glutened because of possibly contaminated dishes until I move out or if I wash them thoroughly enough can I avoid it? I really can't afford to keep getting glutened - I ride my bike to and from work and school, half an hour ride up and down hills each way, and am on my feet lifting and rolling old people all day, and because I tend to cause problems and on rare occasion accidents when I'm this sluggish I really can't afford get this tired.

Is it just you that's poverty-stricken, or is it your whole family?

Where do you live? Any Asian store should have white rice flour for less than a dollar a pound. Even if you had to pay two dollars a pound, it's cheaper than missing a day of work...but...

If your dad wants you to make cookies for him, it's reasonable that he should be buying your ingredients, considering you can't afford to buy them yourself - whether or not you would be cooking gluten-free. There's no need for you to subsidize his food budget Tell him you're out of money and you'd like a twenty. Then keep track of the costs and go back for more money when you need it.

marciab Enthusiast

Me, too. I have been eating out for about a week now and I have been glutened sooo many times I feel violated. :blink:

I have company in, so I'm off to socialize .... ;) How do ya'll deal with all the cross contamination issues ?

I miss my loneliness .... Marcia

gfp Enthusiast
Is it just you that's poverty-stricken, or is it your whole family?

Where do you live? Any Asian store should have white rice flour for less than a dollar a pound. Even if you had to pay two dollars a pound, it's cheaper than missing a day of work...but...

or as you said before we were talking about "the cost of a gluten-free diet" .... A lot lot cheaper than dealing with the long term effects like thyroid damage or cancer.

(when you said that it really put it into perspective!)

gabby Enthusiast

Use a dust mask when baking! Sounds crazy, but it works. just go down to the hardware store and grab a package of those white masks that have a metal part that pinches over the bridge of your nose. They are usually in the wood/saws or paint section. Put one on before you do any baking, and DON"T TAKE IT OFF until you have finished cleaning everything up.

I don't regularly bake with wheat flour, but last christmas I made cookies with wheat flour and I used one of these masks. It helped.

chgomom Enthusiast

I have a mask and glvoes now, and I use premade cookie dough for my son, where I just use gloves to put it on the sheet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,330
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.