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Guest ~jules~

Follow Up Appointment

By Guest ~jules~, in Post Diagnosis, Recovery & Treatment of Celiac Disease

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Guest ~jules~   

Guest ~jules~
Posted

Well I had my follow up appt. this morning with my gi. I wanted to see my lab results, so he showed me the antibody results from my bloodwork, and the pics of my intestine, YUCK> In comparison to pics of a normal small intestine, mine looked all cracked, with alot of what they call "scalloping". The sucky news is my liver enzymes are still high, so I had to go get poked again, which I hate, and they are doing an ultrasound of my liver Oct. 12th. Hopefully everything turns out okay, will this madness ever end, I am sick of being tested. I can see why he wants to, my liver isn't acting normal, but that doesn't make my desire for testing any more peachy. Okay, I'm done whining now...have a great weekend everyone!!! :D:D:P

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Ursa Major    5

Ursa Major
Posted

Well, the good thing about you looking at the pics of your intestine is, that it's easier to accept when you've seen it with your own eyes. You now know how bad it looks, and will want to fix it.

I am sorry about your liver not functioning right, I hope something can be done about it, and your doctor can figure out exactly what the problem is.

I hope you feel better soon!

I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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AndreaB    1

AndreaB
Posted

Whine away Julie, you're in a safe place.

Keep us posted on how your liver tests go.

Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)


The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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