Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ursula, Lectin Help Needed, Please


plantime

Recommended Posts

plantime Contributor

Hi Ursula. I bought the Eat Right 4 Your Blood Type book, and learned that it is all about how different lectins affect your blood. I am trying to follow the diet, but since mine says no corn or potatoes, I am almost lost. I know that those foods make me feel sluggish and worn out, but what do I eat instead? I have been eating squashes, but they take a long time to cook.

I get no dairy, but almost all the meat and fish I want. Do you cook ahead? How do you handle days when you don't have time to cook? Or even sit down to eat?

I have checked out your links, I really appreciate you putting them in your signature. I have managed to stick to the plan for one whole day, but have really cut back otherwise. Even just cutting the bad lectins has made a big difference in how I feel.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Dessa,

I have severely limited my lectins also. Corn is in everything. Make sure you check out cornallergen.com...hope it helps some. And, no, no eating out.

Laura

plantime Contributor

So eating out is out. Do you carry a lunch with you when you are going to be gone all day?

Ursa Major Collaborator

Hi Dessa,

I find that if I eat out (once every few months), I can tolerate a caesar salad. No croutons, obviously, and bacon bits only if they're real bacon. Fake bacon bits are made with wheat. It's probably not a very good idea, but I take my chances at times. It is not possible to be 100% safe with the many intolerances I have, anyway.

I don't believe in the blood type diet. I think if you suspect you're intolerant to lectins, you need to figure out by an elimination diet which groups you can and cannot tolerate. Of course, if you KNOW already which of them make you feel bad, don't eat them.

My kind of 'fast food' is a salad with tuna. I take a prepackaged salad (mostly iceberg, it's the only one I can tolerate, even though it has little nutritional value), put a whole can of tuna over a plateful of that, and use my special, safe, salad dressing with it. My salad dressing consists of one freshly squeezed lime (lemons are too high in salicylates), maple syrup, sea salt and cold pressed sunflower oil. I really like it, fortunately.

Today I went to take my second-oldest daughter and little Zoey shopping. It takes me 1 1/2 hours to get to her place. I ate some cream of buckwheat cooked with a cut-up apple for breakfast, and took my lunch with me. I cooked myself a stir fry last night, and my lunch was leftovers from that, plus a portion can of diced pears for dessert. I took some sesame snaps for a snack, and a bottle of water as well.

If we would have gone to a restaurant, I'd just eat my food, while Karen would order a lunch. But because I was up most of the night with terrible stomach pains (or possible another ulcer in the esophagus, I am afraid), I was late to get going. So, Karen ate lunch before I got to her house, and I ate my lunch on my way to the next town, where the mall is, while she was driving my car (she knows her way around there, and I don't).

In general, I don't eat out. It isn't safe and not worth the risk. If I go visiting people that are too far away to bring all my food already precooked, I bring my own stainless steel frying pan, spatula, sometimes a small pot, and a cooler of safe foods with me. I then cook all my own food. I can only visit people who understand, of course, and won't get offended by me doing that.

One of my friends will cook me safe foods, and I've always been okay eating at her house. But that is a rarity.

I eat mostly stir fries. The meat can be ground beef, beef strips, chicken or turkey strips (or squares), fish, steaks, really anything. I cook the meat with diced shallots (onions are too high in salicylates to eat too often). When the meat is pretty much done, I add whatever diced/cut up vegetables I am having with it (or frozen veggies, if I have no energy to prepare fresh ones), season it all with sea salt, and just let it simmer until done. I try to cook enough in the morning to last me all day. But often my kids will eat it, and then I might not have enough energy left to start over again, and only eat sesame snaps, or a salad for the rest of the day. Not good, I know. But I have very little energy (sometimes none at all), and if I don't look after myself, nobody will. It's an extremely rare thing for anybody to be willing to cook for me. They think it's my duty to cook for them instead. They don't understand that I am not well enough for that most of the time, and resent me for it (and when I say kids, I mean my two youngest daughters, who are 21 and 15 years old, the three oldest are married and moved out).

Anne AMP Apprentice
Hi Dessa,

I find that if I eat out (once every few months), I can tolerate a caesar salad. No croutons, obviously, and bacon bits only if they're real bacon. Fake bacon bits are made with wheat. It's probably not a very good idea, but I take my chances at times. It is not possible to be 100% safe with the many intolerances I have, anyway.

I don't believe in the blood type diet. I think if you suspect you're intolerant to lectins, you need to figure out by an elimination diet which groups you can and cannot tolerate. Of course, if you KNOW already which of them make you feel bad, don't eat them.

My kind of 'fast food' is a salad with tuna. I take a prepackaged salad (mostly iceberg, it's the only one I can tolerate, even though it has little nutritional value), put a whole can of tuna over a plateful of that, and use my special, safe, salad dressing with it. My salad dressing consists of one freshly squeezed lime (lemons are too high in salicylates), maple syrup, sea salt and cold pressed sunflower oil. I really like it, fortunately.

Today I went to take my second-oldest daughter and little Zoey shopping. It takes me 1 1/2 hours to get to her place. I ate some cream of buckwheat cooked with a cut-up apple for breakfast, and took my lunch with me. I cooked myself a stir fry last night, and my lunch was leftovers from that, plus a portion can of diced pears for dessert. I took some sesame snaps for a snack, and a bottle of water as well.

If we would have gone to a restaurant, I'd just eat my food, while Karen would order a lunch. But because I was up most of the night with terrible stomach pains (or possible another ulcer in the esophagus, I am afraid), I was late to get going. So, Karen ate lunch before I got to her house, and I ate my lunch on my way to the next town, where the mall is, while she was driving my car (she knows her way around there, and I don't).

In general, I don't eat out. It isn't safe and not worth the risk. If I go visiting people that are too far away to bring all my food already precooked, I bring my own stainless steel frying pan, spatula, sometimes a small pot, and a cooler of safe foods with me. I then cook all my own food. I can only visit people who understand, of course, and won't get offended by me doing that.

One of my friends will cook me safe foods, and I've always been okay eating at her house. But that is a rarity.

I eat mostly stir fries. The meat can be ground beef, beef strips, chicken or turkey strips (or squares), fish, steaks, really anything. I cook the meat with diced shallots (onions are too high in salicylates to eat too often). When the meat is pretty much done, I add whatever diced/cut up vegetables I am having with it (or frozen veggies, if I have no energy to prepare fresh ones), season it all with sea salt, and just let it simmer until done. I try to cook enough in the morning to last me all day. But often my kids will eat it, and then I might not have enough energy left to start over again, and only eat sesame snaps, or a salad for the rest of the day. Not good, I know. But I have very little energy (sometimes none at all), and if I don't look after myself, nobody will. It's an extremely rare thing for anybody to be willing to cook for me. They think it's my duty to cook for them instead. They don't understand that I am not well enough for that most of the time, and resent me for it (and when I say kids, I mean my two youngest daughters, who are 21 and 15 years old, the three oldest are married and moved out).

Ursula,

You have been the most wonderful resource for me. You can come visit me anytime! I am still struggling with the tremendous intolorances and am back to eating only four foods - beef, chicken, butternut squash, and cooked pears. I did get the Thorne Research Vitamins but got a migraine and fog brain taking just one. I guess its the filler, Leucine, (which I found out is an amino acid ) caused the problem. One more sensitivity for me - amines. I have been on this diet for about 6 weeks now and can't believe how intolorant I still am.

Anne

Ursa Major Collaborator

Anne, it is very likely that in time you'll be able to tolerate more foods. Sometimes low thyroid function can be the cause of allergies and/or intolerances, as it will cause your bowels to be sluggish, and not functioning right. The same goes for adrenal fatigue/burnout.

You might want to try the hypoallergenic vitamins from Open Original Shared Link. I am taking those, and they seem to be okay. What I really like is the option to only order a sample which will last you a couple of weeks, for $3.85, to test if you can tolerate them, before you spend a lot of money. I did that. I wished you'd have that option every time you try something new!

Anne AMP Apprentice

Thanks Ursula. I will try that brand of vitamins.- Anne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

Thanks for the advice, Ursula. I'm using the book as a starting point, and I already knew many foods I am intolerant of. It's not easy, but like you said, "if I don't look after myself, nobody will." My husband is having fits, saying that I don't eat enough as it is. I tried to explain to him that I can eat as much as I want of foods that don't make me sick, but he just doesn't get it. Corn is definitely a problem for me, not an allergy, but it makes me feel rundown and sluggish, so I am trying to find all of the places it is hiding in my diet and eliminate it. I found it in my "unsweetened" applesauce, and my sweet potatoes, and I about had a breakdown in the store over it. It just looks like I have to go back to the basics, and work my diet from there. The biggest problem is that I don't have the oomph to cook a full meal by the time dinnertime arrives.

I'm sorry your kids are whiny about you not feeling up to cooking for them. I told mine to cook for themselves, I taught them how when they were kids. I keep microwaveables in the house for them, so I only need to worry about me. My husband lives and works overseas, so he deals with his own food. The big problem with him is that he expects to eat out for every meal when he is home on leave. I will worry about that when he next comes home.

happygirl Collaborator

Dessa, good luck to you! it can be hard to navigate all this.

and yes, I bring my food everywhere. I was just the matron of honor in my best friend's wedding last weekend...I brought dinner to the rehearsal dinner, snacks for the wedding, did not take communion during the service, and brought my own dinner for the wedding. I bring my lunch every day to work. It stinks, but it is worth it for me.

Let me know if I can help in anyway.

corinne Apprentice

I too can eat very few foods (8) and squash is one thing that is ok. If you have a microwave, you can cook squash fairly quickly. I stick a whole butternut squash (or acorn or turban etc) in the microwave for 4 minutes when I walk in the door from work. After I sort the mail and change, I flip the squash over and microwave it for another 4 minutes. Then I split it in half and remove the seeds and it's ready to eat.

plantime Contributor

I got out my crockpot yesterday, and put some beef and acorn squash in it to cook all night. I ate some for breakfast, and will have more for either lunch or dinner. After spending the past week trying to figure out how to handle breakfast on a busy morning, maybe I have finally hit on the solution! Now I will just have to experiment with crockpot meals. A smaller crockpot would help, too, but I will worry about that later!

jerseyangel Proficient

You know, that's a good idea. I also avoid lectins as well as several other foods.

Breakfast is far and away the hardest meal for me--I need to eat in the morning, and include protein. Since I can't eat eggs, that narrows things down even more.

To adress your inital post, I don't eat out at all (well, really twice in the year and a half I've been gluten-free)--when we visit family out of town, I bring all of my food with me. I'm that sensitive, and don't want to risk getting sick away from home (bad enough when it happens at home :lol: )

If I'm to be out of the house for anything, I always have some food in my purse, so I don't get caught without.

Guest AutumnE

I also never eat out. I always feel yucky afterwards if I do. One thing that helps me is when I make a meal that is safe for me (I cook separate meals because mine get boring for my family) I freeze them in a freezer safe separated plate. Usually 2 or 3 meals. If I know Im going to be busy the next day I just put it in the fridge the night before and heat it up the next day, otherwise I would never have the time to cook.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.