Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Can't We Get Rid Of Autoimmune Diseases?


chrissy

Recommended Posts

chrissy Collaborator

if something happens to "turn on" celiac disease and other autoimmune diseases------why can't we turn them back off? it just seems that if our bodies are so good (ideally) at healing themselves we should be able to heal from an autoimmune disease. i know that MS can go into remission because my grandfather had it and his went into remission. lupus can also do that and probably others as well, but not celiac or diabetes. my sister has an autoimmune disease called primary schlerosing cholingitis and it will eventually destroy her liver and she will need a transplant----if one of the other problems connected with her disease doesn't kill her. i just keep thinking that if something starts these things, something should be able to stop them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

You can stop Celiac damage by not eating gluten. If we knew what caused or limited the other diseases we could stop those too. Does MS spontaneously go into remission, or do we unknowingly change something that no longer activates it? If you moved to a small island that had only fish and local fruits to eat wouldn't your Celiac be in remission even though you weren't consciously doing anything to change it?

Nantzie Collaborator

No answers, but I've wondered about this too. Maybe it's just something science hasn't figured yet.

Nancy

mommida Enthusiast

Wouldn't we have to have doctors to correctly diagnose celiac disease first?

L.

Nantzie Collaborator
Wouldn't we have to have doctors to correctly diagnose celiac disease first?

L.

ROFLMAO!!!

:lol::lol::lol:

Nancy

lorka150 Collaborator
if something happens to "turn on" celiac disease and other autoimmune diseases------why can't we turn them back off? it just seems that if our bodies are so good (ideally) at healing themselves we should be able to heal from an autoimmune disease. i know that MS can go into remission because my grandfather had it and his went into remission. lupus can also do that and probably others as well, but not celiac or diabetes. my sister has an autoimmune disease called primary schlerosing cholingitis and it will eventually destroy her liver and she will need a transplant----if one of the other problems connected with her disease doesn't kill her. i just keep thinking that if something starts these things, something should be able to stop them.

There are four types of MS: one is Relapsing Remitting, and there are periods where you have attacks, 'heal', and then the process goes on again. After having that for awhile (the timeline is at about 30 years right now), it often changes to Progressive, and speeds downhill.

2kids4me Contributor
if something happens to "turn on" celiac disease and other autoimmune diseases------why can't we turn them back off? it just seems that if our bodies are so good (ideally) at healing themselves we should be able to heal from an autoimmune disease.

Most of the problem is that researchers know that immune disease is caused by the body making antibodies to "self" something it doesnt normallly do. They havent found the "on button" much less who/what is sneaking in and flipppin the darn switch :huh:

When they find the on button, then they have to find the off switch, no doubt hidden better than the on button :o

There are some diseases that seem to have a dimmer switch (like relapsing remitting forms of immune illness)..and someone keeps playing with the switch there ......

Top it off with - there are over 60 autoimmune diseases - each with different underlying genetic flaws at diiferent points on chromosomes AND some poeple with these "flaws" dont ever develop the disease while others will... that elusive trigger again.

The system that's involved in healing the body is also the system that is behind the immune mediated diseases. :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Helena Contributor

Interesting question. I don't know, but I would guess that it is the same reason why for instance if we have chicken pox once we generally won't get it again. Once the immune system recognizes something as pathogenic, it continues to do so.

flagbabyds Collaborator

Some people say that it goes into remission when you are in need to reproduce in your teens and early twenties but then it comes back, all this time you have the disease and it is diong damage to your intestines but your body does not show symptoms,

not sure if this is true, but i feel no incline to test it, i am 16 now and i still get symptoms and such.

that's all i have ever heard about it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,807
    • Most Online (within 30 mins)
      7,748

    MoonBear
    Newest Member
    MoonBear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.