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Usually How Long

Mayster

By Mayster
in Coping with Celiac Disease

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Mayster Newbie
Mayster
Posted
:( How long were you guys gluten free before feeling better? I've been reading that once folks have gone gluten free they've never felt better and I wonder how long after that was.
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linds Apprentice
linds
Posted

I'm not sure what other people will have to say but I have been gluten free for a month and feel a little bit better but I still don't have a whole day that I feel good. It seems that still everytime I eat no matter what it is i still have an upset stomach. I have heard some people say that it happens right away while it takes others months. Hope that helps.

Budew Rookie
Budew
Posted

Some folks feel better right away. Some find that they have other problems too.

I waited 2 years before I looked into related problems.

It took me 7 years to find a good doctor.

I thought I'd never be better. Wrong.

Everyday in every way things are getting better.

My mom has had celiac 50 years. Very few problems.

I think it depends on the damage eating gluten has done to your system before the diagnosis, and how careful a person is about food, cross contamination, and even shampoo lotions can cause continued problems.

How long have you been gluten-free now?

Aren't you feeling better?

If not, what's wrong? We may have suggestions?

If you both are not feeling better soon. Let us help.

Rest assured you can be just fine. : )

jerseyangel Proficient
jerseyangel
Posted

It took me 3-4 months to really "turn the corner". I was pretty sick--and had been for years. In addition to the D and nausea, I had severe anemia, tingling and numbness in my legs, feet and face, hair loss, weight loss, bruises on my arms, fatigue, depression, anxiety and brain fog.

I felt very tired for the first few weeks, then gradually began to feel better. It is different for everyone, as are the symptoms that we have.

The main thing is to stick with the gluten-free diet 100%, get as much rest as possible, drink lots of good water and be patient--it will get better :)

Mayster Newbie
Mayster
Posted
  • Author

I have been gluten free a month and this past week I have gone from wicked insomnia to barely staying awake. I'm on a lot of meds too though. My stomach hurts constantly. The docs tell me until my gut heals, I will have discomfort eating. Sip and nibble is what they say. When it gets real bad they say go back to liquids for a couple of days. Bipsy showed no villi left so until they grow back I am told to expect discomfort when I eat. They have given me Bentyl for spasms and Phenergan for the queasy feeling, but all in all it's still unpleasant to eat.

How long have you been gluten-free now?

Aren't you feeling better?

If not, what's wrong? We may have suggestions?

If you both are not feeling better soon. Let us help.

Rest assured you can be just fine. : )

Gamecreature Rookie
Gamecreature
Posted

Everybody's different. I've been gluten-free for about 6 weeks and while I've noticed immediate improvement in the way I've generally felt, I've had several flare-ups, some of which felt worse than I did before going gluten-free. Your age is a factor in how long it takes you to heal. The older you are, the longer it takes.

hez Enthusiast
hez
Posted

It took me about 6 months before I noticed the diet helping. Then by nine months I really felt great. I think it just took my body a while to heal (my vili were completely flat). Give your self some time, know that you will make mistakes and keep with the diet.

Hez

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dionnek Enthusiast
dionnek
Posted

I've been gluten-free 6 months now and haven't noticed much of a difference, although like others my villi were completely flat (I had been sick for many years before my 10th dr. discovered celiac!). I did notice today that I haven't had as many bruises on my legs these last few weeks (have always had huge unexplained bruises in the past), and my dizzy spells are less and less and my leg/foot cramps have just about gone away completely, so even though I haven't had any improvements in the intestinal issues, other things seem to be improving :)

Hang in there - I've heard it can take a year or more to notice improvements (that's what I'm shooting for).

LynRyn Newbie
LynRyn
Posted

I got Celiac about a month ago, and was diagnosed\on a gluten-free diet 2 weeks later. I started feeling normal again about a week after going gluten-free. I'm 17, so that probably helped a bit. Not that I was eating gluten while on celiac for very long.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

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