Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labeling Question


skipper30

Recommended Posts

skipper30 Enthusiast

I am wondering if, when a product label says gluten free...does that mean gluten free or wheat free? Does it depend on the company? I am wondering if companies in the mainstream know the difference between true gluten free and wheat free...also I am wondering if the companies have to declare wheat in ANY shape, form or fashion that is in or associated with their products. (Like Twizzlers)

I'm not sure if I have asked clearly what it is I am wondering...but I do not really know how to word it. I know that they must list wheat as one of the top allergens, but what I am wondering is how is it the the other "gluten" grains can be left off? And..is it just the artificial/natural flavorings and malt that we need to watch out for.

I am just trying so hard to get it all out of the house(many accidental cc by a little brother who is 2.) And with Halloween upon us, I want to keep Cooper from anything he isn't supose to have...but I guess I am still not very good at this whole label reading thing!!

Dallas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
I am wondering if, when a product label says gluten free...does that mean gluten free or wheat free? Does it depend on the company? I am wondering if companies in the mainstream know the difference between true gluten free and wheat free...also I am wondering if the companies have to declare wheat in ANY shape, form or fashion that is in or associated with their products. (Like Twizzlers)

I'm not sure if I have asked clearly what it is I am wondering...but I do not really know how to word it. I know that they must list wheat as one of the top allergens, but what I am wondering is how is it the the other "gluten" grains can be left off? And..is it just the artificial/natural flavorings and malt that we need to watch out for.

I am just trying so hard to get it all out of the house(many accidental cc by a little brother who is 2.) And with Halloween upon us, I want to keep Cooper from anything he isn't supose to have...but I guess I am still not very good at this whole label reading thing!!

Dallas

Hi :) ,

If a product is marked gluten-free, it means gluten-free (no wheat, barley or rye). If the label says wheat free, it could still contain barley or rye, so never assume that wheat free means gluten-free.

Many (but not all) mainstream companies will clearly list gluten ingredients on the package. For those, all you have to do is read. There is always a chance of CC with any company that isn't a dedicated facility. Usually, trial and error are the only way to know for sure if products from a certain company will cause problems for you.

Companies must declare the presense of wheat because wheat is one of the top 8 allergens. Since barley and rye are not on that top 8 list, companies are not obligated to list it. Although, again, the companies that say specificlly that they will list gluten, will list all gluten sources.

Nestle and Hershey are two companies that will list any gluten.

Hope this helps a little!

Corkdarrr Enthusiast

If a product is gluten free, then it is, by nature, wheat free.

However, just because a product does not contain wheat, it does not mean it is gluten free.

Label reading will get easier - I promise! It just takes a lot of practice. And pretty soon you will begin to recognize which companies you can trust, and which ones will 'hide' gluten.

I am always suspicious about natural flavorings and modified food starches, but I can usually find the answer by searching on this board or by using google (which often times brings me back to this board anyways).

Good luck!

Courtney

skipper30 Enthusiast

THANK YOU THANK YOU THANK YOU!!

:D:D:D

We have "only" been doing this for about 10 months now and just when I think I know what I am doing...I gluten my poor little guy! We have a Fall festival tonight at our church and I am almost frantic about the candy. MAINLY because once it is out of the big package...there often aren't lables to check...SO, I think I will just go get some candy that I know he can have and trade out anything I suspect!

Thanks for you responses!

Have a great weekend!

tarnalberry Community Regular

based on a recent post, I'm going to caveat jerseyangel's post - gluten free may not 100% of the time mean gluten free. apparently, neutrogena was not checking for rye and barley when they said things were gluten free, and are in the process of correcting that.

scratch that, I'm just going to disagree that gluten free means no wheat, barley, or rye. I don't fully trust a "Gluten Free!" label - I use it as a guide to suggest that I should read the ingredient list. there is no definition of gluten free, legally, yet. so things get labelled gluten free even if there are oats in them, sometimes. I have personally seen things labeled gluten free when they have contained oat fiber (energy bars), barley grass (beverages and nutritional supplements), or wheat starch (so long ago, I've forgotten, but it was something snack related). (the last one was a product where I believe they used codex wheat - starch that has been processed so much that the protein has theoretically been removed - but it was not a european imported product.

you can't just pick up something that says "gluten free" without reading the label. there are certain companies you can come to trust to label gluten (in all its forms - including oats) on the ingredient list, and there are companies you can come to trust to use the 'gluten free' label correct. but nothing takes the place of ingredient reading, especially since ingredients change often.

label reading does get easier over time, though. it really does. kinda like learing a foreign language. ;)

teebs in WV Apprentice

Tiffany,

Thanks for the information. I have been at this a year and this is the first time that anyone has suggested that a 'gluten-free' label should still be investigated. I have personally encountered products in the "gluten-free" section of the health food store that were merely wheat-free, but I have never even thought about questioning that.

It makes perfect sense though. I just bought a bag of Smarties today because I read on this forum that they were safe. As I was unwrapping my first (of many) rolls, I hesitated and asked my niece to read the ingredients to me (I was driving). As soon as she read the words "Smarties contain none of the following common allergens: gluten...." I ripped that sucker open and popped them in my mouth!

So after reading your post I thought I should check for myself, and sure enough the label says "Smarties contain none of the following common allergens: gluten (From wheat barley, oats and rye)...."

Pretty cool I thought - especially since gluten was the first "allergen" and also the fact that they included oats.

This time I was OK, but you have definitely made an impression on me with this post. I will make sure that I will read every label - including those claiming "gluten-free".

Thanks again,

Tracy

Kaycee Collaborator

I have picked up products labelled gluten free, only to see that there is wheat is in the list, not sure if it is hydrolised wheat and all the gluten has supossedly been removed. But I know there are products out there which have wheat, but the manufacturers claim all the gluten has been removed.

I for one, will not touch these products. Someone here said, if you took the poison out of the rat poison, would you still eat it?

For me, I tend to eat things that do not have too many additives. It horrifies me when I pick up a packet of rice crackers and the list of ingredients is 5 inches long. A couple of lines of ingredients for me is borderline.

Catherine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jaten Enthusiast

It's interesting to have found this thread. I was just contemplating what a serious issue we have on hand with gluten-free labels cropping up everywhere on everything. I was actually logging on to express my thoughts. Like Tarnalberry, I have come to distrust the "gluten-free" label. I'm afraid that perhaps more and more manufacturers are wanting to jump their products on the "gluten free label bandwagon" without really being 100% certain they are gluten free. As Tarnalberry said, there are no laws in the U. S. governing this.

I am not putting all vendors in that category. By no means! There are some that are very responsible. But, the onus is ours to be certain the foods we ingest are safe. After having successfully gone a few months without a glutening, I am now dealing with my 2nd one in 2 wks. I got too comfortable and let my guard down.

Last night I ate a new-to-me frozen food from a new-to-me manufacturer. I was excited to have found a new food labeled "gluten free" right on front of the package. I nuked it. I ate it. Within 1 1/2 hours I was in gluten distress. This morning dh checked the ingredient list of the other products in our freezer by this company....made in a facility that processes peanuts, tree nuts, soy, milk, and wheat. Not knowing the practices of this particular company, I can tell you with a certainty that a little of their wheat came a little too close to my gluten-free meal.

Just in the year since my diagnosis I have seen more and more "gluten free" labels stamped on mainstream foods. Until there is strict governance of this label, please don't accept it at face value.

Celiac beware! Buyer beware! We don't have to live in fear. We just have to be proactive.

2Boys4Me Enthusiast

Just the other day I was at an Italian market and picked up some biscuits with "Senza Glutine" on them and a wheat sheaf with a line through it. I read the ingredients and there was no wheat/rye/oats/barley/malt except a disclaimer at the end said: May contain other gluten containing cereals. :blink:

The product was made in Italy and imported through a company in Ontario. The website is still under construction.

I was confused. I didn't buy the cookies/biscuits/whatever they were.

Kaycee Collaborator

It seems over here in NZ there has not been many more products claiming to be gluten free, and it just seems to be many more companies are changing their labels saying that their food is manufactured on machines that process gluten containing products.

One such product was a brand of muesli bar I had been eating on and off for a while as a treat, then I noticed the company had changed its packaging, and with the change they had put a warning on it being produced on the same machinery as gluten. That labelling was not there before!

For me it would seem that my food choices are getting less as food producers seem to be trying to save their butts by putting in what appears to be a disclaimer on their labels. I have not found a potato crisp that I can safely eat, as they all contain gluten or produced on the same machinery!

But I feel, and I hope that soon there will be an upsurge in people wanting or needing gluten free products, and I think things will improve a whole lot. My stint in Auckland the other day was not successful as for finding good wholesome food in cafes. Yes they had muffins, but do you want a muffin for lunch, or even a gluten free biscuit? No.

Catherine

jaten Enthusiast
Just the other day I was at an Italian market and picked up some biscuits with "Senza Glutine" on them and a wheat sheaf with a line through it. I read the ingredients and there was no wheat/rye/oats/barley/malt except a disclaimer at the end said: May contain other gluten containing cereals. :blink:

The product was made in Italy and imported through a company in Ontario. The website is still under construction.

I was confused. I didn't buy the cookies/biscuits/whatever they were.

I've read that there are other grains that contain gluten, for example corn. I don't know. I do know that the protein (gluten) in wheat, rye, barley, and oats is what we have to avoid. Oats may or may not be a problem depending on who you listen to. My g.i. told me last December to completely avoid it. I do.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.