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Encopresis And Celiac

Willow5

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Willow5 Rookie
Willow5
Posted

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

Nan

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2kids4me Contributor
2kids4me
Posted

My son has struggled with it off an on... we just figured out that it is related to 2 things - lactose and consitipation. Our daughter just started going lactose free and as an experiment we had son go lactose free..he decided he didnt have to worry so he went back on regular milk etc. Lo and behold but his "wet toots" [as he calls them] returned withing 6 hours of lactose in his diet, after a few days of having no problem (when lactose free)

The cause varies but it seems to be -for our son - related to lactose (he is also celaic/diabetic).

Now I am wondering if the dairy is also behind the constipation too.......

Willow5 Rookie
Willow5
Posted
  • Author

thanks for the input, my son does drink dairy, have tried no dairy before but not combined with gluten free... always a new twist! thanks again, Nan

AmandaD Community Regular
AmandaD
Posted

I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

  • 2 weeks later...
Willow5 Rookie
Willow5
Posted
  • Author
I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

TCA Contributor
TCA
Posted

My son had this until going gluten-free. He wasn't constipated, just couldn't control his bowels at all. After a month gluten-free he was completely potty trained, but still has accidents if he gets gluten unintentionally. We had a foster son who had MAJOR problems with this. It turned out that he had an impaction the size of a grapefruit. Once that was cleared out, the problem went away. He's no longer here, but with his ADHD issues I now wonder if gluten may be an issue for him.

AmandaD Community Regular
AmandaD
Posted
How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

I was so young I barely remember, except that I wouldn't go to the bathroom for days and days. Then the doc started having me do mineral oil and orange juice drinks and eventually it wasn't so bad...but I had some issues basically until I turned 30 which is when my GI did the bloodwork and found out I had celiac.

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  • 6 years later...
julpez Newbie
julpez
Posted

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

kareng Grand Master
kareng
Posted

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

Just to let you know - this thread is 6 years old. Most or all of the posters are no longer active on the forum.

  • 4 years later...
Mumofzoey Newbie
Mumofzoey
Posted
On 22/10/2006 at 0:03 PM, Willow5 said:

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

 

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

 

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

 

Nan

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

kareng Grand Master
kareng
Posted
1 minute ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Maybe when zthe Celiac damage is healed , the other  problem will dissipate?

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Hi!  

This is going to sound weird, but I am happy you have a diagnosis.  I hope, like Karen, that your daughter's other issue will resolve on a gluten free diet.  Your best defense is to research, research and research.  Learn all that you can about the gluten-free diet.  You can check out our Newbie 101 thread located under the Coping section of the forum.  

I assume you meant that the rest of your family was tested for celiac disease  when you stated that the siblings do not have it.  All first degree relatives should be tested even if asymptomatic.  

We are here to help!  

  • 2 weeks later...
CeliacMommaX2 Enthusiast
CeliacMommaX2
Posted

I know this started out as an old post, but I wanted to comment that an encopresis diagnosis is what led us to finding celiac in our 4 year old.  What helped us to beat the encopresis is Dr. Collins method- Soiling Solutions.  (plus I'm sure the gluten-free diet helped!)

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