Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contamination

almostnrn

By almostnrn
in Coping with Celiac Disease

Recommended Posts

almostnrn Explorer
almostnrn
Posted

Ok I just spent the last 20 minutes giggling at the poo conversation and I think I've finally worked up the nerve to ask some questions about other forms of contamination. I've drawn the line at kids drinking out of my bottle of water/soda etc...but what about other ways my family can contaminate me?! Can I get it from a kiss? Do I need my husband to rinse his mouth with water before he kisses me? Ok and here is the most embarrasing one...If he isn't gluten-free, can it be passed on from "relations". I know it sounds silly and even adolescent but these questions have been driving me crazy and I don't know who to ask, especially since every medical professional I talk to I wind up giving a crash course in Celiac 101. Thanks for any info you can pass on, and thanks to all for the light-heartedness of some of these postings, they really make my day!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

you know, I had the same question and was told that no "relations" couldn't contaminate me, but then why do I seem to react? Hormones?

Anyway, with kissing, as long as he rinses out his mouth or brushes teeth you should be fine

jerseyangel Proficient
jerseyangel
Posted

Hi Amy,

Welcome in :) , and don't ever feel embarassed to ask a question!

This one has been asked before--and for good reason :D If your husband has been eating anything containing gluten, ask him to brush his teeth, maybe use some mouthwash, and rinse well. As far as the "other" bodily fluid--no problem ;)

almostnrn Explorer
almostnrn
Posted
  • Author

Thanks so much for your replies. I have always felt as if I'm getting glutened somehow, although I'm very cautious and my family is extremly supportive. Sometimes my kids are better at picking out questionable things than I am :) . I also noticed far less regular problems last year when he was stationed in Korea. Hee hee, now I guess when I feel romantic instead of lighting candles or such I'll lay a toothbrush on his pillow!!

jerseyangel Proficient
jerseyangel
Posted
Hee hee, now I guess when I feel romantic instead of lighting candles or such I'll lay a toothbrush on his pillow!!

Oh Amy, that is too funny :lol:

Jestgar Rising Star
Jestgar
Posted

If you kiss your kids' cheeks a lot you might want to check whatever sort of lotion/cream/glittery lipstick they are using.

CarlaB Enthusiast
CarlaB
Posted
Thanks so much for your replies. I have always felt as if I'm getting glutened somehow, although I'm very cautious and my family is extremly supportive. Sometimes my kids are better at picking out questionable things than I am :) . I also noticed far less regular problems last year when he was stationed in Korea. Hee hee, now I guess when I feel romantic instead of lighting candles or such I'll lay a toothbrush on his pillow!!

Our home is gluten-free because I was not getting better ... the first thing hubby does when he gets home is brush his teeth ... then he's "safe" for the rest of the time here!! ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elye Community Regular
elye
Posted

Boy, this illness certainly takes the spontanaeity out of our relationships, doesn't it? Man, toothbrushes on our pillows...Gone are the days of suddenly throwing my arms around DH and kissing him silly...sigh.... ;):(

CarlaB Enthusiast
CarlaB
Posted
Boy, this illness certainly takes the spontanaeity out of our relationships, doesn't it? Man, toothbrushes on our pillows...Gone are the days of suddenly throwing my arms around DH and kissing him silly...sigh.... ;):(

That's why my hubby's always gluten-free at home. ;) On dates, too. :rolleyes:

Nantzie Collaborator
Nantzie
Posted

Yea, but I bet we never thought that the sound of our husbands brushing their teeth would make our minds "turn to thoughts of love..."

:ph34r:

:D

Nancy

almostnrn Explorer
almostnrn
Posted
  • Author

That is so cute! My husband feels just awful that he could be the source of contamination that has been going on. He really trys so hard as well as our kids. But just when I think I have a good handle on things and we are all feeling pretty "normal"...BLAMO another thing to look out for. This disease can be so frustrating! Thanks to all who replied, it gave me some great answers and things to watch out for as well.

happygirl Collaborator
happygirl
Posted

we are happy you asked...nothing is off limits here!

my husband always brushes his teeth and rinses before we kiss. we don't even kiss on the lips at all until he is safe (because I am extremely sensitive)....but it is something he is happy to do....bc what would make someone feel worse than making the one you love sick?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.