Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depakote For Food Intolerance Migraines


cakes

Recommended Posts

cakes Newbie

Has anyone tried Depakote for their migraines? I want to know about the side effects.

thanks,

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Has anyone tried Depakote for their migraines? I want to know about the side effects.

thanks,

Colleen

I was given depakote for a seizure disorder that turned out to be gluten related, as were my migraines. My experience was not good. I trembled very badly, my hair fell out, my fingernails became extremely curved and ridged, I walked around in a cloud and my liver enzymes were eventually effected. It did get rid of my seizures but it was for me not worth it. The generic form also gave me severe D and stomach cramps but the name brand didn't. The generic had gluten of course. If you are newly gluten free you may want to try and wait for a couple of weeks to see if the diet gets rid of the migraines without meds. I haven't had one since a couple weeks after I went gluten-free, unless I get glutened, and I think there are others who have had the same effect. Good luck and I hope you are migraine free soon.

Guest Norah022

I took depakote for migraines that were not food related (or so we think) and was put on two additional anti-depressants at the same time to treat the migraines. I had no side effects at all. It did not however help my migraines.

cakes Newbie
I was given depakote for a seizure disorder that turned out to be gluten related, as were my migraines. My experience was not good. I trembled very badly, my hair fell out, my fingernails became extremely curved and ridged, I walked around in a cloud and my liver enzymes were eventually effected. It did get rid of my seizures but it was for me not worth it. The generic form also gave me severe D and stomach cramps but the name brand didn't. The generic had gluten of course. If you are newly gluten free you may want to try and wait for a couple of weeks to see if the diet gets rid of the migraines without meds. I haven't had one since a couple weeks after I went gluten-free, unless I get glutened, and I think there are others who have had the same effect. Good luck and I hope you are migraine free soon.

Wow! I noticed when I went gluten-free they got much better. However I still get bad ones around my menstrual cycle. I have pcos and my blood sugars are erratic during these times. I had migraines for a whole week last week. I take Pamelor (an antidepressant) but I don't know what else to do.

Thanks for your reply.

Colleen

I took depakote for migraines that were not food related (or so we think) and was put on two additional anti-depressants at the same time to treat the migraines. I had no side effects at all. It did not however help my migraines.

did you find anything that did help them? I know mine are hormonal/blood sugar/food related.

Clark Bent as Stupor-Man Contributor

I took depakote ER as a daily preventative for headaches for nearly 2 years prior to trying all this gluten-free/food intolerance dieting... I started out on a small dosage and eventually went up to 1000 or 1500 mg each night.... I didn't notice much difference in the years taking it in terms of reducing headaches but maybe there was some small reduction at first...

however, I had negative experiences with depakote as well... when I bumped up the dosage past 500 I got very fatigued and didn't feel well (don't remember many specifics besides the fatigue)... I switched off of it after the 2 years and don't personally recommend it although everyone's body is different

Budew Rookie

I feel like I stumbled onto something. Ursula's links to Lectins is worth a read for everyone who has commented here.

Just 6 weeks ago I was really sick. Erratic blood sugars, flushing, muscle pain, migrane headaches.

Long story short, I think the corn caused the migranes. I looked back and found I was always hungry before my period and ate cornmeal mush. I thought the migranes were hormonal, but I am sure it is the corn (maize).

By chance I cut out soy too. My rice intake increased and my muscle pain did too. I read about Lectin classes. A person having trouble with the lectin associated with all grains can cause many symptoms. I have been off rice and all other grains since Friday. I cannot believe how much more energy I have, how my mental abilities are improving, and my appetite has improved.

I decided to stop using Legumes (peanuts included) for 6 months. Then I will test their toxicity. They are a different Lectin class that could be causing problems. I really never got into eating legumes, even as a vegetarian for 30 years. I am using instinct eliminating this one.

I am eating limited dairy. Another Lectin Class. Bloating, gas

There is also a Lectin type in Nightshade vegetables. I eliminated them a long time ago. I have tried to add them back on occassion. I continue to react to them quite immediately. Flushing, rashes

Oh yeah, the blood sugar leveled out as soon as I started taking digestive enzymes about 6 weeks ago. I take l-glutamine powder (powder not capsule was important) and probiotics with (FOS). I can get all the stuff at the local coop and health food stores. I plan to discuss other digestive enzymes available with my doctor in Dec.

I discovered a sensitivity to salycalates. They are a ripen agent in fruits and vegetables. Ursula has a link to rate foods by their levels. I have restricted my intake to foods on the safe, very little, little, and limited amounts of foods on the medium list.

I made a data base to figure out what I should eat. I thought it was ironic that all of the foods on my list were the foods I like the very best. I am having a great time making things to eat.

Last but not least my skin. I had terrible skin sores. I did not heal correctly. Thick skin formed over the sores. Very painful. Unsightly. I used make up to cover them. It finally dawned on me how important it was to get gluten free makeup. I had gone gluten free in all other personal care products long before. I found that Bobbi Brown and Clinique are the most helpful. I made the change a week ago. The healing improved the second day. I have been on the road to healing for a week now and can hardly recognize myself in the mirror. The skin is smoother, the sores are now flat red tender skin areas that I am sure will dissapear soon without scarring.

I am on cloud nine. I wonder how I could have been a diagnosed celiac 6 years ago. Begging for help, and not one person/ doctor every mentioned the words lectin or salyclate.

Oh well, this is working. I am not seriously ill. I am just reacting to foods. WHew!

Ravenwood. I read your signature. You can probably help me. Sounds like you already have been through this. I am just getting started.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,614
    • Most Online (within 30 mins)
      7,748

    Retired RN
    Newest Member
    Retired RN
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.