Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Infertility

Natlay

By Natlay
in Related Issues & Disorders

Recommended Posts

Natlay Apprentice
Natlay
Posted

Has anyone else had problems with not getting a period for a very long time? I have not had one (except for when I was on the pill for a while) in quite a while. I know I'm at a low weight right now and that could be part of the problem, but I don't get it even after gaining some weight. I don't know if I ever want to have kids but I would at least like to have the option. Is this something that is common with celiac disease or should I be more worried and see the doctor about it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Natlay, it is quite common for people with celiac disease to have fertility issues, including not getting their period. Hopefully, once you recover and gain some weight, things will normalize. But it can't hurt to mention it to your doctor.

sillyyak Enthusiast
sillyyak
Posted

I also have not gotten my periods in awhile and only get a withdrawl bleed on the pill. They just diagnosed me with premature ovarian failure, so you might want to check into if you have that.

IrishKelly Contributor
IrishKelly
Posted
Has anyone else had problems with not getting a period for a very long time? I have not had one (except for when I was on the pill for a while) in quite a while. I know I'm at a low weight right now and that could be part of the problem, but I don't get it even after gaining some weight. I don't know if I ever want to have kids but I would at least like to have the option. Is this something that is common with celiac disease or should I be more worried and see the doctor about it?

Yep, i started to become very irregular (like i would go anywhere from 2-5 months without getting it) around the age of 21. When my husband and i wanted to plan our second child it took us almost a year to conceive her...but i have recently found that this was all linked to my body being low in vitamins. I recently remembered that once i started to take womens multi-vitamins, two months later i got pregnant. The malabsortion included all the necessary things my body needed to function properly...it's amazing to me now to know that i was having conceiving issues because something as simple as a lack of vitamins...i hope this helps ;)

powderprincess Rookie
powderprincess
Posted

I am wondering whats up with my cycle as well. I wish you good luck and good health and hope you figure out what is going on.

I have been gluten-free since May and off the pill since Aug. My periods are really far apart and I am taking vitimins. I don't think I am technically underweight but have lost a little, only because I don't eat as many cupcakes and cookies (I think that's why anyway). I have been feeling good, but the weird cycle is questionable, I'm thinking unless when I pee on stick tomorrow there's a plus sign, I should probably go to a doctor and ask what the deal is.

Michi8 Contributor
Michi8
Posted
I am wondering whats up with my cycle as well. I wish you good luck and good health and hope you figure out what is going on.

I have been gluten-free since May and off the pill since Aug. My periods are really far apart and I am taking vitimins. I don't think I am technically underweight but have lost a little, only because I don't eat as many cupcakes and cookies (I think that's why anyway). I have been feeling good, but the weird cycle is questionable, I'm thinking unless when I pee on stick tomorrow there's a plus sign, I should probably go to a doctor and ask what the deal is.

Have you ever considered trying FAM? (Check out the book "Taking Charge of Your Fertility" by Toni Weschler.) Charting your basal temp and other signs/symptoms during your cycle can give you information on what is going on, and provides your doctor with some detailed info for easier diagnosis & treatment.

Michelle

  • 2 weeks later...
NicoleAJ Enthusiast
NicoleAJ
Posted

I had irregular periods before diagnosis, but it went in the other direction. I'd have my period very heavy for two weeks straight, and then I'd get two weeks off before it came back in full force for another 2 weeks. My PMS symptoms were always severe, and I'd often have to stay home because even maximum absorbency tampons and pads weren't enough to slow it down enough for me to stand up for more than a few minutes at a time. At 15, the doctors needed to put me on the pill for hormone control (I was far from needing it for prophylactic purposes). After diagnosis though (when I was 24), I started getting normal periods after only a few months. It's nice to be normal now, but the PMS is still a killer if I don't use medicine. I have no idea what caused this, but I'm glad that it's back on track because I spent so much time anemic in the past.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

Infertility can be caused by low Thyroid too - so you may want to check that out with your Dr. Make sure you get Antibodies tested. Hashimotos Thyroid is an autoimmune disease like Celiac and often they co exist.

abc Rookie
abc
Posted
Has anyone else had problems with not getting a period for a very long time? I have not had one (except for when I was on the pill for a while) in quite a while. I know I'm at a low weight right now and that could be part of the problem, but I don't get it even after gaining some weight. I don't know if I ever want to have kids but I would at least like to have the option. Is this something that is common with celiac disease or should I be more worried and see the doctor about it?

I am now 35 with 2 kiddos, but had a very very irregular period for most of my youth (I would go months (read 10-12) without one. I was regular when I was on the pill too - but as soon as I went off it, I never got my period. We tried off and on for 2 years for a baby. I did have big issues with infertility with my first daughter, but with a lot of assistance of fertility drugs, was able to get pregnant finally. That was about 4 years ago. When I finally weaned her, I became very regular - and was able to get pregnant with my son rather quickly. I did use TOni WExler's book (someone else in this thread recommended it). I am not a confirmed celiac, but do think gluten intolerance had something to do with it...the female body is incredibly intuitive and very sensitive to what it perceives as inadequate environments for a fetus. Gaining weight might help you, but don't necessairily expect it to...you might want to see a physician to have them help you bring down your period (with progesterone) and if that doesn't work, they will probably check your thyroid, check you for premature menopause - all the fun stuff. Its best to know...before you get too far along. Also, remember that periods are there for a reason - it is important to shed the lining every month - if you are not, it can build up and a d&c might be in order to clean it out (that happened to me as well). SO, I guess I would recommend going to a doc - just to be sure all is okay. Good luck!

elaine33 Apprentice
elaine33
Posted

I had infertility issues and irregular periods my whole life. I had two late pregnancy losses and saw a reproductive endocrinologist, who diagnosed me with polycystic ovarian syndrome because of the appearance of a lot of small pearl-like cysts on my ovaries. His information was so much more helpful and accurate than my OB's, so I would recommend a reproductive endo very much.

Here is a site about PCOS - www.soulcysters.com

  • 2 weeks later...
Nova-Gryphon Newbie
Nova-Gryphon
Posted

Fertility issues and irregular periods are how I ended up self diagnosing. I had been irregular all my life and I had to use fertility drugs to get pregnant with my first daughter. After giving up wheat I was able to concieve normally with my second daughter. Still not 100% regular, but by charting my temperature I was able to concieve in 3 months.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748
    westman3d
    Newest Member
    westman3d
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.