Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Encopresis And Celiac

Willow5

Recommended Posts

Willow5 Rookie
Willow5
Posted

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

Nan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

My son has struggled with it off an on... we just figured out that it is related to 2 things - lactose and consitipation. Our daughter just started going lactose free and as an experiment we had son go lactose free..he decided he didnt have to worry so he went back on regular milk etc. Lo and behold but his "wet toots" [as he calls them] returned withing 6 hours of lactose in his diet, after a few days of having no problem (when lactose free)

The cause varies but it seems to be -for our son - related to lactose (he is also celaic/diabetic).

Now I am wondering if the dairy is also behind the constipation too.......

Willow5 Rookie
Willow5
Posted
  • Author

thanks for the input, my son does drink dairy, have tried no dairy before but not combined with gluten free... always a new twist! thanks again, Nan

AmandaD Community Regular
AmandaD
Posted

I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

  • 2 weeks later...
Willow5 Rookie
Willow5
Posted
  • Author
I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

TCA Contributor
TCA
Posted

My son had this until going gluten-free. He wasn't constipated, just couldn't control his bowels at all. After a month gluten-free he was completely potty trained, but still has accidents if he gets gluten unintentionally. We had a foster son who had MAJOR problems with this. It turned out that he had an impaction the size of a grapefruit. Once that was cleared out, the problem went away. He's no longer here, but with his ADHD issues I now wonder if gluten may be an issue for him.

AmandaD Community Regular
AmandaD
Posted
How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

I was so young I barely remember, except that I wouldn't go to the bathroom for days and days. Then the doc started having me do mineral oil and orange juice drinks and eventually it wasn't so bad...but I had some issues basically until I turned 30 which is when my GI did the bloodwork and found out I had celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 6 years later...
julpez Newbie
julpez
Posted

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

kareng Grand Master
kareng
Posted

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

Just to let you know - this thread is 6 years old. Most or all of the posters are no longer active on the forum.

  • 4 years later...
Mumofzoey Newbie
Mumofzoey
Posted
On 22/10/2006 at 0:03 PM, Willow5 said:

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

 

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

 

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

 

Nan

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

kareng Grand Master
kareng
Posted
1 minute ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Maybe when zthe Celiac damage is healed , the other  problem will dissipate?

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Hi!  

This is going to sound weird, but I am happy you have a diagnosis.  I hope, like Karen, that your daughter's other issue will resolve on a gluten free diet.  Your best defense is to research, research and research.  Learn all that you can about the gluten-free diet.  You can check out our Newbie 101 thread located under the Coping section of the forum.  

I assume you meant that the rest of your family was tested for celiac disease  when you stated that the siblings do not have it.  All first degree relatives should be tested even if asymptomatic.  

We are here to help!  

  • 2 weeks later...
CeliacMommaX2 Enthusiast
CeliacMommaX2
Posted

I know this started out as an old post, but I wanted to comment that an encopresis diagnosis is what led us to finding celiac in our 4 year old.  What helped us to beat the encopresis is Dr. Collins method- Soiling Solutions.  (plus I'm sure the gluten-free diet helped!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.