Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Was Just Diagnosed

Hayleesdad

Recommended Posts

Hayleesdad Rookie
Hayleesdad
Posted

We live in the mid-west(mo)I'm finding it difficult to find gluten-free foods.

Do you have to order everything?She's 6 years old and very picky.

I'm finding this very difficult.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi dad, and welcome to the board! :)

There are many naturally gluten-free foods that you can get at any grocery store. Meats, poultry, fish, eggs, some yogurts and cheeses, fruits, veggies, peanut butter, jellies, etc. Even a few cereals.

For the specialty mixes, flours, breads and those kinds of things--do you have a Whole Foods, Wild Oats or a local health food store? I actually find that my larger grocery stores are carring more and more gluten-free products.

Look for Tinkyada Pasta--it's very good. My local Acme even carries it.

Try not to let this overwhelm you--the diet gets easier with time. Feel free to ask any questions you have--someone here will know the answer--or tell you where you can go to find it!

Sweetfudge Community Regular
Sweetfudge
Posted

Unless you have stores around, or can just make naturally gluten free meals, I would suggest using amazon .com they have tons of gluten free food in the grocery and gourmet sections. let us know, there's lots of knowledgeable people here who are ready to help :)

Budew Rookie
Budew
Posted

I am from WI.

All of the suggestions so far are great.

I do a lot of ordering on line. Amy's Foods is carried in many stores. Their website makes shopping easier by sorting out the products for you. Given this is a kid, Amy's gluten-free mac & cheese is good.

IGA carries some things, so does Woodmans.

FYI- Hershey Kisses, milk chocolate bars, jolly ranchers are gluten-free candies.

Kraft labels are excellent. If they have gluten they will disclose it on the label.

When in doubt of a favorite food or brand I call the company directly.

I have found alternatives for almost everything.

What are you looking for?

Maybe we can make this easier for you and her.

linds Apprentice
linds
Posted

I live in a small town in northern Minnesota and there are very few options. I either make naturally gluten free meals such as meat, fish, potato, rice, fruit, and veggies. Otherwise I order my stuff from amazon .com.

Nantzie Collaborator
Nantzie
Posted

If you feel comfortable saying what city is closest to you, someone may know of something there or nearby.

The best/easiest thing to do is just eat things that are naturally gluten-free, and then experiment with replacement products such as breads, pizza crusts, cookies, etc.

Other than that, I order a lot of stuff. It's the easiest, least time-consuming way to do it. It gets aggravating to drive all the way cross town to a health food store only to find out that the one item I really need is out of stock or not being carried anymore.

The thing that I did when I went gluten-free is pick one thing that I was really missing (crackers), and just tried a new brand/style when I got a chance until I found something I really liked. (Ener-G Wheat Free Crackers were my and my kids favorites.)

This board is a great way to wade through all of the options by looking at other people's opinions of products. For example, if your daughter is missing sandwiches, it'd be helpful for you to ask about that because some gluten-free breads practically disintigrate (sp) if you try to use them for sandwiches. But there are others that work really well.

Nancy

Hayleesdad Rookie
Hayleesdad
Posted
  • Author

Well thank you all so much.I'm dealing with this alone(single parent).I thought that was hard.NOW this.

I appreciate the support of the forum.I'm really glad I found this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

Make sure you look up a member here by the name of nini. In her signature, she has a link to a "Newbie Survival Kit" that is simply amazing...... it will help out alot.

Any questions, regardless of how minor it might seem, go right ahead and ask - there's a great bunch of people here......

Karen

jerseyangel Proficient
jerseyangel
Posted
Well thank you all so much.I'm dealing with this alone(single parent).I thought that was hard.NOW this.

I appreciate the support of the forum.I'm really glad I found this.

You're very welcome :) Let us help you!

Read through the older posts--there are lots of food ideas in the recipe and product forums, and check out the Parents of kids and babies with Celiac.

You're not going to have to deal with the Celiac part all by yourself--anything you need, just ask :)

Hayleesdad Rookie
Hayleesdad
Posted
  • Author
You're very welcome :) Let us help you!

Read through the older posts--there are lots of food ideas in the recipe and product forums, and check out the Parents of kids and babies with Celiac.

You're not going to have to deal with the Celiac part all by yourself--anything you need, just ask :)

thanks

LauraW Rookie
LauraW
Posted
We live in the mid-west(mo)I'm finding it difficult to find gluten-free foods.

Do you have to order everything?She's 6 years old and very picky.

I'm finding this very difficult.

Hi Haylees dad,

If you have a Meijer's there, there is a small gluten free section there. Good luck!

GFBetsy Rookie
GFBetsy
Posted

This summer a health food store opened in Chillicothe, MO. The address is 424 Washington. I'm not sure if they are still open . .. the last couple of times I've called them, no one has picked up the phone. But I know that they had a gluten free section. So if you're anywhere near Chillicothe, that might be an option. If it will take you a while to drive there, I'd probably call someone at City Hall in Chillicothe and ask them if the store is still open . . . they'll probably know or be able to find out for you. The name of the store is Pure N' Simple.

Good luck!

angel-jd1 Community Regular
angel-jd1
Posted
We live in the mid-west(mo)I'm finding it difficult to find gluten-free foods.

Do you have to order everything?She's 6 years old and very picky.

I'm finding this very difficult.

I'm not sure how close you are to KC. There is a Wild Oats on 119th. There is also a Whole Foods Market over by 95th on the Kansas side. Both are good places to pick up things.

Hy-Vee's are a great place to shop. They have a natural foods section with tons of gluten free foods.

A year or so ago Wal-Mart has started labeling their "Great-Value" brands if they are gluten free, look for it under the ingredient statement usually. They have also started carrying Sunstart Bakery gluten-free cookies and also Van's plain gluten-free waffles. (At least in my area in Kansas).

Like mentioned before, there are tons of natually gluten free foods.

The specialty items are where you run into the cost.

Try to keep it as simple as you can.

Some good "Kid friendly" things are:

Amy's rice crust pizza

Ian's Allergen free chicken nuggets

Ian's Allergen free fish sticks

Tinkayada Pasta and Velveeta cheese

Mission Corn tortillas topped with pizza sauce peparoni and cheese, bake in the toaster oven for 10-15 min.

Frito Lay Chips (see their website for a complete list of gluten free items)

Skippy Peanut butter

Jiff Peanut Butter

Kraft is a great brand, they will list any gluten containing ingredients right on the label

Blue Bunny IceCream (of course the obvious cookie, cake type ones are out)

Edy's IceCream (again the obvious ones with cookies and such are out)

Bryers(obvious cookie/cake varities are out)

Lunch Meat roll ups (hillshire farm lunch meat with kraft singles cheese rolled up)

Hope that gives you a small start.

-Jessica :rolleyes:

abigail Apprentice
abigail
Posted

hi, I've found that several product Great Value brand (wallmart brand) are happily marked clarly GLUTEN FREE. and they are really inexpansive too!!

hope this is usefull for you...........!

abi

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748
    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.