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Why Can't We Get Rid Of Autoimmune Diseases?

chrissy

By chrissy
in Related Issues & Disorders

Recommended Posts

chrissy Collaborator
chrissy
Posted

if something happens to "turn on" celiac disease and other autoimmune diseases------why can't we turn them back off? it just seems that if our bodies are so good (ideally) at healing themselves we should be able to heal from an autoimmune disease. i know that MS can go into remission because my grandfather had it and his went into remission. lupus can also do that and probably others as well, but not celiac or diabetes. my sister has an autoimmune disease called primary schlerosing cholingitis and it will eventually destroy her liver and she will need a transplant----if one of the other problems connected with her disease doesn't kill her. i just keep thinking that if something starts these things, something should be able to stop them.

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Jestgar Rising Star
Jestgar
Posted

You can stop Celiac damage by not eating gluten. If we knew what caused or limited the other diseases we could stop those too. Does MS spontaneously go into remission, or do we unknowingly change something that no longer activates it? If you moved to a small island that had only fish and local fruits to eat wouldn't your Celiac be in remission even though you weren't consciously doing anything to change it?

Nantzie Collaborator
Nantzie
Posted

No answers, but I've wondered about this too. Maybe it's just something science hasn't figured yet.

Nancy

mommida Enthusiast
mommida
Posted

Wouldn't we have to have doctors to correctly diagnose celiac disease first?

L.

Nantzie Collaborator
Nantzie
Posted
Wouldn't we have to have doctors to correctly diagnose celiac disease first?

L.

ROFLMAO!!!

:lol::lol::lol:

Nancy

lorka150 Collaborator
lorka150
Posted
if something happens to "turn on" celiac disease and other autoimmune diseases------why can't we turn them back off? it just seems that if our bodies are so good (ideally) at healing themselves we should be able to heal from an autoimmune disease. i know that MS can go into remission because my grandfather had it and his went into remission. lupus can also do that and probably others as well, but not celiac or diabetes. my sister has an autoimmune disease called primary schlerosing cholingitis and it will eventually destroy her liver and she will need a transplant----if one of the other problems connected with her disease doesn't kill her. i just keep thinking that if something starts these things, something should be able to stop them.

There are four types of MS: one is Relapsing Remitting, and there are periods where you have attacks, 'heal', and then the process goes on again. After having that for awhile (the timeline is at about 30 years right now), it often changes to Progressive, and speeds downhill.

2kids4me Contributor
2kids4me
Posted
if something happens to "turn on" celiac disease and other autoimmune diseases------why can't we turn them back off? it just seems that if our bodies are so good (ideally) at healing themselves we should be able to heal from an autoimmune disease.

Most of the problem is that researchers know that immune disease is caused by the body making antibodies to "self" something it doesnt normallly do. They havent found the "on button" much less who/what is sneaking in and flipppin the darn switch :huh:

When they find the on button, then they have to find the off switch, no doubt hidden better than the on button :o

There are some diseases that seem to have a dimmer switch (like relapsing remitting forms of immune illness)..and someone keeps playing with the switch there ......

Top it off with - there are over 60 autoimmune diseases - each with different underlying genetic flaws at diiferent points on chromosomes AND some poeple with these "flaws" dont ever develop the disease while others will... that elusive trigger again.

The system that's involved in healing the body is also the system that is behind the immune mediated diseases. :o

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Helena Contributor
Helena
Posted

Interesting question. I don't know, but I would guess that it is the same reason why for instance if we have chicken pox once we generally won't get it again. Once the immune system recognizes something as pathogenic, it continues to do so.

flagbabyds Collaborator
flagbabyds
Posted

Some people say that it goes into remission when you are in need to reproduce in your teens and early twenties but then it comes back, all this time you have the disease and it is diong damage to your intestines but your body does not show symptoms,

not sure if this is true, but i feel no incline to test it, i am 16 now and i still get symptoms and such.

that's all i have ever heard about it.

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    • captaincrab55
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    • rei.b
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      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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