Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back From Endoscopy-colonoscopy

breann6

Recommended Posts

breann6 Contributor
breann6
Posted

they took one sample of the small intestine and three in the colon. I am irritated because we discussed taking more for accuracy. ARGH! :angry: i am p/o'd because i went through all that last night and today for what feels like a shot in the dark. Meanwhile- my supposedly negative blood tests from last week were actually "weak" positives. I had been off gluten for nearly a week when doing the repeat at the GI's. they were lower than the two weeks previously which furthers me to believe it IS celiac. -remove gluten; numbers go down- makes sense to me. I am so annoyed that my GI doesn't want to validate a "weak" postive but yet keep looking at other options -per his words- which i interpret as keep funneling the money i don't have. :angry:

i've had it with him.

I am doing Enterolab, hopefully this week. Any one here with BCBS (im in GA) Do they/Will they reimburse for Enterolab testing?

Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

oceangirl Collaborator
oceangirl
Posted
I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

Hi!

I, too, had a "weak" positive after 2 and 1 half MONTHS gluten-free. (tTg= 28, normal is 0 to 19) Endoscopy inconclusive so Gastro dismissed me and I was on my way. Eeeekkkk!!! Went through Enterolab and was positive for gluten-reactivity (after 4 months supposedly gluten-free-missed some) and 2 genes for gluten intolerance. Positive dietary response. I'm sorry you have had this frustrating experience and I do not know about your insurance. Anthem Blue Cross covered Enterolab on my Maine group policy. (through High school) Maybe you could call and ask? I am going to see my regular doc re: other possiblities that may cause elevated tTg, but I KNOW I can't have gluten! Good luck to you.

lisa

dionnek Enthusiast
dionnek
Posted

I have BCBS PPO in GA and when I called they said they would cover the enterolab testing, however, after I got the :angry: test and sent in the claim (with the Enterolab codes), they denied it all. I didn't push it b/c I only did the genetic tests (for my daughter - I already had positive biopsy and blood tests on myself). So, even if they tell you it will be covered, I think you'll have to do a lot of pushing to actually get paid.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748
    Rotary
    Newest Member
    Rotary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.