Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs With Hypoglycemia!


Guest adamssa

Recommended Posts

Guest adamssa

hi!

i was hoping to hear from others with celiac or g-intolerance who also have hypoglycemia. i am finally starting to understand what is going on now that i 've realized i have both. i was wondering what works for everyone? i have to say, i was pretty reluctant to go on another restrictive diet, and i've always thought i've been pretty good about dealing with that. but, once i saw how the chocolate seriously messed me up for three days i am leaving the sugar alone again.

what kinds of foods do you guys find helpful? can hypoglycemia --perhaps caused by celica, ever sort of subside or is this another lifelong conditon? now, paying attention to how my blood sugar directly affects my mood and brain, i realize that i've had it my whole life, just not as severely.

i find that tuna and nuts are the best thing to eat, but it is all so boring! i am reading the krimmel book and tryng to follow that and they say to limit seriously your intake of grains. and i can do that but it gets dull. i find that any sugar at all, and too many grains just make me feel so brain fogged i am basically incapicitated. does this mean that hypoglycemiacs with celiac have to commit to a life of vegetables and meat?

thanks!

sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I don't find dealing with hypoglycemia very limiting any more, but I'm fairly anal retentive about making sure all my meal are balanced. I don't avoid sugar (I enjoy dark chocolate often ;) ) but I make sure that every instance of eating that has carbs has a balance of at least fat or protein to go with it, preferably both. Exactly what works for you will likely be different than for someone else. (For me, for instance, protein isn't *the* key, but a balance of protein and fat. Just eating carbs and protein doesn't deal with my blood sugar levels as well for as long as getting some (moderate) amounts of fat in there.)

I find that if I keep things stabilized, and am cognizant of what I'm eating, then I can easily go three, four, or five hours without needing food, even if I'm not eating much. But I have to keep it BALANCED and not rely on carbs. I don't eat bread as it is (not a fan of gluten-free bread anyway :P), I make my muffins to be very protein/fat balanced, and love my stirfries with plenty of veggies.

The best advice I can give is to learn your body, and realize that what you read in a book or online is a guide. It's a good place to start, but it's all based on average, and you're not eating for the average of hundreds of people, you're just eating for yourself. :)

Sweetfudge Community Regular

I don't think mine are related...I was diagnosed w/ hypoglycemia 15 years ago, and only developed celiac about 2 years ago. I found it difficult to maintain my blood sugar levels without my wheat bread staples :P But like tarnalberry said, the key is to balance your proteins, carbs and fats.

I eat a lot of rice and potatoes, some gluten-free pasta, but not much in the way of bread, unless I make muffins, or if I'm having soup. I do eat a lot of corn tortillas, and I keep pizza crusts in the freezer as well. But I don't do sandwiches really anymore.

I also eat a lot of nuts. Before going gluten-free, I loved to make fruit and nut bread...haven't had much success making since, but I know there's good recipes here. I really have tried to incorporate more fruits and veggies in my meals.

Make sure you are eating often enough. If I go too long without eating, I get head-fogged for a day or two.

My favorite things to eat are potatoes, soups, pizza, and mexican food. Browse this site, you can find a lot of good recipes :)

Messagae me if you want more advice. And good luck!

georgie Enthusiast

Tiffany has good advise and that is what worked for me too. A balance of protein, carbs and fat at every small mini meal and eat before you get hungry . 'The Insulin Resistance Diet' by Drs Hart & Grossman was my bible.

However, should also add that since having Thyroid dx and receiving Armour - my hypoglycemia is much better. My blood tests for Thyroid were always 'normal' but I eventually found a good Dr. Seems all my other Drs had only ever been doing the TSH test. And not testing for Antibodies. Once you have one autoimmune disease you can get others. Chicken and egg story what came first for me...but ..something to think of as well.

Guest adamssa

thanks guys! :) i had been trying to add carbs back in without eating protein at the same time, so your advice has been very helpful i am trying now to do that gradually. i've been wondering if the brain can really get enough gluclose if you don't eat carbs? ---and if the head fog comes from a blood sugar drop or a lack of adequate supply of sugar---i suppose it is both.

thanks again. w/out the people on here to help me figure this out i would still be absolutely miserable. my body is still very whacked out, but now i at least feel like i may be able to begin to feel my way back to something else. and, best of all sometimes my brain fogged feeling is diminishing!

sara

jnclelland Contributor
thanks guys! :) i had been trying to add carbs back in without eating protein at the same time, so your advice has been very helpful i am trying now to do that gradually. i've been wondering if the brain can really get enough gluclose if you don't eat carbs? ---and if the head fog comes from a blood sugar drop or a lack of adequate supply of sugar---i suppose it is both.

sara

You *do* need carbs, just not necessarily from grains - and maybe not as many as you're accustomed to. Veggies have lots of good carbs, especially things like beans and legumes (as long as you don't have an intolerance to those as well). Don't worry; your blood sugar will let you know if you're not eating enough of them! :)

Jeanne

Mamato2boys Contributor

I've been hypoglycemic since about the age of 15, and haven't "officially" been diagnosed as gluten intolerant. I learned through having my son tested that I at least carry one gene for gluten sensitivity. I've found that since cutting out glutens my hypoglycemia has settled down quite a bit. I'm one of those people that the key *is* protein to keep my glucose stable. I'm even finding that I can get away with "junk" food (like dark chocolate) if I balance it out with a serving of protein. My brain fog is better and I can't remember the last time I had a low blood sugar episode - a couple weeks I would guess (since starting the gluten-free diet). Before then, I'd have as many as 3 or 4 episodes a day - NOT comfy at all ! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Clark Bent as Stupor-Man Contributor

I've had hypoglycemia since I was in middle school and was diagnosed with a GTT when I was in college a few years ago... ultimately, it lead me to learning about food intolerances since I was pretty strictly adhering to a hypoglycemic diet and still not feeling well..

a hypoglycemic diet doesn't have to be all that restrictive... it's pretty much just a balanced ratio of proteins, carbs, and fats as has been said... generally speaking, you just want to keep an even blood sugar level, which means avoiding spikes in blood sugar (from high carb/sugary foods especially ones that are digested quickly) and subsequent crashes..

the less frequently you crash, the easier it becomes to recognize the warning signs beforehand... you may find it beneficial, at least at first, to keep something like nuts with you because they are an easy source of balanced protein-carbs-fats..

if your only food intolerance is gluten, you have a lot of options for what to eat on a hypoglycemic diet... eggs are a quick, easy food to cook that should work well.. you may also find it helpful to drink orange juice in the morning and then follow it up relatively quickly with a breakfast with protein... it may depend on if you also have fasting hypoglycemia but the best advice, as tiffany said, is to learn how your body reacts and adjust accordingly

and I can empathize with you about dealing with brain fog as a writer... fun times, right? I'm just over halfway through my first novel though my main character's got enough issues without having to deal with celiac disease as well...

Guest adamssa

hi charlie!

it is exciting to hear from another writer who has to deal with brain fog! (not that i am happy that you have to deal with it too, of course.) That is seriously probably the most difficult thing for me. i write for a local magazine, and am a journalism major. and it seems to me that whenver i start getting excited about articles i've committed to or just developing my own stuff....i get fog again. or if i don't have it, it's like i've got to do as much as i can before i get it again. it's pretty scary! and emotionally messes with me. i mean, that's what i want to do w/my life, and it's also what i've promised people i'll do, and suddenly i feel so removed from everything that's happening. or wondering what is going on.

do you have any advice for dealing with hypoglycemiac brain fog? ---is it just a matter of not crashing? i am really sure that's what i'm getting now, fog from an unsteady supply of glucose. i can literally tell sometimes that my brain is manufacturing fewer thoughts because it has less to go off of. often times it seems to be improving, the better i am about eating regularly, but i still seem to be at about 50%. it may be because i keep to the two hours thing as much as i can, but then i go to work some days and can't.

thanks! good luck with your novel. i am very interested in writing about the experience of chronic illness, which is where my interest in a celiac character comes in. guess it's because i have so much personal experience, so it won't be grasping. :rolleyes:

Sara

Lauren M Explorer

I have HYPERglycemia, but from what you all share about your diets, it sounds very similar to what I'm supposed to follow: protein and fat with my carbs so my blood sugar doesn't spike. My fasting blood sugar is naturally high.

That's odd to me, that two words that technically should mean the opposites (HYPER- and HYPOglycemias) actually have a similar diet. I always thought if you were hypoglycemic your blood sugar ran low and you would have to pop candies all the time or drink soda...

- Lauren

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.