Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fyi... Benefiber NOT gf anymore


MySuicidalTurtle

Recommended Posts

MySuicidalTurtle Enthusiast

My Mom uses Benefiber and on the new one she bought it says:

Ingredients: Wheat dextrin

Gluten Free (less than 10ppm gluten)

What is this about?!?!? I told her not to take it but what should she do? I thought dextrin from corn was okay but dextrin from wheat is not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

I wouldn't take it. Even if she doesn't get a reaction from it, the low levels of gluten may add up and cause damage (if they don't just cause the damage immediately). I would definitely steer clear.

debmidge Rising Star

We ran into this situation last week and didn't know what to make of it. We used to buy it before this "re-formulation".

My understanding is this is how they classify foods as gluten-free in Europe - so many parts gluten per million or something like that.

Despite this, we are not purchasing the new Benefiber. Does anyone know of a substitute (other than Metamucil)?

MySuicidalTurtle Enthusiast

What I don't get is how the ONLY ingredient is wheat dextrin and how that would be too little to cause a reaction.

Judyin Philly Enthusiast

HI all

This freaked me out so i went and got my old bottle of the power..it said ingred...partially (?) such tiny print can't read that word but after that word is --hydolyzed guar gum (100% natural fiber) and it expired 6/06 so there must me a new formulation as was stated above.

I'd love to hear if anyone called the company. i know the pills were not gluten-free when i started back in june of 05.

judy in philly

debmidge Rising Star

I wrote to Novartis today about this topic (their website did not have an email address - only mail address & phone number) and stated that I understand that to them that 1 part of gluten to 1,000,000 parts of the whole is considered gluten free, but to us it's still unacceptable. I told them to visit our message board and view what people with celiac disease say about products which have wheat/gluten as ingredients.

Advised them that some people with celiac rely on these type of products for most of their fiber. And that we will not buy a product which states GLUTEN FREE when wheat is a component.

So I suppose they'll respond shortly with a form letter.

Now we are looking for substitute products.

Judyin Philly Enthusiast

dEB, THANKS FOR WRITING THE COMPANY!

JUDY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
AmandaD Community Regular

I just got my most recent newsletter from local celiac group. I guess Benefiber will no longer be gluten-free.

Budew Rookie

Thanks for the heads up. I guess I wil be looking for Guar Gum at the health food store from now on.

AmandaD Community Regular

Yeah, I guess they're going to start putting "wheat dextrin" in it from now on...

  • 2 weeks later...
debmidge Rising Star

Benefiber now uses wheat starch in their formula. They claim it's gluten free as it's so many small parts per million. We reject this and no longer will buy Benefiber as we feel that the old formula served its purpose and no changes were needed.

We have been calling Novartis Home Health (manufacturer) and writing to them to state our decision and feelings on this.

Has anyone else been affected by this change and have you contacted Novartis as well?

For us this is a serious change as my husband cannot eat fruits and vegetables and relies almost solely on fiber supplements for his fiber.

  • 2 years later...
Hdugas Newbie

I was diagnosed three years ago as an asymptomatic celiac patient. My father has celiac and so the whole family was tested, but I have never had bad symptoms; maybe one or two times in my life. Even so, I've been gluten free since my diagnonsense, as I call it, and honestly feel fine.

I started a weight loss regime this year and included Benefiber to ensure that I got enough fiber. I have not had any reactions, but then again, I didn't have any after defiantly driving through Arby's and wolfing down a Beef and Cheddar with curly friends either.

Further, my dad has typical symptoms and he takes Benefiber as well. As in all things related to a gluten free diet, I say test it out for yourself.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to maryannlove's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Yasso frozen yogurt bars - be careful

    2. - Scott Adams replied to cristiana's topic in Traveling with Celiac Disease
      1

      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

    3. - Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Frustrated

    4. - Beverage replied to Betsy Crum's topic in Related Issues & Disorders
      8

      Chest pain from celiac

    5. - Wheatwacked replied to Mrs. Cedrone's topic in Related Issues & Disorders
      4

      Canker sores


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,412
    • Most Online (within 30 mins)
      7,748

    Saharon
    Newest Member
    Saharon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    • Scott Adams
      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly aware of celiacs, and he has made the switch to gluten-free soy and fish sauces. 
    • Scott Adams
      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real struggles you’re facing daily. It’s concerning that previous doctors dismissed your celiac diagnosis, and now you’re left fighting for validation while dealing with unexplained symptoms like eye pressure, skin issues, and relentless pain. Menopause and long COVID may be complicating things further, making it even harder to pinpoint the root cause. Are you sure your diet is 100% gluten-free? Do you eat in restaurants...if so, this can be a source of contamination. Trace amounts of gluten over time could explain your symptoms. Many people with celiac disease have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Beverage
      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before meals with protein, heel thumping, and until it healed, taking DGL after meals to coat...do NOT take antacids https://drjockers.com/acid-reflux/ DGL https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406/  
    • Wheatwacked
      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores.  Vitamin D deficiency is very common in Celiac Disease.
×
×
  • Create New...