Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac On The Brain?

JenKuz

Recommended Posts

JenKuz Explorer
JenKuz
Posted

I had the funniest dream last night. I dreamt that I got my enterolab test results back, but they were very confusing, and I didn't know what to do, so I posted them right away for ya'll to comment. They were Gliadin 4; ttg 10; and malapsorbtion 449 (!). I'll get the results in another week or two. We'll see if I'm clairvoyant :) but I really hope not, because those results would be hard to interpret.

One thought I had, in my dream, was, Well, I guess it's not celiac, but...I'm sure gonna miss that discussion forum!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Aren't dreams like that crazy? You can't stop thinking about them. I get that sort of thing sometimes.

Let's hope that your results won't be as confusing as that!

rez Apprentice
rez
Posted
Aren't dreams like that crazy? You can't stop thinking about them. I get that sort of thing sometimes.

Let's hope that your results won't be as confusing as that!

I also am waiting for results from Enterolab for my son. We've been trying to get a diagnosis of some sort for six months now. All three of my children got food poisoning in April and haven't been the same since. I feel like my husband and I have been doing all the research and have gotten no help! We also asked them to test for H Pylori because those symptoms seem like they could match as well. It's so frustrating!!! I found out my first doctor ran the wrong test when my son was eating gluten. Now, my new doctor wants to run the right test, but he's already been off gluten for a month. Neither of them know what they're doing!! Why is the entire medical community not knowledgeable on this disease. Do you all think that Enterolab is reliable? Do you think I should discuss results with my medical doctor, or will they not take it seriously? Please reply, I'm going crazy!!

CarlaB Enthusiast
CarlaB
Posted

Medical docs probably won't take them seriously even though Dr. Fine has excellent credentials. I was very happy with their service.

JenKuz Explorer
JenKuz
Posted
  • Author
I also am waiting for results from Enterolab for my son. We've been trying to get a diagnosis of some sort for six months now. All three of my children got food poisoning in April and haven't been the same since. I feel like my husband and I have been doing all the research and have gotten no help! We also asked them to test for H Pylori because those symptoms seem like they could match as well. It's so frustrating!!! I found out my first doctor ran the wrong test when my son was eating gluten. Now, my new doctor wants to run the right test, but he's already been off gluten for a month. Neither of them know what they're doing!! Why is the entire medical community not knowledgeable on this disease. Do you all think that Enterolab is reliable? Do you think I should discuss results with my medical doctor, or will they not take it seriously? Please reply, I'm going crazy!!

I think it depends on the doctor. I was a bit skeptical of the tests, but I asked them some questions and I think they're very reliable. The medical explanation makes sense--IgA is produced in the gut, especially this one, so it makes more sense to test it in the stool than the blood. The assay uses the same substrate as the blood tests use, so it's tried-and-true. There is no known source for cross-reactivity with the substrate in the stool. So, I don't think there's anything to argue with. Plus Dr. Fine's CV is excellent. He also has major NIH grants for testing his method.

If you go to your Dr. with enterolab results, I would make sure to print some of these things and take them along.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,098
    • Most Online (within 30 mins)
      7,748
    Baxter6
    Newest Member
    Baxter6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      High DGP-A with normal IGA

      By Wheatwacked · Posted

      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.