Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Couple Of Random Questions...


AshleyE

Recommended Posts

AshleyE Apprentice

I have a couple of totally unrelated questions. I know that I can get glutened by kissing my husband after he's eaten something with gluten in it, so my question is this: what can he do to clean it off? Does just brushing his teeth get rid of the gluten? If not, what does he have to do?

Also, I know that I can get glutened by even just one crumb. What I'm wondering is how many people on here are actually symptomatic after ingesting one crumb? I know there are degrees of glutening, like I can tell when it's slipped in somewhere just because my mood changes, but then if I accidentally eat more of it I am on the toilet all day long with other symptoms lasting about a week. Is there anybody who gets outwardly physically ill after eating a crumb?

Sorry for the randomness, but these are the things that go through my newbie brain. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Ashley,

My husband brushes his teeth extremely well after he eats gluten, and usually rinses a little bit, too.

I am one of the super sensitive people who get sick off "one crumb." I have not eaten anything that has gluten in its ingredients in over 2 years (I get so sick, that I don't risk it. I go hungry insted of eat, if I haven't planned ahead, its that bad). However, I have gotten sick from cross contamination (even from small amounts). I shudder to think if I actually ate gluten in terms of a full bite of bread or such.

I'm sure you'll get more answers, hope this is a good start for you!

kbtoyssni Contributor

I've read that some people make their significant other use mouthwash before kissing. I have no idea myself since I haven't done much kissing since going gluten-free :)

I assume I'd get symptoms from one crumb of gluten (not about to do a self-test to find out, though!) I have gotten glutened at restaurants when I KNOW that the ingredients themselves were gluten-free, so there had to be some cross-contamination. After carefully instructing the waitstaff, I can only assume that the glutening came from a very small amount of gluten.

celiacgirls Apprentice

I got sick from eating rice that the server patted down with his gloved hand (which probably had held a flour tortilla before). I scooped off the top part, hoping to get rid of all the gluten, but I was still sick the next day.

Another time, I got sick after discovering part of a crouton in my salad. I'm sure I didn't eat any of it but there was enough gluten in the salad to make me sick.

I was never sick before I gave up gluten. I only discovered I was intolerant after my daughter was dx'ed.

I would never test myself by eating any gluten intentionally. It just isn't worth it.

tarnalberry Community Regular

I don't know if I get sick off "one crumb" but going by symptoms is useless, since you can have damage without symtoms anyway. :(

As for the kissing - I use primarily waiting (something that studies on peanut proteins for the allergic seem to support) and brushing. My husband mostly eats gluten-free, but not all the time.

aikiducky Apprentice

My hubby wipes his mouth, and rinses with a bit of water, and for a bit more "thorough" kissing :D , we wait and don't do it right after eating.

I get symptoms from less tha a crumb. A crumb is actually quite a lot of gluten...

Pauliina

Guest Norah022

i don't really worry about kissing my boyfriend after he has eaten gluten.

I am not as sensitive as most so one crumb doesn't really bother me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ashley Enthusiast

At the most, my mouth burned a little bit. That was about...maybe three hours so after my boyfriend had ate pizza. There wasn't a toothbrush 'round for him at the time, since it was at my 16th B-Day party and kinda didn't see that one comin' at me. I was actually surpised that I didn't breakout.

My reactions are really weird. Some make me hurl it back up, others just make my capilliars burst faintly and sometimes they're so shot that it takes a week and a half before my face isn't covered in red dots. I'm not sure what the deal is.

-Ash

ÆON Newbie

I've gotten sick off of crumbs, but worse, got sick once off of just a smell. Actually I was taking a very deep smell of a plate of chicken nuggets - I probably breathed some crumbs in - very stupid move on my part.

As tarnalberry mentioned a crumb can cause damage that you may not feel, though.

My husband brushes his teeth after he eats gluten and it seems to work.

KaitiUSA Enthusiast

Not all crumbs may cause symptoms but it causes damage. I was glutened by kissing before.

heathen Apprentice

watch out for the new year's kiss!!! miller-lite kisses make me symptomatic within minutes. sure does take the fun out of a saturday night.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.