Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello - New Here


Amooliakin

Recommended Posts

Amooliakin Apprentice

Hi everyone. I am glad I found this forum and look forward to learning a lot from all of you. My daughter (8 years old) was diagnosed 3 weeks ago and we have been trying VERY hard to be gluten-free since then. We have of course made a few mistakes since this is all brand new to us. But I think we are doing great with fresh foods, gluten-free baking at home, shopping for gluten-free foods on line and at health food stores. It helps that we live in New York City where you can get just about anything (except maybe peace and quiet ;) )

I have so many small questions that come up but of course I can't think of any of them now.

I just wanted to say hi and I will be reading posts and joining in soon.

Amy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

*Peek A Boo*

Hi Amy! =)

Corkdarrr Enthusiast

Hi Amy!

Welcome to the forum. I'm sure you'll find this to be a great place for support and resource for knowledge...these people know everything! I don't know where I'd be without this forum...lost, probably! :D

Courtney

mouse Enthusiast

Welcome to the forum Amy. It sounds like you have the diet well in hand. Just remember when you do have questions, we never consider any too dumb to ask. We have all been where you are, whether with kids, ourselves, friends or spouses.

Amooliakin Apprentice

Thanks - I have learned a lot from another forum where I asked my first batch of 1,000 or so questions :blink:

And of course I have been talking to everyone I know and reading every book I can get my hands on. But this will be more helpful because I specifically have questions about my child.

As I mentioned, my daughter was just diagnosed a few weeks ago. Since then my son (12) and I have also gotten the blood test but don't have results yet. If it turns out we have it too it should be easier in some ways. But I don't think either of us will take it at all as well as my daughter.

In her case she was really feeling lousy for a long time. So going on a diet to make herself feel better makes sense. MY son and I feel fine now. So if we have Celiac it will be one of those cases of hidden without symptoms.

Wish us good luck....

tarnalberry Community Regular

Welcome! This is a fab place, filled with helpful, friendly people! I'm glad to hear that you're getting the hang of the diet so quickly, and that it's helping. :)

AndreaB Contributor

Welcome Amy! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

Welcome! I've got a six year old daughter and both of us are gluten-free...

Guhlia Rising Star

Welcome, Amy!

kevsmom Contributor

Welcome, Amy -

This is a great place to come for information and support.

Cindy

happygirl Collaborator

Amy,

We are happy to have you here! This is a great place for information, support, research, recipes, etc. No question is too silly, stupid, or gross---we have all been there and done that, so to speak. :)

Your daughter is so lucky to have a mom that is so helpful and is determined to keep her 100% gluten free.

Some personal favorites of mine:

Tinkyada brand (rice) pastas...in all varieties of "normal" pastas.

San-J gluten free soy sauce (be careful, they have gluten containing ones, so make sure you get the right ones!)

gluten free pretzels

many McCormick brand seasoning packets (like tacos, enchiladas, etc) happen to be gluten free. Make sure to read the label each time as they can change. But you can go onto www.mccormick.com and find the ingredients for all their products.

many mainstream products happen to be gluten free....coke/pepsi/most sodas, corn/tortilla chips (which I just used in place of crackers), ....

Let us know what we can do. Welcome to the board.

Laura

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.