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Very New To This And Needing Some Help!

diva-u-k

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diva-u-k Newbie
diva-u-k
Posted

So here's the thing.....all my life I've had issues with feeling bloated and sick at random times and never really thought much about it. About 18 months ago it got to the point where it was making me miserable. I was bloated all the time, I could put my hand on my tummy and feel it sloshing around, I have constant headaches, my skin was terrible, I was tired etc etc and I could always trace it back to something with wheat in it. So since then I've played around with being gluten free and, when I was able to stick to it, it worked. But life got in the way and I wasn't consistent enough. So most recently I've been feeling worse than ever. To cap it all I'm convinced my hair is thinng. Like I shower and i wind up with clumps......one night I stood there and counted it. 130 hairs in one combing. So about a month ago i decided to commit and I've been as gluten free as I can be while i'm learning. i got caught by Kellogs rice crispy squares and a drink from england called 'ovaltine' but apart from that it's been great...and I'm doing better. Apart from the hair thing. So reading some of these posts I've noticed (and stupidly enough didn't realise) that shampoo has gluten in it. Could this be making my hair come out? Could this be why my neck itches after evey shower? Sorry to be so wordy but I could use some help!!!!!!!!

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lovegrov Collaborator
lovegrov
Posted

I doubt that the shampoo is causing your hair to fall out unless, maybe, you are also allergic to wheat. And not all shampoo has gluten.

richard

diva-u-k Newbie
diva-u-k
Posted
  • Author
I doubt that the shampoo is causing your hair to fall out unless, maybe, you are also allergic to wheat. And not all shampoo has gluten.

richard

I just checked both shampoos that I have been using recently and they both have 'wheat amino complex' in them......

Guhlia Rising Star
Guhlia
Posted

How long have you been gluten free? Hair loss can be a symptom of nutritional deficiencies. Perhaps your gut hasn't healed enough to absorb enough nutrients yet. You may want to try taking a multivitamin. Make sure it's gluten free, of course. Also, if your shampoo or body products contain gluten, you could be getting them in your mouth and constantly glutening yourself. Even just a little gluten can keep your intestines from healing.

diva-u-k Newbie
diva-u-k
Posted
  • Author

Thank you Guhlia....that does make sense. I've been looking at the forums and seen that people were looking for gluten free shampoo and I wondered why if it doesn't cause skin or hair issues. I never thought about the fact that you may ingest some.

I've been gluten free for about a month now but am still learning on the go (as this shows!!!!). I have no diagnosis right now.....I've recently moved to Canada and am having Visa issues so I dont have health care (which means I can't afford to get tested)....so I figured that making myself feel better was more important than keeping gluten in my diet until i could get tested......I have no idea if I have celiac disease or if I ma 'just' intollerant but right now i'm not sure it makes much difference. If going gluten free helps it's positive right? As you can see i'm a little conflicted!!

Rusla Enthusiast
Rusla
Posted

Have them check your B-12 and folic acid. I would stand in the shower and watch my hair flow down the drain. I could fill up a brown paper bag with my hair. They picked up on my very low B-12 (pernicious anemia) but never picked up on the Celiac until last year...only because I yelled and screamed for tests.

diva-u-k Newbie
diva-u-k
Posted
  • Author

I'm so pleased to have come across this forum, you guys have some great advice :) I wondered about folic acid actually. It's comforting to hear that other people have had issues with hair loss. It doesn't show right now but I can feel it.....my hair is very thick, long and dark brown....I'm getting a little paranoid about it.... I will defeinitely check those things out when I am able. Actually I was thinking of seeing my friends naturopath to see if she has any ideas. I have coverage for that through work. Has anybody else tried nautropathy?

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    • Rogol72
      Help I’m cross contaminating myself,

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      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
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      Help I’m cross contaminating myself,

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      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
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      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
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